I'm a 58 year old woman in the U.S. In 2007 I learned I had bladder cancer & within a week had the bladder removed & a complete hysterectomy. So I didn't have a lot of time to create horrible scenarios in my mind. Now, after several years of CKD, one of my kidneys is shrunken & no longer working. This may have caused my months of kidney infections, or my months of infections may have ruined the kidney. The other kidney has 80% function for a ling time. My urologist started me on long term antibiotics to prevent more infections last week. I doubt this will work as I have been on antibiotics for months. The next step will be a stent & last resort removal of the atrophied kidney. Question: has anyone had an ileostomy (urine bag outside the stomach) & later a kidney removed? My Dr says I am a complicated case & I will have to go to a big city for the surgery. With the cancer surgery I lost 7 units of blood. It appears I have time to worry myself about this. If anyone has had a similar situation I would appreciate your views so much!
omg you have been through a lot xxx I cant give you advice but I wish you well, My kidneys have shrunk too, the one has completely stopped and the other is functioning at 9%, I am on the transplant list and my brother is being tested to be a donor.
Thank you for your well wishes. Let us know about your brother's results. You are lucky to have a brother willing to help you out! I'm hoping for good results for you too!