Bonjour Rachel
J'ai eu cela pour la première fois il y a environ 7 ans et vous avez décrit tout ce que j'ai eu. Il m'a fallu tout ce temps pour aller mieux. Pour moi, ce fut un long et lent processus de guérison. Je subis encore de petits revers, mais maintenant je les ignore. Comme mercredi dernier, j'ai enlevé mon pull par-dessus ma tête et j'ai eu un vertige. Je pensais que cela allait durer, mais ce n'a pas été le cas.
La pire partie pour moi était l'anxiété qui accompagne cela et depuis un certain temps maintenant, je prends de la Fluoxétine et du Propononel et ces médicaments ont atténué cela ainsi que la confusion mentale que nous avons tous.
Hi Darren I'm glad to hear you've finally gotten better from this dizziness even if it has taken a long time. I've had it for 2 years but honestly can't remember what it's like to not be dizzy anymore. The neurologist has prescribed me propanolol but I'm scared to take it because it has dizziness as a side effect and I don't want to make matters worse. Just wondering if you found it made you more dizzy at first and also does it help? I have pressure in my head most days and feels like my head is full and cant concentrate its quite annoying. Also do you know what caused your dizziness in the first place?
Je ne suis pas vraiment sûr de ce qui l'a causé en premier lieu. On m'a dit que c'était les effets résiduels d'un virus.
C'est ici, sur ces forums, que j'ai lu des informations sur le Proponol et comment il a aidé avec les migraines silencieuses, alors j'ai dit à mon médecin généraliste que je voulais les essayer. Après un certain temps, ma sensation de tête pleine/brouillard a disparu et ils ne m'ont plus donné le vertige. Je dirais qu'ils ont effectivement réduit mon vertige.
Salut Rachel
tu as dit que tu peux passer des mois sans migraine. Le neurologue que j'ai vu dit qu'il n'est pas nécessaire d'avoir un mal de tête migraineux pour avoir une MAV. Beaucoup de personnes en ont eu dans le passé, ce qui peut les prédisposer à la développer. Il dit que si tu étais susceptible au mal des transports (voitures/cars/bateaux), cela peut aussi signifier que tu es vulnérable à la développer à tout moment.
Personnellement, je n'ai jamais eu de migraine ou de maux de tête, mais j'ai toujours été sujette au mal des transports.
La MAV n'a pas besoin d'être comme une migraine et d'aller et venir. Elle peut être là en permanence, du moins c'est ce qu'il dit. Le truc est de calmer le tronc cérébral irrité en appliquant un «plâtre» sous forme de médicament et en excluant les aliments déclencheurs pendant que le cerveau guérit.
J'espère que cela fonctionnera. Seul le temps nous le dira.
Hi Jess, what are brain zaps, When I first had spinning VN I lay face down in hosp bed and there were noises in my brain like 'bzeep' bzeep' like fuses were blowing every few minutes. I have never heard of that with anyone else?? Thx
Salut Arria
Un "brain Zap" pour moi, c'est comme ça. Je peux être assise à ne rien faire ou simplement vaquer à mes occupations, quand soudain j'ai cette sensation de whoosh qui envahit ma tête et me cloue sur place. Si je marche, je dois m'accrocher à quelque chose. Cela serre mon cerveau et je dois attendre qu'il se relâche. Ensuite, cela descend en moi comme une décharge électrique, souvent je le ressens comme une vibration ou une picotement dans mes pieds en partant. Je suis laissée avec une énorme nausée (parfois des vomissements) et je transpire abondamment. Le neurologue dit que c'est une MAV. Il dit que ma tige cérébrale est irritée et que mon cerveau n'arrive pas à faire face. En prenant ces médicaments et en éliminant les déclencheurs possibles en suivant le régime qu'il préconise, cela agira comme un pansement sur une plaie. Il m'assure que cela VA s'améliorer. Je dois m'en remettre à cela et persévérer même si ces médicaments me rendent si absente. C'est le début, alors il faut attendre et voir. Bonne chance avec ton problème Arria
Many thx Jessica, I am saving all your info, at least you have a Dr that has info and explains. Good Luck. Vomiting sweating sounds like my first week.
