Hello to everyone. My name is Boris, I'm from Croatia and sorry in advance if my english is bad. I joined here because I see so many sufferers about this what to call it "disease of unknown cause". Im 22 years old, and my problems started in 2011. I contracted chlamydia trachomatis and ureaplasma at that time and was treated with anti's. They did the trick, but since then, I always had some minor issues. I always had some urination and ejaculation discomfort, and sometimes when sitting on a bicycle seat. But I learned to live with it and it didn't bothered me that much. I started with bodybuilding in 2013. I was a really fit and muscular boy. Till this day, I had some problems with erections and noticed that I never had morning woods. But I could have sex when I ended up with a girl, but sometimes I needed viagra because my penis didn't responded to stimulations. I also masturbated a lot during this years. But to get to the point now. In July this year, I noticed some big issues. It starter with a frequent urinations and a burning when p*ssing. Doctors discovered another chlamydia infection. This was treated with anti's, but after that, symtopms got so worse that I cannot live normally anymore. I went trough all kinds of test and they cannot find anything wrong with me and bacteria is not present anymore. My symptoms are so severe that I lie in my bed for days and can't do sh*t. Constant urge to urinate, burning when p*ssing, cannot sit for 10 minutes because sitting causes pressure, electircal like and knife like pain in the perineum, anus, penis, genitals, and worst of all, I feel all of that radiating to my lower back, abdomen, and generally in the pelvic region. Also, my upper tighs hurt sometimes and it is often sweaty there and in the anus. I often even feel pain at the root of my penis, testicles, glans and my penis is really dead now. I have a good libido but my penis is like a foreign object attached to my body, that's how I feel and I cannot use my penis even that I have good libido. I cannot even masturbate, and when I sometimes succeed doing it, it is more like a torture and not a comfortable feeling. Ejaculation is a nightmare, I feel so uncomfortable after that to the point that I really don't want to do it anymore and I actually have a fear of doing it in the future. My life is a misery now, my parents are trying their best to help me but but nothing seems to help for this nightmare. I consider ending my life so often and I just want to get out of this skin, and I didn't slept for a month and a half now because of this, it kills me. I don't know what to do and it seems that anti's, physical therapies, natural remedies and all that doesn't seem to help and ease this condition. I am considering to do Ganglion of Impar blocks to my lower spine as it seems to help in 70 to 100% of cases with this kind of issues but I am not sure. I am so desperate that I am ready to kill those nerves that produce sensations like this. Does anybody tried this or anything else that helped immediately? I'm only 22 and my life just startedy and this nightmare appeared. It took my life, my job, ruined my social life, ruined my relationship, ruined my passion and love for fitness and bodybuilding and ruined the meaning of being alive. To all of you who suffer from problems like this, feel free to write here, I am compasionate with all of you. I don't see a good solution for this, and I don't plan to suffer for years with this either as I see that people often end up living a fu*ked up life with this. I'm tired mentally and physichally. I don't want to live like a zombie because of this. I feel like I'm alive, but half dead. Will this condition ever go away? Oh god, help...
This is one of the worst stories I've heard on this forum. I feel very sorry that you are suffering both physically and mentally. I do not have any practical advice, but want you to know there are people here who want you to find the answers to your problem. Your English is good, so well done for using this website to get help. I hope others have some good suggestions for you.
Thank you for reply. This thing is really killing me day by day...
You need to see a top urologist. Perhaps in the UK, Australia or the USA. The whole urogenital system is complex and often hard to treat. Bacteria can stay hidden. You should likely get a full MRI and ultrasound to see what is going on. The pain in the tops of your thighs indicate that your lymph nodes are swollen and something is draining into them from somewhere. You have got to find the source. Best of luck..
Dear bane,
I have suffered with Prostatitis for seven yrs. now. Mine was so bad that when I got it, I was in such discomfort that the Dr. thought that a Turp might solve the problem because my urinary system was in such a mess from BPH. Turns out that the problem is still with me to this day. I have been to many Drs. to find a possible cure and none have helped me, BUT I continue to search for the one possible physician who will take me into their care and have the compassion to rid me of this dreadful condition. I don't give up and I'm telling you now, friend Don't Give Up. Finding a cure for this is the one thing we should all strive for and if we have that goal in mind, I know there can be a better day for all of us who suffer from chronic Prostatitis and just want our lives back so that we can once again have the happy life that our fellow brothers have and we so richly deserve as well !!
Steve
Hey Steven. How old are you? I'm afraid that this will haunt me every day for the rest of my life. And that I will live a miserable life with this. No girl wants a boy like this. Will this thing ever go away? Oh god, I can't take this...
Hi Boris,
I'm 66. I got this when I was 59. You have to take this day by day. Calm down, take a deep breath and I promise I will get back to you tomorrow after i get a good rest. I will talk to you tomorrow, Boris, OK.
Steve
Steven I'll be interested to hear your insights.
