i was just diagnosed with LS and my clitoris is fused to the hood.... my doctor said the clobetasol use will "unfuse" it.... has anyone had luck with that??
I've had LS since 1991. It just progresses more and more. It's unbearable. Is that a medication?
I was diagnosed 2 years ago and was told that my clitoris was fused, but was never told that this could be reversed with medication and it never has.
ive seen on some threads baking soda used for unfusing but every case is different. my minora has gone on vacation and is no way coming back, its disappeared and with using clob/dermovate too.
Dear Debbz, I have heard of the clobetasol helping to unfuse tissue. Might take some months but would be worth trying. You might also invest in detox tea and milk thistle to decongest the liver to relax the auto-immune, parasympathetic nervous system. Have you tried meditation? How about grounding? That is where you spend time outdoors with your bare feet on the ground. Then, too, what are your Vit A and D levels? Don't give up. Anything can change in a day.
Yes - it's a steroid cream that I apply to the area. You should ask your doctor about it. Mine just started me on this... I'm HOPING it'll help.
I've read some things on-line about it being able to be reversed, but nothing about the clobetasol reversing it. So I thought I'd ask. I'm hoping it works for me.
:( I'm sorry.... Ugh... I've just been diagnosed with this - and I am just beside myself. I'm trying to be positive... I seem to have caught it early and don't have horrible issues like some people that I've read their stories. So I'm thankful for that... but its still depressing.
I haven't heard of the baking soda method... but if the clob doesn't work - I may try it! ;) Thank you!
That's good to hear... :) Thank you. I'm hoping it'll work!
I haven't tried anything you mentioned (meditation/grounding, etc...) I was just diagnosed a couple weeks ago. I just started the clobetasol cream. This is alllll new to me. I've been researching it as much as I can on-line. What I have found - is that everyone is different.... and some cases are very bad and some are mild. I'm praying mine stays "mild" - or goes into remission. It's not bad - thankfully.
<3 Thank you for your reply. :)
thank you. It is frightening at first especially if we have never even heard of this before, Dont look at google images as they are worst case scenarios and you wont get like that as youve caught it early and are getting help. I was very scared three years ago but not so now, but it is daunting when things seem to disappear to nowhere. x
Yeah... I googled right away before I even HAD the biopsies to diagnose it... and I cried FOR DAYS when I realized that this is probably what I had. Google does post the worst case scenarios - that's for sure. :/ I'm still not happy (who would be!?) about having it, but I'm glad it was caught early - and I'm hoping my treatment goes well. <3 Time will tell. :)
Debbz, Is your vulvar skin sore? And, do you have a pattern of white as in stripes or is it in blotches? I realize this is very personal so don't answer if you don't want to. My white patches went away in 1 month but then the area got sore and still is and that's what nobody can seem to figure out. Three different diagnoses but nothing really helps except nsaids and/or liquor :) One doc said "Stop sitting" Yeah right, like how do I go to work? Spend some time outdoors everyday and if yours does not hurt, count your blessings. Write back. I do care.
does this look similar to ls? dont have pain i mean sometimes it hurts to have sex i wrote it off as just being "too dry" .. and same for the itching i assumed since i have forcyde spots and lack of lotion was the reason i was so itchy? .. i have random sharp pains down there but i thought this was all normal google doesnt seem to help , im goin to have a pap done but im just curious 
Debbz, Everybody's is so different, I don't know what to say. Itch is one symptom but so can pain be a symptom. After hearing from so many women and reading so many articles and seeing 5 gyns, it seems a biopsy is 90% accurate for a diagnosis. Yet, I am afraid to have it because I will be even more debilitated than now. Forgive me, but have you had a biopsy and , I assume, it showed LS? I am convinced the cause is something systemic. Have you tried the baking soda? I need to try that. What are you using for symptom relief? I am using some coconut oil and A & D cream (which helps and is from Dollar Tree, made in US) . Ibuprofen helps very little.
