I agree with you, MrsO. Anti-inflammatory foods are important. I learned to watch this much more than ever --- avoiding sugar and wheat especially. I think it has helped.
Yes, some physicians and PT's need to be educated about PMR --- amazing often how little they know about it.
I keep telling everyone that I "want my life back" I manage to do
most of the things I've always done but just a lot slower.
As for exercise: I bought one of those elliptical portable floor
thingys and just sit in chair and sort of pedal. I can't walk far
so this seems like at least one option for me. I was getting afraid
of losing the use of my legs from lack of moving.....
one of the side effects of pred was a feeling of lost objectivity, a pred high, and a feeling that "logic" and "rational" deserted me. Uncomfortable for an engineering mind, though the pred highs strangely pleasant (though not addictive).
But a little bit of care in polarising mental activity too much. Engineering can be creative. And since I'm predominantly rational it suits me that the dichotomy of brain function referred to as right or left brain is a bit of an old theory. I'm much more inclined to brain plasticity - if I do a lot of something I get better at it.
Which gives me a clue to a way through the brain fog (pred brain). Keep practicing and it seems to be clearing. What was once intuitive, that became mechanical, is becoming intuitive again.
I suspect also that with PMR (and other chronic conditions) we become more sensitive to new symptoms. Almost too bound up lest we miss something important (like advance to GCA). Almost too emotional and analytical at the same time. Its hard to be rational when the body is changing. Hard to feel in control. Easy to be anxious.
Fortunately I thought what may have been an unusual reaction to an insect bite was worth a doctor's visit and resulted in early capture of shingles.
More recently I noticed a faint blue tinge on my thighs. Most odd. Very unusual. Only just visible. Not imagining it, my wife could confirm. Imagination running riot. Scary stuff. What's happening to me? Am I getting enough blood to my legs? Will they fall off? Why only there? Why has noone else mentioned this symptom? Should I post a "what is this?" to this forum.
Not to worry. I'm not going crazy. It washed off in the shower. I'd bought new shorts and the dye came out a bit in hot, humid, sweaty weather. 
Usual story, once I understood it was easy. Just a couple of days of wondering.
There's a bit more to managing my life around PMR and the sense of control than the mechanics of doing things differently. Its very much an emotional journey that can be eased by managing the things I do differently. But that's the start.
Yes, I know, emotional engineer is a bit of an oxymoron and can create cognitive dissonance in some!
Hi Judy,
Don't you just love this sight. You can vent all you want and have so much support.
i think all of us have been where you are at some point but it does get better with acceptance. You really have little choice so it's practice at letting it go.
there are days when I get so angry with this damn PMR but I have a friend that is very ill and won't be getting better and thinking of her brings me back pretty quickly to thankful this is all I have.
I hope you feel better soon. Maybe beat your pillow up for a bit😡
hugs, Diana🌸
Judy, I paint mainly, but want to hone my drawing skills. The book was recommended by a fellow artist. Fascinating book! And you, - do you draw?
Faye, the pedalling machine whilst sitting is a great idea. I know two people who resorted to such machines to help them when they found walking too difficult or when the weather was inclement. Both have now recovered, by the way!
Morning Susanne, 6:15 here... up and walked the dogs.... not too bad this morning.... sitting with coffee... not ready to eat yet.
To get to your question.. yes I did and do try to draw, I also tried to teach myself to knit but that is and does drive me crazy. I do have 3 crochet projects going but it's slow going so far.
Hope you have a good day today.
judy
Morning Diana,
Thanks for your thoughts. I hear you.. I know some others who are suffering far more than I.
My friends don't seem to understand and just want me to get moving!! Easy to say but doing is another thing. I move for my dogs!! I was just thinking how isolating you can become with this crazy "stuff". I used to volunteer for FISH ( drive people who can't drive to their doctors appts.) but I had to give that up... I'm not dependable anymore. I miss it. Some really sweet people I met..
