Hello everyone my name is Vikki and I'm 44 years old and was diagnosed with Fibro neatly three years ago now. I also have chronic back issues and have had two surgeries on it.
im so worried because the twitching and jerking is getting much worse as is my general clumsiness. I feel like a small child sometimes with the stupid stuff I do. Should I talk to my GP or is it a case of put up and shut up. I'm so fed up guys........
Hi Vikki, is it like restless leg syndrom?
Hello, victoria: I'm 67 yrs. old, and I have Fibro, too. I was diagnosed three years ago, after taking a terrible fall onto concrete. I cannot believe how many symptoms I have from Fibro.....I hurt all the time, plus I've had a terrible spinal problem most all my life. The only thing that makes my pain go away for more than a whole day is Lyrica. I can't take one every day, due to some of the side effects...I go from feeling 67 to 27 in a matter of 30 minutes...It takes the pain away, and somehow that terrible exhaustion turns to energy. You might ask your doctor if Lyrica is right for you...My utter tiredness and inability to concentrate are two of my worst symptoms, not to mention the never ending pain....I hope this helps...keep in touch....xxx
There are soooo many varued symptoms to this Fibro, we don't get them all...but every new I gave fever git I get it checked with the doctor..always...sounds like it might be a medication reaction or something too..I've had Fibro for over 30 years now..I haven't heard of that symtom..but that may mean absolutely nothing at all..please try not stress it's horrid for Fibro sufferers..stress really makes you worse...I would put my mind at ease and get it checked out. be blessed victoria. Have a lovely day..:-( xxxx
Hi Victoria; from the way that you speak, I'm feeling that you have had this before, but not as bad? Do you take any meds for your Fibro, and if so how much and of what? I have, too, been there, but it comes and goes; and yes, sometimes are worse than other times (have broken so many things)......as you feel that it is getting worse, then perhaps a talk with your GP/primary carer, may help............perhaps changing one of your meds, increase in one, or even add another............I really feel that my valium stops this twitchiing, but also know that many doctors don't like to prescribe it, but if you talk re this, there maybe something along the same lines that may decrease the twitches, and then not take if they disappear for a while???............am thinking of you, as it's not nice and making us feel stupid/clumsy as you say.............
Bron
To the moderator;
WHY ON EARTH HAVE YOU MODERATED MY BLOG TO VICTORIA21810. THERE IS NOTHING IN IT THAT WARRANTS IT TO BE MODERATED????? Just don't understand??? :-(
Hi Christine,
It is because there is an issue where some innocent posts get caught up in the moderation process. The problem is if a space is not left between sentences the software to "catch" links thinks the text is a link. In your post it was out.be - the .be is an internet domain so it is treated as a link as shown here. We are aware of this problem and are going to improve the software. I edited the space into your post and approved it so it is now on the discussion.
Regards,
Alan
I am starting to struggle at work in a different way .i work as a medical secretary and the stress is really getting to me can't remember things and making silly mistakes.i am tired all the time and pain seems to be getting worse.i have been diagnosed with arthritis in my hands now but think I could have that elsewhere. Sorry just having a moan 😀
Hi Rachel. No not restless leg. It my whole body my arms ,legs, feet, fingers especially and my stomach. X
Hi Carole. I'm on morphine patches for the back pain and also 300mg of lyrica twice a day every day. I also have fluoxetine for depression,zone very pungent gel rub for my ankles and top up with zapain. All this just about keeps me moving. Xxxx
Hi Bronwyn, see shove comment for my list of meds. I hate taking anything. Have seen GP today and she's going to do some more blood tests. So... Watch this space xxxx.
By the way thanks guys for making me feel welcome by answering my blog xxx made my day xxxx
Ingrid I suffered exactly the same issues as you earn I still worked but I the end was medically retired xxx I miss my job so much and my work colleagues. My kids are all grown up bar my youngest but he's 17 and very independent. I feel like Ido t have a place in the world right now 😥😞
Thank your for this reply, I really appreciate this blog, I must be careful to check my posts now for these things.,:-) xx be blessed..have a lovely day...
Morning Victoria; yes I agree with "taking meds"...it gets to the staage that you wonder how many more???......I would be very glad if they actually came up with something that covers ALL symptoms and then just take the one....maybe the younger sufferers may be lucky enough to still be able to be here to get to trial "The" drug..................an xx to you too.......Bron
Does anyone else suffer from complete exhaustion and lack of interest in just about everything with Fibro...I hate this, and I'm coping with it as well as I can...I can just raise my arm and the pain is terrible....I think out of all of it, exhaustion is the worst...I will have to take my Lyrica asap....some of the side effects of that are weight gain, swelling, kidney problems, etc...You just can't seem to win with Fibro....
Yes to that too, Victoria; I think that is what many of us feel.....I really miss my work too, and for the same reasons........it is just not the extra income that is really the issue, it is the "outside contact"....the work colleagues and also the feeling of "being uselful to society".......I always wanted to work untill 55, and then even part-time........but when this is taken from us, this is where the depressed feelings arise.............what are we supposed to do? my husband/kids/others say "do some voluntary work"....but that's not the point....if we were physically able, we would still be at our Beloved jobs/careers, in the work we loved/knew/enjoyed.............that's my input for today.............Bron
I have and almost all Fibro sufferers get Chronic Fatigue Syndrome too..
I just dropped of to sleep even whilst having a bible study once, this was before I was properly diagnosed with Fibro..it's just sooo exhaustive at times..at first the specialist though it as all CFS until he tested me with the points later on...not so bad now..30yrs down the track..but I guess you learn what will bring it on...be blessed carole...have a lovely day..:-) xxxx
Yes to what Christine says Carol; ALL of us suffer from the CFS as well as the Fibro......some even feel that the CFS comes first, and then the Fibro follows on, but to me I Think it was the other way around.....I didn't feel the Sheer Exhaustion while I was still working (and existing on 5 hours sleep a day, between raising young children and working shift work); but the CFS came on after I had my hysterectomy and what appeared Like Glandular Fever, following this.....I Just did not seem to get over the surgery.....always just wanted to Nap, and then docs became concerned as I was worse than when they discharged me from the stay in hospital following surgery......did many tests (including a Complete Body Scan to make sure that they hadn't missed something), but nothing showed up....so this then became something else to deal with...the Chronic Exhaustion, but am going to reiterate that since starting my Thyroxin, I can last a Lot longer now, than this time 6 months ago.....hence my suggestions that we that suffer from CFS should all trial Thyroxin for a few months (even a low dose), and see if we improve at all regarding the fatigue????? eg, today I have gone ALL day, including an hour's drive each way to visit hubby in hospital, and not tired, but the Fibro pain is there (my TMJ is playing up from doing too much talking, and arms are sore, even though I did not do the driving)........after awhile, as others say, we Learn to pace ourselves and we know what we can and can't do, and when to and not to................
love these faces as they really tell you guys/gals how/what I mean...........Bron
Sorry Carole I haven't been able to access for a little while but all sorted again now.... Fibro fog makes me forget all my passwords lol. Unfortunately I do take lyrica and it does help with pain but I don't feel 40 years younger I'm afraid. It makes me sleepy in fact. I haven't found anything that gives me any amount of energy not even my vitamin tablets. It all gets very frustrating . Hope all is well with you. Xxxxx