I was diagnosed about 5 years ago with GS. My first work up showed me at 2.2 total, with .4 direct. Last year, I was at 1.9 total with 0.3 direct. I had blood work done again 2 days ago, and now I'm at 0.8 total with 0.2 direct? I know the levels can fluctate on an hourly basis, but was wondering if anyone else with GS had ever seen normal levels on a work up. I was always under the impression that if you saw high levels once, it was confirmed that you had GS. My *new* doctor didn't deny me having it.
Yes my levels are sometimes in the normal range and levels can change very quickly !!!
Iv had high levels every time I have a blood test but my dr. Ever does anything or says anything about them I mentioned Gilbert’s but never say a word iv been like this for years still no diagnosis