compare medication.

Digestive health
1

i have been "living" with chronic calcific pancreatitis for 2 &1/2 years. It would be interesting to compare our experiences with medication regimes. It appears from this site that sufferers from USA are more informed about research,treatment meds etc than Brits. I have tried various pain killers and had various degrees of sucess. My main pain killer is MST of which i take 40mg twice daily along with coedine phosphate,pregablin 75mg twice daily,paracetamol and oramorph prn. Does anyone have any other ideas of what could help? I have my next chronic pain management appointment in a couple of weeks. They are going to try treatment by a psychologist too!!! As if i dont have enough appointments with GP,Diabetic Team,Consultant Gastro Surgeon,monthly blood tests etc etc etc Thanks in advance.

2

Hey,

I usually take Ketorolac DT orally. In case it doesn't work, Diclofenac Injection. But that is only on SOS basis.

May I ask why you why you are taking these meds daily. Ketorolac DT works within minutes and I got used to them causing major side effect of Duodenum Ulcer + Relapses. I would recommend whatever painkiller you take, please try avoid them as much as possible.

Regards,

3

the reason i take them daily is because the MST is a 12hour slow release med. Without them i would be in even more pain daily than i already am. Not only do i have CP ialso have liver abcesses,gall bladder problems and portal vein thrombosis. I can not undergo surgery because of the thrombosis. I also have peptic ulcer, insulin controlled diabetes and depression(not surprisingly).Are you in uk?

4

I was diagnosed back in July 2012 with CP and during that time I was on a various opiates (Morphine, Dilaudid, Oxycontin), which on the long haul can be more dangerous than the CP.  In December 2013, I had a spinal cord stimulator (SCS) implanted in my body.  The SCS essentially tells my brain to feel a tingling sensation as opposed to pain.  It has various programs and settings to cover various areas of the body.  The SCS has enabled me to no longer be on opitaes.  I am on Tramadol and Haldol for the breathrough pain.  The SCS could be an option for you.  I would recommend seeing a pain specialist.  My prayers to you as you navigate this terrible disease. 

5

Hi Corale,

My names Umut.

Have tried ever supplements like that grape seed extract, curcumin extract and C Vitamins ?

Maybe these staffs decrease the pain.

Umut