Have a peaceful day. judy
I agree with "beast" for PMR. However, most of us live in hope of one day training it.
Love the blue shorts! :-)
Constance, let's not just train it but send off to the wilds!!! Crazy huh!
A similar thing happened to me. I found these yellow patches on my pillow as if something had been flowing out of my ears! I found all sorts of nasty things it could be on Google and then discovered it was some new night cream I had started using with oranges in it! What a relief.
Hi Julian,
Your story about your shorts started my day with a smile😊. Thank you for sharing.
On a more serious note, I sometimes question myself on wether it is the PMR or my age or ?? that makes it seem like I am losing my mind. I worry that I'm using the PMR as an excuse. I also get lazy sometimes and when I can't find the word I'm looking for I just write it off to PMR, get frustrated and give up. Very bad me thinks.
I like what you said about practice and how you are becoming more intuitive again. Will try to work on that.
Have a happy day!
Hugs,
Diana🌸
ta,
undoubtedly some of it is age for me. And very difficult to separate the causes. Its very difficult looking inside one's own mind.
I've always enjoyed using my mind. Even before PMR I'd begun to notice small effects of aging. I'm 65, I started losing energy around 50, noticed mental changes from around 55. Later came realising I'd got to the end of the day and done everything else but what I started doing was a bit of a shock. I've never had to write lists, now I do. Forgetting where I put the spanner was unusual. Things I used to just do easily I now dread and put off. I was a bit of a change agent. Now I'm less flexible. But at least now I can watch a movie or read a book more than once ....
It was somewhat startling to observe daughters understand and apply a new concept in a few days where I took several years as I had to ditch an old, well entrenched, paradigm. Around 48.
I somehow know I'm not going to age well. Probably harder than PMR to accept. At least with PMR there's hope it will go away.
The PMR / Pred is on top of aging. I think. The floaty, lost reference point, feeling irrational, fogginess, was real and definitely pred. For me the highs were exagerated and unusual. Struggling to coherently piece together bits of a complex problem is unusual. When programming, not being able to remember what I called something at the beginning of the programme, 10 minutes ago, is very unsettling. More frequent rapid mood swings. These effects arrived with the pred and have improved (not yet gone away) as I reduce the dose and consciously exercise. It was a bit scary, and why I found my way to this forum.
In the previous post it took a good 10 minutes to remember oxymoron. The "what's the word for....?" conversations can be hilarious as well as increasingly frustrating. It started with "what's the word to describe military intelligence and similar contradictions?". ...... "you mean MI5?" .... "Nooooooo, like tautology but the other one" .............. "oh, you mean MI6?" ....... durrrrr.
Obviously went to a different school to me! You'd think that after 35 years Ali would be able to read my mind ......why can't she remember?
We always had those sorts of conversations. Just that now they are more frequent, take longer, are more frustrating, and have less success. There always were the occasions it took a couple of days to remember something. Pred has made it a bit worse. I won't know how much until off the pred.
oh .... and the lost concentration is hopefully pred. Very noticeable.
Hi Judy,
Maybe be you could just go and visit some of those people when you're up to it. I'm sure it would make their day. I think most of us feel alone sometimes and there's nothing like someone showing they care to lift our spirits.
hugs,
Diana🌸
Pred does do that to many people. PMR does it too. Combine the two...
It does recover - or at least it has for me. My memory is back to where it was - like an elephant! I used to have to re-read pages of a book several times to get it right. I don't tend to read chick-lit so it is heavy stuff we're talking about a lot of the time. Now it sinks in much faster and recall is definitely better.
Either that or I've totally lost it 
Julian, your posts are fascinating and have kept me thinking for the last couple of days. I wanted to reply properly, but right now, my mind is not up to it! Sad. Trying to have a good exchange is wonderful, and you are definitely still up to that, but my mind is a bit of a muddle of thoughts I want to express, but somehow won't come across on "paper"/internet at the moment! :-)