My cr cl was 180 egfr 47 then 193 and 31 then 175 35
I am concerned that my egfr only rose to 35 because for 1 month b4 the last result I red protein signed and no added salt. Stopped all excercise and got rid of a chest infection and stopped antibiotics. I was expecting to see egfr to be back in the 40s because cr cl 175 is the lowest for 3 years. Help me to understand thank you
That does seem odd on your data. When do you see your doctor again? Do you have s patient portal where you can ask an appointment follow-up question? If so, you might consider sending a message asking for some clarification on your data. Your doctor's nurse may be able to visit with you about your data results as well.
Marj
Thanks for your advise according to egfr calculators my egfr should be 42. How bad is cr cl 175 I'm 56 250 lbs ave muscle
Hi Terry
All depends on whether you are male or female, black or white and also fat or thin, also depends on which method of egfr testing they use, some labs use different ones which will give a small difference in the result. Also the test result will be different if you ate meat within 12hrs before the test.
Looks like your egfr is hovering around ckd3b
Good luck
Yes, that's what I was thinking as I looked at your data. So, it's definitely worth contacting your doctor's office to get an explanation.
I was stable with eGFR of close to 48 for several years. I had to follow my doctor's treatment plan--low sodium, low potassium, take potassium binder and received anemia treatment--but my data was very stable.
I had pretty severe anemia at that point but that was my primary issue; I felt good otherwise. I became quite ill with a gall bladder attack. They removed my gall bladder. I recovered from the surgery without much difficulty. But I had extremely low blood pressure for 4-6 weeks before the surgery due to severe dehydration. That caused a significant drop in my renal function.
My nephrologist was able to achieve a partial rebound in the first few months following that issue. He got my renal function stabilized with an eGFR of 33.
My kidneys remained very stable at this level for another 3.5 years. Last year in December (2016) I became very sick. It progressed from flu to walking pneumonia. It took close to 2 months for me to recover. Again, my blood pressure plummeted. (I've had lots of trouble with it running low and suddenly plummeting since the gall bladder surgery--although these issues aren't related.) At that point my renal function fell into Stage V renal failure. My creatinine was 4.6 and my eGFR was 8.
My nephrologist referred me to a medical center for an outside consult--he has consistently said I should have much more renal function than I've got. The specialist said my blood pressure was too low and causing at least some of the decrease in my renal function. He pulled me off the BP medication I had been prescribed. (My nephrologist had been trying to at least stabilize my BP, I.e., improve the sudden plummeting problems.)
So since August of 2017 I have not taken any BP meds. My BP is higher and fairly stable. My renal function has improved some. My creatinine is now 3.2 and my eGFR is 15 so I'm back to either very low Stage IV or very high Stage V.
I'm not on dialysis yet. I plan to try PD dialysis. I still work full time (as a university professor). I feel fairly well. And I'm able to exercise daily (walk 2 mikes a day and 30 minute workout on my elliptical machine daily.)
So, your blood pressure may be a causal factor for your renal function or a result of your decrease in renal function. My BP issues didn't cause my CKD. But they are an indirect measure of how well my kidneys are managing, overall--from what my nephrologist says.
It's been, in many ways, a full time job to learn what I've needed to learn regarding dietary management and so forth. but your doctor and her or his staff will walk you through everything one step at s time.
I wish I hadn't worried so much in the beginning. It didn't help anything. And, as my case has progressed I have discovered that I am up to the challenge. I'm sure you will be too. This is not what any of us would want. But life does continue. And, with effective treatment, it is a life worth living--you should be able to do most, if not all, of the things you want to do.
Marj
Thank you so much my dear. I am in the UK. Your story is so inspirational and thank you for sharing it with me it is so helpful and I wish you the very best in the future may it be a long future.thank you so much Terry
You are welcome--and nothing but good thoughts and best wishes for you as well!
Marj
My mum had similar story to yours Marj. She was very well with no med problems until she was 58 yrs and caught a gastro bug this gave her AKI and needed haemodyalisis to stablise her.
From 58yrs, with acute kidney failure, to now 73yrs , it has taken 15yrs to get to stage 4/5 . Her egfr is now 15. She had to stop her meds as she is very slim and low BP and has started having prescribed protein drinks and puddings which she says has made her feel much better.
She is going back to nephrologist to arrange to have her stent formed in case she will need it in future.
At the moment she wants to wait as long as possible. Apart from the extreme tiredness which she hates , she is doing very well.
Her Aunt was the same, and I expect this is how my kidney pathway will pan out.
Terry: Im in UK too, if you dont mind me asking how old are you now?
All the best
Jane
Hi Jane I was in a major eta in 2014 that almost cost me my life. In next and itu 13weeks med ins coma and dialysis egfr 12. 20. Then 30 on discharge. Quickly up to 47/50/44 for last 2 1/2 yrs then last Aug 36 and Dec 31 then Jan 2018 35
Although cr cl has improved by 20 to 175 egfr only gone up 4
I am now 55 been a t1 Diabetic 50 yrs but not ever suffered any related renal issues to t1d
Sorry for typos I was in an road traffic accident and critical care
Ok your initial cause is AKI and you have slowly improved. You have diabetes which is a factor .
As long as you keep relatively healthy and your blood sugars stable you should be able to stabilise your kidney function. Even if it was to stay at this level in the 30's that would be good.
I suppose its the 'not knowing' that is stressful. Fingers crossed you will continue to improve.
Jane
Yes that's my wish as I have 2 princess' age 3 and 6 that's all the positive thinking I need! They are my nurses and comedians
Thanks Jane and future best wishes to you
Thanks for sharing some of your mother's experience with me, Jane. My doctor's haven't yet tried prescribed protein drinks with me but they have included specific protein dietary requirements which I am following.
I will be 65 this summer and so expect I will be on dialysis long before I turn 70. My nephrologist has suggested that I go through transplant eligibility testing this year. I see him for another appointment in about a week.
I do plan to go through the testing. I'm not sure I want to pursue a transplant but I do want to explore that treatment option. If nothing else, I've at least finally learned to take all of this one step at a time.🐶
I have become comfortable with the thought of dialysis. I am ready to give it a try. I am very thankful that there is a dialysis option, I.e., PD dialysis, that I can do independently in my home. It will allow me to maintain my independence. I'll be able to continue working. And, I actually kind of like the idea of doing this treatment as I sleep at night--multitasking, so to speak.
Anyway, I really appreciated hearing about your mother's experience. So, again, thank you for sharing it.
Marj
Thank you for your post. Very helpful and inspirational