Wow i did not know that if one is susceptible to motion sickness, he/she can get MAV at any time. Thanks for the info.
Hi. I've just found your discussion on here. It's relieving to hear from someone with the exact symptoms as me!!! Can I ask if you've found anything to help since this post? I have tried everything possible over the past 3 and half years with no success xxx
I am working on posture right now. I have bad forward head posture and I read that can cause a lot of problems including some of our issues. Does anybody else have forward head posture?
Hi Shelley, the only things that control my dizziness is taking vitamin and herbal supplements that are migraine preventatives. I don't take any prescription meds anymore as I found they only caused me more problems. If you don't mind taking a bunch of tablets each day then I'd definitely give it a go and I can let you know which ones I take. Also I avoid any migraine triggers like wine, mature cheese, preservatives in food etc. which seems to help. Over sleeping is also a big trigger for me and makes me feel pretty unwell all day if i sleep more than about 8 hours. I rarely get the head pressure and migraines anymore compared to having it constantly before and this has made a big difference to the dizziness xx
Thank you Rachel. Can I ask which vitamins you take? I have on vit d pescribed by doctor and also a high dose of riboflavin to which nothing has helped. I have tried every medication possible and cut out any preservatives. This has been going on for 4 years constantly always have a strange heavy, fuzzy head but much worse at work and shopping etc. It is the pits and so debilitating and sympathise with anyone suffering from this. Thank you for replying and lovely to hear from u xxxx
Hi Rachel,
I've been reading through yours and others comments regarding dizziness after looking up a forum today. I myself have been suffering with a constant dizziness conditions for around 8 months now and I've had enough of it!
It all started from what I can gather shortly after I got a mouth infection last May. I started to notice a strange 'fuzzy head's sort of feeling that made me unsteady on my feet. I obviously could not figure out what it was but if stayed with me and seen no end of doctors and had appointments at the hospital. I had a ECG done a MRI, blood tests everything... All come back ok. It was only in December that I was finally diagnosed with something - BVVP. Is it a possibility you could have this?
After being diagnosed with BVVP I was more relieved that someone had put my mind at rest a d finally told me what I have! I was then hopeful that it could be treated, especially after reading there were certain manoeuvres they can do to fix it.
After having 2 further appointments this month with the balance clinic they confirmed I 'haven't' got BVVP so I am back to being undiagnosed again! So it's not been sorted and all they have given me is some simple exercises daily that could take 'weeks and weeks' to sort, if at all. But have also been told if I don't sort my anxiety aswell then it won't go. They gave me phone numbers to get help with it but there is a waiting time of atleast 4 weeks! So this is not going to help me get better which naturally isn't good for my anxiety!
I really don't know how you and others have put up with similar conditions for YEARS because I'm struggling to cope with it anymore.
Hiya, really sorry to hear you've been having such a bad time with the dizziness. I've had it for a couple of years so I totally understand the stress it is causing you. First things first, try not to stress about it, which is easier said than done but believe me the more anxious you let yourself get the more it will affect the dizziness. The less you fixate on it, the less it will feel like such a big problem and in turn will reduce your stress. Do everything that you would normally do and if you are having a particularly bad day just give your body and mind a rest as much as you can. I have accepted my dizziness and no longer see doctors or specialists and it does get better over time. The worst thing you can do is obsess over it which is what I initially did and caused me a huge amount of stress. Believe me you will find what works for you and be able to get on with your life as normal it just takes time
Don't worry you'll find something that works. I also take riboflavin but only 100mg per day. I'll give you a list of what I take..