May I ask how old are you? I am 63 going on 35. It is hard to realize that we don't have total control over any aspect of our lives, especially health. I have had a couple of other issues, gall stones, kidney stones, and adhesions requiring surgery from the gall bladder surgery, and teeth pulled, BUT THIS HAS BEEN THE WORST! I can't sit without pain. There are millions of women with these type of problems and, while that doesn't help our individual pains and trauma, it does mean that there are more and more doctors and new research and that can only mean more info and more possibility of treatments by a range of providers, western, eastern, holistic and so on. Keep reading, seeking help and don't give up. Try to adopt a new perspective: it could be worse. My best friend just had an emergency quadruple bypass at 59. While he was in the OR, somebody did n't watch a blood machine and too little blood got up to his brain and he had a stroke. Now in rehab. Class A hospital, too. He can still speak and control most of his body but cannot walk. Nice man too. This is a journey and we are not promised an easy ride. I understand hard.
I couldn't agree more with this response. I realise that I am one of the lucky ones: my symptoms are not as severe as some I have seen on this forum and I was diagnosed when I was 68. My diagnosis explained not only the insane itch but lots of other things that were weird and sore. I was alarmed when I realised that this thing had a frightening name I had never heard before, but I also realised that my GP and dermatologist were there if I needed them. i started putting my condition into perspective. Before I retired, I was a support worker and saw raw courage from people who were either born with physical or mental illnesses or disabilities, or who had developed them in their lives and they just got on with it. It took me a while but I decided to try it, and I think it is the best solution. I will end with the story of my friend who was born 60 years ago and at 6 months, contracted German measles. She was then profoundly deaf and her life was extremely difficult. For the last 20 years, her eyesight has diminished, and she is now registered deaf/blind! I am as determined to get on with things as she is. I take each day as it comes and make the best of it, just like her. Please go to your GP when you feel overwhelmed and I wish you well for the future.
Hmmm... I don't have stripes, but the skin around the clitoris area has turned white... I'd say it's more patchy than stripes. My vulvar skin isn't sore.
I hope you can get rid of that soreness. :( UGH!
No... mine doesn't look like that. Hope they can figure it out when you get checked out.
Hi Dr N - I was recently diagnosed by biopsy results. I went in for a vulvoscopy or vulvaroscopy.. not sure what it's called exactly. While I was there - my doctor took four biopsies. I'm not going to lie - it wasn't comfortable. :( And - the recovery from those biopsies sucked. :( BUT - I'm glad I did it and found out what I have, so I can treat it. The sutures/soreness took exactly a month to go away. The first two weeks after the biopsies were the worst, but it got better. You can do it. :)
I have not tried the baking soda because I just started the Clobetasol cream treatment. I'm going to do that until I meet up with my doctor in a few months to see how it's going. The itch for me is pretty minimal - and I'm not in pain (thankfully.) So right now - I'm praying this Clobetasol works and gets this under control and it doesn't get worst.
I'm 47 years old... and with everything I read - this is usually something that post-menopausal women get. Well I'm not post menopausal. So I'm frustrated. But - I'm very thankful I didn't get this in my younger years. And I keep reminding myself it could be soooo much worse. It's been mentally and emotionally challenging, but I'm working on it. You said you're 63 going on 35... and i can totally relate to that. I don't feel 47 (and I don't act it. LOL!) :)
Hang in there....
My vulvar skin is sore not as sore as before diagnosis as the clob and Yes moisturiser has helped but also have ulceration at the fourchette area which looks like massive pappillae but got told its L S. They dont go even with clob on it. Stupid advice like dont sit down the drs give is silly. I got told by a very overweight gynao to stop cycling. I cycle as heart disease is in the family and keep fit that way, I chuckled inside as she had no idea you can buy cut away ladies cycle seats and she commented sat there when she should be providing an example.
Sorry I forgot I get terrible burning just like a match inside. I read somewhere on here it is the L S being active.