I felt awful on both Xarelto and Eliquis. Savaysa worked the best for me regarding the new anticuagulants. In the end however, I feel the best on good ol Coumadin
Thanks. I think the frustration is the biggest issue. When the GP fobs you off you start to doubt if you really have an issue or are you just becoming a whinger.
i am following this with interest. ive tried two and ended up on warfarin and seem ok. its the fatigue mentally and physically that gets me. anti depressants seem to be what they try, im not keen.
Back in the '90’s I had some health issues. They gave me anti depressants. They did more damage then anything else. I would run a mile from anti depressants at any cost.
I’ve found staying active is the best solution. But there comes a point when my wheels get wobbly and I can’t keep going. That’s when I feel the worst. So it’s a balance between doing nothing and keeping on going. It’s a mental game that I hope I can win.
i find myself in same position. the drs just throw different anti deps at you but have no regard how bad they make you feel. i really dont want to take any others, they have all been awful but i am trying so hard to keep on an even keel. have you any help how to do this, what kind of exercise do you do. i can walk and do but cant swim. i am scared of doing much in life, i used to do yoga but im scared to go to classes now.
Exercise is an issue. Not enough and you never get anywhere. Too much and you are back to square one. It’s a real balancing trick. I’m lucky and live near the beach in the sub tropics and have a pool at home. I find walking more than a few hundred yards difficult. I walk a couple of times a week on the beach. I swim every day in the pool. It all helps. This time of years it’s 30c every day with 90%+ humidity. So doing anything is a challenge. Even with the exercise y legs don’t improve much at all.
It’s a mind game. You have to rely on will power and not pills.
It’s been 7 years since the first OP and 4 since the last but this is the only place I’ve found anything about being tired all the time since my double PE.
Mom died end of May and 5 days later I broke my ankle, a very bad fracture, all 3 bones. It has a name but I always get it wrong and know I can’t spell it. Trimalleolar, perhaps? To top it off, I l live in Germany and my husband hadn’t made it to the US, yet. All went well in the US (always have travel medical insurance when traveling outside your home country) and I got home and checked in with a German orthopedist. I got a referral to physical therapy but as is typical in Germany, I had a long wait. I live on the 2nd floor (1st to Europeans) and couldn’t get out and about and was still non-weight-bearing. All that sitting around waiting led to the PEs. Once at the ER I didn’t even know I had anything that serious going on. They did the catheter thing because one of the PEs was pushing against the heart and causing problems there, but everything was happening in medical German. I was clueless and once that oxygen mask was on, I could breathe and felt much better. My poor husband understood it all. It wasn’t until several days later that one of the doctors told me I almost died. It still hasn’t really sunk in for me.
I ended up in a rehab clinic for a month where I got cardiac, pulmonary, and orthopedic rehab. While the doctors were mostly concerned with my heart and lungs (of course), I was afraid I’d never walk normally again. I came out of Reha much better and stronger. A happy ending? Well, I’m alive, walking mostly unaided, can do stairs slowly with a crutch or a handrail, and exercise every day, so yeah.
But sheesh, I am so darn tired. All the time. I have a pedal trainer thingy (like an exercycle but just the pedals) and do that 20 minutes morning and evening, walk the dog afternoons and evening, and do a short resistance band workout every other day. It wears me out. I have to try really hard not to take an afternoon nap. I’m trying to build up my leg muscles and build up speed when I walk, but not too much, too fast. I have follow-up physio twice weekly and come out feeling so strong, but still, by evening, I’m wiped out. It’s only been a couple of months, but while I’m 61, I’m not old enough to feel so old.
It felt good to find this discussion. No where else in looking around the internet talks about the complete exhaustion afterwards. I’m not alone.