Hi can anyone help me please and tell me if it is OK to put Clob on lession that is red and a bit open looking (in perinium area). I have small white bits around this red sore piece about 3mm long and I am not sure if I should put Clob there or not? Or just around it? Appreciate any advice as I am new to all of this. Thanks😔
Yes you can put the club on that year. I get tears in the same area and my doctors tell me ytoo apply.
Yes, that's exactly what I get. It happens when that fragile white LS surface tightens up. I sometimes do two days in a row of ointment when there's a new tear. Then I go back to twice a week.
Hi Jess, Yes treat with the clob but be sure to keep the area moisturised between treatments. It is when the skin becomes dry that it tears and cracks for me so I always use Epaderm moisturiser and cleanser at every loo visit. Let the Clobetasol work for at least 30 mins to an hour before moisturising. Good luck calming things down.
Thank you Chrissy I will apply then. I was just a bit nervous. DRs don't seem to be able to tell you what to do and all give different information it's really left me with little faith in medical doctors at the moment. I have been told LS because of absorption of Labia Minor - yet biopsy was negative (had been using steroid for 6 weeks though at time of biopsy). I don't have typical itching and only a couple of white bits - not sure if I would even call them patches. My white bits ar shiny looking.
That is classic Jess. The lichen sclerosus leaves the skin shiny and white. It can be also red and inflamed but when calm goes white and usually shiny. When treated with Clob the white areas disappear. This is the scar tissue caused by the Ls being thinned by the Clob which is what you need to achieve. Just remember to reduce the treatment once you have things calmed down.
Hi Chrissy sorry but I am a bit confused.
Are you saying that if the areas that are white an shiny this is a calmed down stage - therefore should I be still putting Clob on that area until the white disappears? I don't use the Clob very often at all now as my Dermo told me I was getting Epidermis?? So got a bit scared to use too much. It's so confusing..... Also what are typical symptoms of a "flare up"
Hi Jess not too sure what is meant by Epidermis. The definition of that is 'the external layer of our skin' so I wonder what your Dermo meant. Active Lichen Sclerosus causes the white areas in some, in others red and sore patches, in some lesions. All these require treatment of some kind and keeping an eye on. Sorry for the confusion. You may benefit from Listening to Dr. Goldstein's web in air talk the link to which is pinned in the beginning of this forums List of discussions titles New to LS start here. it helped to stop me worrying about the use of Clob. There are no typical symptoms, we are all different, you will find out yours.
Hi Chrissy thank you for the reply it is just so hard getting your head around all the different approaches. Appreciate the help. Jess
You are welcome. x
Generally, it's not advisable to use Clobetasol on open wounds or broken skin. I would ask your doctor how to treat the wound safely.