My doctor has offered me 2 treatment options, both can lead to kidney failure liver problems or fatality. With every medical treatment is risk. Im just scared and concerned about the toxicity of cidofovir and having it intravenously every 2 weeks. The doctor wants me to have the treatments at the hospital and each session could last up to 6 hours. Its supposed to stop the herpes virus that keeps replicating in me thats keeping me sick. But taking such a toxic drug through my veins seems like chemo or something. .the seriousness of it. Ive lost my grandma and sister this past year to cancer and im just tired and afraid of the treatment period.
I have been suffering from herpes for 3 years andiits effected me in many ways. After the initial infection i developed chronic fatigue syndrome and i have had both for 3 years. I can't get anything done. Always too tired or laying down. In different pains every day. Excruciating headaches. & I have extreme noise sensitivity where loud phone ringing and dogs barking next door hurts my nerves. I lay down paralyzed from pain most days. Only on good days i might be able to go to the store for a minute. .but this is truly no way to live. It really feels like im just existing or living to suffer. Now the other treatment option is Valcyte.. its a pill but the doctor said its less effective. But also has serious side effects. Both drugs have big risk but the doctor said i should take the Cidofovir intravenously. I recently did some research and found out that the Ebola patient that died in Dallas. . Was taking BRINcidofovir. . An oral form of the drug Cidofovir. They are the exact same drug from the exact same company called Chimerix.. only difference is Cidofovir is through an IV and Brincidofovir is a new tablet form of the drug.. Feeling uneasy taking a drug used for a failed Ebola patient. Brincidofovir is also used on Aids patients who acquire a distinct eye problem.
Anyways, It seems like I have no choice i really want to get better. My doctor said that I would turn out excellent after treatment so im excited and scared at the same time. . So sick of having the herpes talk and being reluctant to date new guys. Feels like im really missing out on a love life.