Discomfort in my teeth

Chest and lungs
1

Hi everyone

I am still awaiting a diagnosis for my sarcoidosis after having ct scan and biopsy. But along with all the symptoms especially the cough and shortness of breath i have been having alot of pain and discomfort in my teeth. Does anyone else experience this.

Kind regards

Julie

2

Hi Julie,

I also have tooth issues - discomfort, pain, sensibility. The problem started a few years back, after I took some chemo drugs to stop pulmonary fibrosis (at that time, they thought I had idiopathic fibrosis). Now that you mention tooth problems as a result of sarcoidosis, I wonder whether the dental problems I have relate to chemo drugs I took or to this terrible illness.

Here are some things that can help relieve tooth pain and discomfort:

- avoid very cold or hot foods/drinks

- buy soft toothbrushes (the hard ones can deteriorate tooth enamel)

- use Sensodyne Toothpaste - it has helped me a lot. I have been using it for several years now.  A good idea (suggested by my dentist) would be to alternate normal Sensodyne toothpaste with the one that has fluoride. I did this, and now I can eat ice cream and drik hot tea with almost no pain.

- brush your teeth at least once a day.

- If you use mouthwash, go for a gentle one. I bought one from Sensodyne, and it is much better than the other brands.

- use dental floss to prevent tooth decay. your teeth are most probably very fragile now, so you can develop tooth decay very easily.

- visit your dentist regularly. s/he can address any dental problems before they become serious. when teeth are sensitive, other problems may appear, such as gum recession, gingivitis, periodontitis...

- have patience. It took me about one year to overcome tooth problems. 

I hope these advices will help you address and solve yout tooth problems.

However, you should see your dentist. maybe he can recommend you something specific for your condition.

Good luck!

3

Hi Julie

I have tooth issues but not related to sarcoidosis. I've always had sensitive teeth and problems associated since I was small. There are so many different possible reasons for tooth/mouth issues: could be sarcoid, could be something else. I'd go along with Magda's suggestion of visiting a dentist and asking if they have any suggestions. Similarly, all her other ideas for tooth pain and sensitivity are pretty much all things I've tried with reasonable success. 

Can't remember where everyone lives now so don't know if this applies or not. But here in the UK there are other options besides Sensodyne. Just look for a toothpaste that says its for sensitive teeth - most of them, if not all of them, have fluoride in them so they can be used all the time without swapping from one type to another. 

Good luck, hope you find something that helps

4

Hi, thank you for your advice. I will definitely try the sensitive toothpaste to see if it gives some relief. I see my consultant next week so i will mention it to him.

thanks again

take care

Julie

5

Hi Julie ~

I'm sorry you're feeling so bad and in so much pain.  I can sympathsize with you as I do have sarcoidosis of the gums.  It is very painful.  Not all the time, but when it hits, it's debilitating for me.  Perhaps you should see your dentist and if you don't have one...search for one who is familiar with sarcoid.  Whatever you do, don't stop brushing because of the pain as it will just lead to another issue.  Get a very soft brush and use it when your pain is really bad.  I sure wish you well and hope the biopsy comes back in your favor. 

Just a curiosity, when I had my biopsy, they gave the diagnosis right after having the biopsy of the lungs and lymph nodes...I'm in the United States so that could be the reason why there's a difference.  Just curious.  Keep us updated as to how you're doing.

Warm regards

Frustrated

6

hi again Julie ~I forgot to mention recently I was dx'd with cardio sarcoid and skin sarcoid...however, approx 2009 I was dx'd with sarcoid in the gums.  I actually lost a tooth and that's how I found out.  I never had problems with my teeth or gums, ever.  But since the dx of the lungs and lymph nodes, this came about so possibly after you get your dx, you can check into your dentist and let them know you have/or not sarcoidosis.  Good luck!!Frustrated