Hi there, I saw your comment and decided to sign up just to reply to your comment. I have been operated 4 times for cholesteatoma and have been battling with this problem for a big portion of my life since the age of 7, including regular check ups and cleaning of the ear. I could practically write a book about it. When I was 7 I had my biggest operation which took several hours. Before the operation I had been battling with cholesteatoma for several months and no antibiotics could get rid of the infection due to the build up of skin in my middle ear, which eventually spread to my inner ear and destroyed 30 percent of my hearing. When the surgeon started the operation he thought it was only in the middle ear, which is why they had to extend the operation. The cholesteatoma was so severe that had I waited longer, it could have damaged my brain or other fatal complications! The point I am trying to make is, please be responsible and take your child to a doctor and let the professionals deal with it. The longer you wait, the worse it gets and can be very damaging as cholesteatoma erodes bones in the middle ear and eventually the inner ear. To this day I have a titanium implant in my middle ear due to the damage the cholesteama has caused. I had to get another operation because the implant had fallen loose. So please, for the sake of your child, go to a doctor!
Hi ,
thanks a lot for ur concern i m visiting the best doc in town but unfortuantely he did not give a hope for haering for 12 year old boy thats was the main issue thats why now i m booked for second opinion for my son plus he also suggested a re construction surgury after an year yes my son too had anti biotics for abt 4 months finally nothing worked and now i m looking for best option for my son a neuro otologist which i hope i could find anyways thx
I dont understand, you said that you just found out that your son has cholesteatoma? Is it still infected? Are you trying to treat the infection with homeopathic treatment? If so, I would leave it up to the ear specialist to treat. You can't treat a cholesteatoma with homepathic treatment, it's dangerous. When I was 7 the ear doctor kept giving antibiotics which didnt work. He thought it was just a normal ear infection that many children get. Finally we got the diagnosis and I was rushed for an operation. Good that you are getting a second opinion, because that is what we did and I was finally treated. It just sounds strange to me that they would diagnose your son with cholesteatoma and not do anything about it.
initialy for atleast 3 months he was misunderstood for ear infection n had undergone 3 to 4 courses for anti biotic nothing worked until it was diagonized for cholestoma my first doc was not hoping to save his hearing due to which i i have to look for second opinion which is due next week now i m focussed for neuro otologist if i could find soon the surgury date
Ah ok I understand. Unfortunately this does happen that they misunderstand for a normal ear infection. The exact same thing happened to me in 1989. I went for months and months with antibiotic treatment and it did not work ofcourse since it was cholesteatoma and it just got worse and worse the longer we waited. Good that you are persistant. I'm so sorry to hear that you are going through all this :-(
Hi,
can you tell me what the homeopathic treatment for the Cholesteatoma was, I would like to try before having surgery.
thank you,
kelly
Hello!
Like you I have lived with cholesteatoma for most of my life. I was diagnosed when I was ten years old, alot of damage had already been done. I missed quite a bit of schooling due to persistent ear infections then when a new G.P checked my records and pointed out I had only ever visited his surgery regarding ear infections. I was referred to an ENT specialist.
That was thirty seven years ago.
Now after three mastoid operations including a reconstruction. I go for check ups every six months. I have had ups and downs mostly due to a lack of understanding of the disease. As long as its kept clean and dry, I don't really have many problems. I became accustomed many years ago to my loss of earring. The last operation was in1995. This is the longest I have gone without an operation.
My son had his operation done by Mr. John Hamiltion at the Glouscerter Hospital in the uk. Mr Hamilton is highly specialised in treating cholesteatomas. He also works privately and has a website with more information