I was recently diagnosed with CFS (Even though I knew I've had it for years) and I would love to have some friends who also have CFS. Preferably living in the UK so we have the same time zone but I mainly want some friends who understand what I'm going through. Thanks
I live in the UK and I haven't been diagnosed get but strongly suspect CFS as I have all the symptoms so I will understand your position, in fact I could do with the same thing myself
I I would also love to have friends who also have Cfs too I'm quite new to this I've only been like this just over 3 months it seems much much longer though the only test I've been given is a ct scan which I am awaiting results for should know outcome this week I'm so exhausted it's unbelievable some days can't lift arms dizzy head pressure nausea last night I actually slept ten hours and feel as if it was ten mins my life feels completely changed and very quickly too. I can only go outside for a short walk 5 mins and I feel I could pass out this is only couple times week the rest of the time I keep in I live in uk too
Hi Danny how long have you been feeling like this. I gave my job up I just couldn't cope with the stress of it I only worked part time but the job was just one more stress that I didn't need having constantly ringing in sick due to fact I couldn't function. I find this quite a lonely illness I don't know anyone with it in my area I find my dr just says oh you have post viral fatigue syndrome it could take weeks / months I try and keep positive but some days it just gets to you I just feel I want more answers as to why
Do you have Kik or another social media we could talk on? Not facebook as that is my personal account.
Do you have Kik or another social media we could talk on? Not facebook as that is my personal account.
Hi Kyra, hi royalty both, I also live in the UK - I'd be happy to chat with you both, maybe we could set up a group chat?
I don't do facebook I'm on twitter are you on that as we could private message on that
I don't now how to set up a group chat lol I'm a bit of a techno phobe
Does anyone have Kik?
No never heard of kik sorry
I've been feeling like this since February the first symptom was brain fog and memory loss its terrible and some days I don't know how I get through my work day and my latest symptom is shooting and stabbing pain through my body, I feel so fatigued all the time I just cant seem to see the end.
Not heard of kik I'm on facebook and messenger
What tests have you had done danny I don't have shooting or stabbing pains mines more of stiffness an aches it must be so hard having to try and work with all this going on
I've had blood tests done and an MRI all were fine, but I'm not well,I have pain in my shoulders back and arms feel like dead weights, I've had a soar and stiff neck for months and months its relentless I have tinnitus 24-7 both ear's and my eye's don't like the light, my nose is partially blocked and has been that way for months,I get dizzy spells and heart palpitations I also have low blood pressure and a bpm of 52 I'm 38 years old male single, I take 15mg escitalopram but the worst thing by a mile is the brain fog and memory loss of which I have good and bad days and had before the meds.
Hi Kyra, I'm in the UK too, in Cornwall. I was diagnosed with CFS/ME a year ago now.
Don't know if this helps but I met two of my friends with CFS through a short mindfulness course my GP referred me to. The mindfulness helped us get less stressed, and my friends understand how I feel as they often feel the same. We use Facebook to communicate, and meet up now and then.
Where in the UK are you?
Oh that's awful mine started after sinitis an then chest infection then pain deep in ear shoulder n neck pain like someone pushing shoulders down then the pressure on top an sides of head started the pressure comes and goes. I feel for you, what is your next step I would ask for ct scan. And I'd ask to see a neurologist. That's an awful lot to try and cope with I wish you well and hope someone can help you ASAP
I am 25 and have just been diagnosed with CFS after struggling since February. Pretty much ruined my entire life, before this I was in Canada for 2 years playing football on a scholarship at a University. After a bad break up and 2 stone weight loss I got CFS. Happy to chat to anyone if they want support!
Somerset. How old are you?
Do you have any social media to talk on?