B6-100mg
Riboflavin-100mg
Non flush Niacin-100mg
Time release vitamin C- 500mg
Lemon bioflavonoids-500mg (each tablet contains Hesperidin and Rutin) I buy it from eBay as I can't find it in the shops
L-lysine- 1000mg
Feverfew-100mg
Kudzu root-500mg
Valerian root extract- 400mg
Every 3 days ontop of all that I take..
Beta carotene-15mg
Magnesium citrate- 100mg
Omega oils 3,6 and 9 as one capsule
Complete B complex
Sorry I know it's a lot! It seems like so much when I write it out but I'm so used to my routine now. Obviously everyone is different so please do some research on the things I've mentioned in the list before you try them just in case it isn't suitable for you. I hope this has been helpful for you if you have any more questions then feel free to ask. Just so you know it took about 2.5 months to notice the difference once starting this routine and I've done a lot of trial and error on different things and cut stuff out that wasn't working but all of these on the list I feel are useful and make a difference xxx
Hey, thank you for your reply. I know what you mean about the stress making it worse, I have figured it does. I've started meditation and am taking a herbal remedy called St John's Wort in an attempt to calm me and bring the anxiety down but it's not easy. I've been out of work because of this so it seems I have alot of time to think which obviously isn't helping. I try and keep myself busy but it just brings it on so prefer to be sitting or lying down to get some restbite from it.
Fair play to you for 'accepting' that you have your condition, that's very brave. Good to hear things do get better, gives me abit of hope although I'm sure your condition on here are all very different and people have different ways of coping with it. I am desperate for things to improve or get better but I seem a long way off at the moment.
I've been given exercises to do to re-train the brain (don't know if that's something you were given?) Got to hope it helps
Any success story rachel08024? pls let me know i am facing same issue.
Bonjour Rachel
J'ai 49 ans, j'ai eu de graves vertiges/sensation d'ivresse depuis 6 mois, depuis que j'ai commencé à prendre de la Sertraline. Je ne sais pas ce qui s'est passé, mais j'ai eu des picotements et des symptômes de pression dans la tête qui ont déclenché des crises de panique multiples fois par jour. On m'a prescrit de la Sertraline et bien que je n'aie plus d'épisodes de panique, les vertiges sont maintenant permanents, la fatigue est épouvantable, je suis sensible à la lumière (comme des images clignotantes qui peuvent causer des problèmes visuels). C'est comme si j'étais en permanence en état de gueule de bois - pire quand je suis fatiguée et que je fais trop d'exercice.
J'ai consulté un ORL, un ophtalmologiste et un neurologue et on m'a dit que j'avais des migraines silencieuses - quelque chose que je n'avais jamais eu auparavant. On m'a dit que c'était probablement lié à la ménopause.
On vient de me prescrire du Topiramate, alors je vais probablement savoir comment je vais réagir. Cela m'a tellement handicapée que j'ai reçu un avertissement écrit au travail pour mon absence maladie - et j'ai travaillé sans absence majeure pendant 31 ans. J'ai subi deux deuils (mes deux parents) en 10 mois et on m'a dit au début que tout était lié à l'anxiété - un médecin généraliste sans espoir m'a dit que j'étais névrosée. 31 ans de travail acharné et je suis névrosée ! Il m'a aussi surdosée en Serc et Propranolol ! Je me sens très déçue par la profession médicale.
Je n'ai jamais fumé ni pris de drogues récréatives, je bois moins d'une fois par mois.
Avez-vous eu une résolution ou un diagnostic ?
Comment allez-vous maintenant ?
I've had this exact thing for 12 years with no joy.
Visual disturbances (stars), dizziness, migraines (after 4 years), worsening eye sight, tinnitus in left ear (eventually spread to right ear after 12 years, minor depression, anxiety attacks sleep disturbance.
Not sure my post helps at all but I've found nothing really helps other than a positive mindset. I've come to terms it's here to stay. Wouldn't wish it on my worst enemy, it really is life changing.
If you find anything, let me know.
I had my neck x rayed and my C2 is out of place. I look up issues from this and many of our problems shows up. Maybe we need to look at our C1 abd C2 in the neck