CKD stage 3+heart attack+diabetes +anemia

I am from India(asia)

 

My father 53 years age is having diabetes from past 17 years ,on 30 april suddenly he had an heart attack due to high BP as no blockage was found BP 240/120 .On the examination of Kidney he was diagonised with CKD stage 3 his cretanine was 2.0 and also high leakage of protine potassium was 4.7 and sodium was 136,Hameoglobin was 10.5 and elevated sugar level,Doctors advised for insulin and strictly odered to control BP.

Again tests were done after 1.5 months 17july 2017

His cretanine is 2.1

BP is 80/135

Hameoglobin is 8.1

there is decrese in protine leakage

we are very much worried what to do ? Mam can this disease be cured

how much time is there for my father to prevent dylasis .

Hello ishant,

Your father's haemoglobin is very low.  This menas he is anaemic and your doctor must find out why as  there are multiple causes.  It will probably make him feel very tired and needs to be sorted out quickly.  He might just need iron medication for a while. Quite a lot of elderly people have CKD Stage 3 as kidney function decreases with age and in itself, it need not be much of a problem yet but it sounds as though the protein leakage needs investigating.  Do you know his GFR?

Ishant,

My creatinine was stable at 2.0 for four years, until last December. My hemoglobin was down to 5.6 without treatment. My protein leakage was not elevated. And my blood pressure ran very low.

My nephrologist has been treating the anemia. He first tried EPO injections. But they caused lots of peaks and valleys in my functioning. So about 2 years ago he switched me to an oral medication which is working much better. My hemoglobin is now typically 11.0-11.5. He has also recently discovered that I've had severe chronic dehydration due to a sodium deficiency. He is treating that now resulting in an improvement in my blood pressure.

For your father, it is critical that he get both his A1C and his blood pressure in range. Then, with treatment for his anemia, he will likely feel a lot better. Further, his nephrologist may be able to stabilize his renal function for some time or at least slow the progression.

Best wishes,

Marj

Hi,

Creatinine would be 201 in the uk (we measure slightly differently) so quite high but not drastickly so at this point.

I am thinking the BP you have put the wrong way round it is more than likely 135/80 (if it were the other way I would be concerned)it is just about within the limits but considerered acceptable for CKD3 just!.

HB level is just under they like it between 10 & 12.  HB is different from iron but both are linked. Iron tablets may help but if they haven't done anything after three months they wont and it is bad to stay on them.  This is what I was told by my neph who has been part of my life since I was a small child.  I had an infusion with EPO injections which I did myself (the EPO) and that sorted me right out, I didn't need any further intervention for a good 18 months.

It depends on the cause of the CKD if it is linked to the diabities then he may remain stable if BP and sugar levels remain under control but manageable more than curable.

Helen, you mention that your nephrologist has said that It is bad to stay on iron tablets. Is that only if the iron tablets aren't working or is it for any extended use of iron tablets. Also, does this apply to iron tablets that are also phosphorous binders, e.g., Auryxia?

Extended use, I was told if they dont work over a three month period they are not going to work.  Phosphate binders are different all together and I am sure mine said not to be on iron at the same time you will have to read what it says on the package.  I didnt have phosphate binders for long and I wasn't on iron tablets I just remember them saying something about iron its best to ask your dr the drugs may be different in the UK to the US

Thanks🐶

Marj

hi helen

and thanks for reply

Dr. has started EPO injection 1 every week and some iron tablets .hope to recover early

hi marj

and thanks for reply

Dr. has started EPO injection 1 every week and some iron tablets .hope to recover early

NO i dont know about GFR,Dr has started EPO injection 1 per week and some iron tablets .hope to recover

Hi,

Yes it should do, EPO should be used in conjunction with iron therepy for best results.  It takes about two weeks to get into the system properly so after that results should be noticed, any tiredness or breathlessness should start to ease and your father should start to feel a little more himself.  Its not nice to be tired and breathless but these symptons seem to appear for many (not all) at stage 3.  I hope your father feels a little better very soon he has been through an awful lot.  Lots of rest he needs and the love of his family which he obviously has.

Ishant,

Glad to hear that your Father is receiving treatment for the anemia now. He should feel much better soon. I, too, am a diabetic and so know how it feels to have elevated A1C. I don't struggle much with blood pressure. But the anemia alone can cause me to feel pretty poorly. But a few months after my doctors had my treatment plan in place I found that I was feeling and functioning much better.

It's wonderful that you're there for him. That will be a tremendous help for him.

Marj

thanks marj

currently he is feeling better ,he is only taking 2.2 liters of water is this quantity enough . he doing morning walk of about 30 minutes daily .should he take bed rest or continue the routine .sometimes in evening he feels that his head is very heavy.

hi ,

currently he is feeling better ,he is only taking 2.2 liters of water is this quantity enough . he doing morning walk of about 30 minutes daily .should he take bed rest or continue the routine .sometimes in evening he feels that his head is very heavy.

till how many weeks should he take the injections EPO .My father is very active and prevents from taking bed rest .? should he take bed rest or continue his routine

 

My nephrologist has told me that I'll have anemia the rest if my life and so will need medication for it very likely for the rest of my life.

And, yes, your father should continue a routine of daily exercise like walking. I exercise daily too. I'm not able to do as much as I could before my kidney function deteriorated to 14-15% function. But I definitely feel better when I exercise. However, I am quite tired at night. So my evening routine has changed considerably.

I'm so glad to hear that your father is feeling well enough now to be able to walk daily. That is good news.

Marj

are you taking injections EPO or oral medication?

 

I was initially taking EPO injections. My nephrology gist shifted me to an oral medication about 2 years ago. The oral medication works better for me. But many find the EPO injections to be a better option.

Hi Ishant,

EPO works well for me- 1 weekly injection, plus B12 injections every 3 months and oral folic acid every day.  My Haemoglobin has been in the normal range for 5 months now.

Hi,

You take it as long as you are told to until your HB levels are between 10-12 his dr will advise. I made myself excersise I found it helped I did HIT training 3 times a week.  I am not suggesting your father does this as he is considerably more senior in years than me but walking is good.  Due to his heart condition he should gradualy build up, so a short walk like to the garden gate and back is good and build up as he feels able.  Only he is the judge of how he feels.  I walk now after transplant, I have issues with my leg on the side of the transplant so I have to rest but we have a dog so good incentive to walk.