Has anyone on this forum had lichen sclerosus which has developed into cancer and would be willing to talk about it on here?
Do you have this problem Rosey?
I was told that the chances that it develops into cancer are very small. Especially if you look after it well.
No, I have only just been diagnosed but I was curious - I have seen a 4 in 100 possibility quoted which I would consider quite high. Plus, how long has one had it before actual diagnosis - it varies so much on the individual, and from what I have read may not have been diagnosed at all until "the dreaded itch" rears its ugly head!
I have not seen any posting on this forum of people who's LS has developed into cancer.
You are unlikely to develop Vulva Cancer if you keep the Ls from Flareups. I use Clob and I don't get flare=ups such as burning, itching and lesions. I still am getting the skin folds. Just saw my Gyn today and she said if I use the Clob Cream more often, the Skin folding should get better, The LS Cells are deep within the skin and are inflamed by overactive autoimmune system. Even though I am not getting flare-ups, the inflamed cells are still there. You need to see a Gyn that is an expert on LS. My Doctor said that since I don't have flare=ups, I would never see vulva cancer.