I was diagnosed with DERMATOMYOSITIS last year is a autoimmune diseases that has been driving me crazy and I need someone
Who has the same desease to tell me how they do it....this weakness is getting worst the medication. Every thing is really bad.
Hi,
I just responded on this forum to another person's questions about derm. I have skin involvement, not muscle involvement, but have learned a lot over the past 10 years. Feel free to reach out to me.
It is a frustration illness!
Hello , thank you for responding my frustration right now is not been able to swallow my food, I'm losing so much weight, that is getting me worry..
I have read that some patents have dysphagia issues. Does your doctor have a plan for you? Is it just solids that are difficult or can you manage thin and thick liquids?
Maybe you can make high protein, high calorie smoothies. They can meet your nutritional needs if you can swallow them.
Good luck!