Deep worry

i had tkr Sept 26 2014.  Bend never better than 77 deg!  Told to go away and live my life!  Physio did not help much. I thoight something was sticking at day 5.  

Have worked at bend but just got on with the leg - went back to surgeon 3 weeks ago - he said knee is fine go back to phsio and try to improve.  

I had severe pain and less movement after 1 session.  Have today tried myofascial release.  Very nice lady who says something wrong with my knee and I should get second opinion.  

Aaaaah

Carol, I think you definitely need a second opinion. I too have had problems with the bend and straightening and contacted my surgeon at seven weeks post op. It took another 4 weeks but they agreed to me having physio which has made a huge difference. My physio told me I was still within the 'window' where I can make improvements through physio to avoid a manipulation, unfortunately I didn't ask what the upper limit within that window was. I am now at 14/15 weeks post op and am well on my way to normality. For a surgeon to tell you at 77° to go live your life obviously has no idea what quality of life not being able to walk properly would be. Please seek another opinion.

You poor thing.  I had my TKR in August 2014 and the bend has always been around 95 to 100 which I guess is ok. My surgeon told me the same as yours did - get on with it!!! They really have no idea on the amount of pain this op causes and don't seem to want to believe you when you say you think something is not quite right.  My other knee is now very painful and I know that need doing but until I am sure that the first one is ok, I will not go and have it done. I know it's a nuisance but get the second opinion - something is obviously not right.Has the myofascial release helped? 

second opinion has to be a good idea.  i know the surgeons tell you their work is 15 per cent, our input is 85%, but there are occasions when however much pain and work you are prepared to do, there are reasons why the knee won't bend.  If proper examination shows there is no good reason, then it would be down to you to keep pushing and shoving the darned knee . . but it rather sounds as if there is more in the picture.  I don't know at this late stage whether a MUA would do any good??  You need another opinion . . . .hope you can get one!

oh carol i so understand where your at  . ive been down that road and it has been the hardest of my life ,i was also told to get on with life on one of my knee tkr my bend was about the same and i had physio twice a week while my physio tried to push my leg even with the utmost push which was unbearable i could only get 80 deg and when i returned a few days later even with me working so hard i was again less than 70 deg so i know where your coming from i had met other surgeons they didnt want to know saying it could be worse if they tried to do it again .well to cut the story short i found a surgeon who after consultation agreed to a revision ive had that done last august and it has improved my bend is 95 deg and im getting physio and and he is confident ill reach 100 deg pain is so so much less i am now living a more normal life . my revision was carried out a year and a half after first tkr .go ahead and find a different surgeon to re do it you dont have to live with it im 57  .

carol that was ment at less than 80 deg not less than 70 deg sorry

Oh thank you so much for that

That sounds horrendous Carol. Definitely get a second opinion. Good luck and I hope you get sorted out sooner rather than later😉

i will , just needed someone to let me know I am nt crazy

Carol you really need a second opinion....they wouldn't even let me leave hospital unless I managed 90 degree bend.

Then there's the old story about the guy who is in 1st day in heaven and sees a guy with stethoscope a round his neck and a set of golf clubs over his shoulder. He asks another guy if that's a doctor to which he received the reply, no thats God, he just likes to pretend he's a doctor.........and so it goes. Our nephew who is an infectious disease doc said surgery was the worst rotation he had in medical school. He was never cussed at and called dumb sh*t so often in his life. That particular medical discipline has a reputation for being difficult to deal with. The higher up the food chain the more difficult with Neuro surgeons on the top rung. Just keep fighting em

carol i should have told you when my revision tkr was over my surgeon told me that the problem with the last knee replacement was that its ailghment was slightly off and that is why it was so painfull and why i couldnt get the bend  i had xrays  it didnt show up some tkr fail and thats why you shouldnt give up you deserve better good luck

No you're not crazy! 😜😜

Hi Carol I think you got a bad surgeon. I've had a few peobkem, but none the Dr. Oe P.T. couldn't fix. I would sue the original Dr. And get another opinion. I am Seven weeks after TKR. I hope everything works out for you.

Carol I agree with everyone that you need a second opinion. I'm at 17 weeks post now. I am having a manipulation and Arthroscopic Adesiolysis on 29 July (to cut away sticking muscle). I have a bend of 80 (on my best day but prob 70 most of the time). Extension is at -30.

You know yourself that something is not right. I knew that too. Luckily mine has been picked up easily by everyone who treats me as I've been marked as 'different & complicated' from the beginning. I'm 36 and don't have a standard TKR...I have bonus bits in my leg 😁 Just trust your own instinct and ask for someone else to look. It's you that has to cope with it. I know I can't have anywhere near a normal life with what I currently have.

Keep us posted xx

Carol, please ask your GP to refer you for a 2nd opinion. My right TKR, performed on 27th Oct 2014, has never felt right. I was eventually sent for an ultrasound,then a full leg alignment x-ray, & like Linda, who has had a revision, mine is misaligned towards the right, by 6mm (which may sound a small amount, but inside your knee, when trying to bend it, is a HUGE amount!). I am on the waiting list for a revision & it can't come soon enough despite knowing what I have to come! My 2nd opinion consultant is so reassuring, it happens, & I accept that, what I wouldn't accept, is being told to "get on with it" as the 1st man said!

Thank you all for replying.   I have been to my GP, the consultant, the physio and now alternative practitioner. I will push again today. A tearful night and lots of time to think but its up and go again now.

i will let you all know how I get on.

its difficult living alone.  Thank goodness for this forum

Carol if you're struggling to get anywhere then email your hospital complaints department (or PALS office), put complaints and the hospital name into Google and it should come up. They will look into your case. I've done that when my consultant told me follow up surgery had to take place within 12 weeks and then his secretary told me the wait was 5 months. We shouldn't have to chase for these things but we do.

I know exactly how you feel when living alone too. I actually moved back in with my mum prior to surgery just for support as I couldn't cope.

Good luck x

Thank you, I will do that

Be careful.

Is this myofascial release sone kind of alternative treatment?

Are you still under hospital consultant?

I was under a hospital consultant once and he basically said there was not a lot else he could do to help but did give me another appointment with him.

I then went to an osteopath. When I went back to consultant and told him he hit the roof!! They do not like it at all.

Probably better not to tell consultant what you have done even if it is helpful to you.

If you want a second opinion ofcourse you are entitled to that.

Yes being told to go away and get on with your life is hard to take but sometimes it is what you have to do otherwise you just go on worrying.

I am lucky in that I have never been a worrier and tend to just get on with llife, but I do understand that other people worry a lot about things.

Hope you manage to sort this out one way or another.

Take care and keep in touch

Praying for you

Love Sarah xxx