I read the forum daily. So glad to have support and the knowledge of so many. We need now to write letters to someone to put more emphasis on this subject. Doctors give us comfort but don't seem to think it is serious enough. We're all listening. As a group it is time to make noise. God bless
I agree! I’ve started to tell friends and they are as clueless as I was. But women and men are going untreated all over the world because they are ashamed to discuss with their doctor
I am going to start a journal on my journey and I hope that I may be able to help others
Once I have got my head around this myself - still early days for me x
You are so right.
It has ruined my enjoyment olf life for the past 6 months.
Hi Diana- I certainly wish there was more education on this and Dr.’s knew the most up to date info and techniques available. As for a cure, I don’t know if that is possible considering this is an autoimmune disease brought on by stress or trauma to the area. As for my immune system, overall one would say I am a healthy person, but if I look back at 2 rounds of Mono and 2 rounds of pneumonia, bacterial vaginosis and Neblothian cysts, gallstones leading to its removal and 2 rounds of kidney stones, maybe I wasn’t as healthy as I thought? I work alot, have alot of stress in my life and always put others before me, is there a cream or pill that is going to stop that? I think not. Now I am forced to think of myself, lower my stress, monitor my diet and take care of me- this was a needed wake- up call....
Just my two cents...
hi ricey70, I think its super important and such a good idea to journal as you learn new things about what works for you and what don't on your attempt to overcome this, I too have taken this approach and started writing down, all the useful bits of info I can find, trials and errors. The hardest battles are the ones against yourself
Clarification- when I say “needed wake up call”- this us certainly not something I wanted, but now that I have it, it forces me to take better care of myself and be the healthiest me I can be. I say no to things that will add to my stress, I avoid things that will cause a tingle or flare ( hello wheat and chocolate) and I am more aware of myself everyday.
How do you start talking about it. Even my husband to this day never talks about it. Not sure I want to explain anymore, especially think about it doctors are not telling us anything. Seriously have they really explain anything to us what to expect. I agree start a journal any maybe we can find a middle ground.