Hi Bane,
First off you need to know that eventually you will solve this problem. I don't have it, but I had another related problem.
I had significant problems with being impotent, and having difficulty getting an erection long enough for successful intercourse. I got that problem when I was about your age. I struggled with it, trying every new thing as it was developed. Some worked better than others, but the technology just wasn't there. Finally, about 3 years ago I got a penile implant. It's wonderful, even better than a normal healthy penis would be. My point is that this problem will likely be solved, because like impotence, many guys have it, so there is a "market " for a cure, and it will eventually be solved.
Your job is to do what you have started doing. Do your own research, and become an expert on the latest developments in prostititus. Continue to go to the best doctors you can find, particularly at centers of excellence, like major universities. And continue to have hope.
You are wrong about no woman wanting to be with you. I was with many women while I had my problem. You have a tongue and fingers that will also satisfy a woman.
A woman who wouldn't want you because of that problem isn't worth a damn. There are others......
Neal
The problem got worse. Ot became so severe that last night, after I somehow ejaculated, the pain was so severe that I almost fainted. I cannot walk properly anymore...
Go immediately to the best hospital you can get to.
Neal
Hi Bane24
Its not easy to reply to such a complicated situation. However
let me try..
The solution is like spokes in a wheel..each spoke gives the
wheel strength..so we first have to identify the broken spokes
and fix them one at a time.
1. You said that anti's worked so lets get the infection under control
2. I would stop ALL life styles that would aggravate the condition
3. Be patient and continue to strenghthen your immune system.
4. See a qualified Urolgist immediately.
5. Do internet searches (nih forums etc) to find studies that
may pertain to your condition.
You may not be able to reel the solutions off like a song
but you will get a glimmer here a flicker their...missing pieces
will start to fall into place and gradually you will see improvements.
This is GENERAL approach a slow start but a start to
your complete recovery.
God Bless you bane
Hi Boris ( and unclefester ),
First of all, I wouldn't worry about girls right now since you most likely have gotten infected by a girl, maybe not. What you have to do right now is start working on yourself in trying to find a way to bring your symptoms to bay. I wish there was an easy answer for this, but there isn't right now. Maybe someday when the medical profession realizes this is a problem will this thing be brought out into the light where it Truly BELONGS.
I have tried everything so far that there is to try. BUT I do not give up hope. I have been where you are with the depression and thinking no one cares BUT I have myself and realize that I AM a pretty nice person AND so are you. You have to read up on it, since the urologists will not help you I'm sorry to say. Antibiotics will not do the trick, they will only weaken your immune system. Right now I am looking for specialists who deal with or in prostatits. I am going to try a specialized Dr, who will take an MRI, possibly a TRUS and do prostate massage or injections. I would advise you to turn your attention in these directions and go with a GOOD qualified DR. who will work with you on this terrible disease and get us back to normal. This is my advise, Boris. I will stay in touch with you if you would like.
Stay strong, don't let depression overcome you, talk to people on this site;; You are NOT alone. Many men have this. Whether or not it comes from sex, we do not know, but there is one thing that I have found out. Frequent masterbation does not help the condition, it tires the prostate out. AND sometimes the prostate DOES need a rest.
Good Luck, Boris, do not give up hope and I will stay with you as well as unclefester and anybody else on here who knows about Prostatitis. We (all of us) have learned to help each other and so will you my friend.
Please stay in touch with us.
Steve
Steven I'm curious, how do you know you have prostatitis? When my ordeal started, I had classic prostatitis symptom. Yet I've had 2 uro's tell me its not. I have a new uro now but I'm leaning towards HOLEP surgery to relieve my symptoms. I'm 59 so I'm not worried about RE like
Boris I don't have any answers for you. You're young so you have that going for you. Research all you can on the internet. Diet can have effecys on the prostate. Stay away from alcohol, caffine products, spicey foods. Find a doctor that will listen. Stop having sex and masterbating ( I know thats difficult )
Do you ejaculate or pee blood?
Hi unclefester,
Thats just the problem. Doctors tell me I have Prostatitis but know one has actually proven that i have it. That's why I had the TURP, I thought it would relieve my symptoms. I did have an MRI done which supposedly showed symptoms on the transitional lobe. The report says this could be scarring related to chronic prostatitis. Do you know anything about this my friend? Wouldn't I still need some prostatic fluid taken or some kind of test that shows if it REALLY is prostatitis. I don't know if I can rely on an MRI or not.
Steve
Read my previous posts that talk about medical tests, that should be done by your doctor, and searching for pelvic exercises.
The nerves surronding your pelvic region can become compressed, and cause alot of pain. Remember that the prostate contracts during ejaculation.
People, i can't take this anymore, this is the worse condition for a man to have. I think i will commit suicide in a matter of days.
Do you have anyone to talk to? Call your urologist and tell him/her what you're going though
I've been to several urologist. They all say the same and send me home. There is no hope anymore. My life just started, and now, it has to come to an end because of this.
Where are you located?