Diverticula Dismissal

I think that i have just had the shortest appointment time with a doctor.ever

Four minutes max. Told I had severe Diverticula Disease, to eat a high 

fibre diet, ,and to look on the inter net if I wanted any more information, then  he was out of the door, and that was it ,,except for a parting shot

delivered in the corridor ""to come back if I had  it again"

  Who do I now ask my shed load of questions ? Oh yes    The Internet.

Silly me, to think that anyone cared  !!!!!!

Bet you are a tad disappointed Jac! Wanted to have so many questions answered from a professional but sadly not the case. The dr told you info that you already knew. Annoying. Chin up lass, we won't be beaten by this horrible disease. 

Try and have a good Sunday :-)

Typical dr my hospital gave exactly the same advice! Internet? Where is all the helpful information this forum is the best place for that and we are no experts. Hope you will be feeling better soon x

For once in my life I was speechless, The visit was a total waste of time,

and I was made to feel like I was a no-no person,just someone taking up his time ,then dismissed

 

So, do we all wait until we are writhing in agony and ring 111,or if  worse

do 999?  When a little  (I would settle for a little) information and guidance 

to tell us all how to take care of ourselves seeing as they don't want to

You have got it right about the forums Linda especially the Diners one

 Feel better now that I know you are still there x

Just re read your post, and had to smile ((thankyou )) because it felt as though you were in with me with the doctor,  biggrin

Jacqueline.  I can uderstand your cynicism, but why are you surprised?  I was one of the first people to post on this forum and, if you go back to the beginning, you will see my lengthy comment.  I have always been met with short, dismissive shrift and this has gone on for 30 years - it's jsu palling.  Treatment does seem to vary and it's sketchy and often useless.  I was told immediately after sigmoidoscopy and diagnosis that surgery (once used) was not now considered an option.  And yet, other contributors to this site have had surgery - some with good, others with bad results.   It's an ignored disease suffered by thousands (which is exactly the dismissive answer given by a GP) and, if it were something apparent like, say cancer, it would receive immediate attention.  I am careful over diet (I have a dietician) and it helps - but it is palliative and not the answer

Morning Jonn, you are up early. Don't quite know how to get to the 

beginning of your forum, there are only six on here . A lttle guidance 

would be good 

Have you had this awful scary for 30 years ? I consider it scary ,because I never know when it's going to come on,and the intensity of 

the pain that it brings.

I really did not expect to be treated like a pain in the proverbial,for 

wasting the doctor's time by being there with such a trivial matter

(to Him)  He did bother to tell me that I had a severe case,and left it at that. Iwanted to ask, How severe,  what will happen  , will it get any 

worse ?? But I couldn't ask questions to a disappearing back.,and ,

I have not been given the opportunity to ask the next time, as there will be NO next time. 

Have you joined the diverticular  (Privacy ) forum ? Seems to be mostly Americans who are on it ,and operations to them is like going to the

dentist for a tooth extraction,and they all seem to be having bits ,or/ all of the pouchy probs removed. probably because they pay 

I still don't know if the  ---answer to everything, Paracetamol---- helps

dull the pain. I don't take anything.

I did read somewhere on this endless information  PLC that Vitamin D

and probiotics might help, so, as one would, try anything, started on

them probiotics in capsule form ,as the constant shopping for Yakult

did not appeal to my dislike of shopping at the best of times ,

Results so far are good I started on 28th August and not had a twinge

since. 

I can't get over your 30 years, Jac

 

Hi Jac.  Yes, an early bird (and an insomiac, I suspect). I blame the kids!

Yes, it really is 30 years and, let me tell you, you will always get short shrift from the medical profession.  I was a career civil servant (Diplomatic and others) which has, over the years, required 15 moves of home. Disturbing for all including the children (and, don't ever send them to boarding school - a lesson I learned when one of my son's told me when he was 21 of a master's bullying).  As a result, I have had to re-register a number of times back in UK.  I recall when just telling a GP that I was a sufferer of Diverticulosis, she said " Yes, you and millions of others"  I am a champion of our NHS (I fear for it though) but I did have the 'priviledge' of Harley Street.  I was told categorically that operations to remove the infected Sigmoid were not now carried out.  The gut simply re-stretches and the diverticuli return.  I have  a lot of wind (let's not hedge with euphamisms - I fart a lot) embarrassing and anti-social.  I am careful with my diet and avoid extra spicy foods, onions and others.  I find pulses helpful but farty.  Yoghurst is good but don't buy expensive.

It's strange because one guy on the forum says how unaffected he is with hot specy foord - in fact relishes it!  I suspect it's try and retain or try and discard.  I take Co-Codmol 30/500 for pain relief.  They are, I am told, liable to make one constipated.  I don't care.  Relief from having to 'go' is good because contiual 'going' can make for a very sore bum.

Jac. I really am not very clever and I have no idea how to gt back to the top of the forum.  It would be interesting, however, because I did list a long diatribe about diet (prescribed by my dietician) which some found useful.. and you might also.

Let's hope the MODERATOR sees this and gives us guidance.

Let me know how you progress.  I'm not sure that we can pass emall addresses but, in case we can, mine is

Jon

Emis Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service. I have reported this to myself and will advise on how to find other users' posts etc when I get time

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

Hello again Jon .I well remember you from Divi Diners purely because of

your farting your way around Sainsbury's. where did you disappear to ??

You went on holiday, and gone!!!! It must have been a hell of a holiday.

I'm glad you are back we had some proper laughs,, well, I did.

Has no-one offered to do a removal job on you ,after all these years of

suffering you must have endured ? Surely by now Harley St must be

a tad more enlightened after 30 years. Those tabs for pain that you are taking, would have me on the ceiling The best painkiller invented was

Co- proxamol, which was pulled off because some pillock over dosed

on them  I'm a lot anti -tablets because of the god awful side effects

which cost me a holiday 4 months  ago and money  Are you still being

treated for the  dustbins ,? have you acquired any  more, and have you

had further colonocopy's to see how they are doing. ?

Sorry about all the questions ,but there are more, if you can stand it

Jac

Hi Jac.  I think I may have mssed the thread.  In any event, I couln't seem to pick you up again. Firstly, We were down in the Caribbean for a few weeks (I was able to re-visit Antigua where I spent some time another lifetime ago) and then we went up to Norway; the Fjords and the North Cape for a another few weeks.  We would be going to Turkey (cultural - Troy, Ephesus etc) in Nov. but have cancelled (not happy with world situatio vis a vis flying etc at the moment - especially that region.

Yes, still farting profusely.  It was Waitrose (better class of fart there) not Sainsbury's and I have had no follow-up in all those years. Truly, Jac, doctor's ae really just not interested.  It's such a common complaint.  Very interesting to read some of the posts  though. People who have had bits aken successfully; other who have had bits taken only to suffer further complications.  We really should push for a National ruling from NHS England on what the overall NHS policy is. I will write.

How are you anyway?  Great to hear from you again.   Can you include the 'new' Jac to our group and help direct her to the 'top' of the discussion.  The o-Codamol makes my wife fly also.  I suspect I a addicted but it's for pain generally, not just this sh*tty diease.

Iv'e rambled (noting new there). So, Jc. do keep in touch; ask questions; provide jokes and try to keep well.  Jon

Hi Jon . how careless you to misplace me. The diners is  now yesterday's

chip paper .Sadly. one tedious woman tried to turn it into an agony 

forum all about her sad boring life, and I think everyone got bored with it.We had such a good crowd of people ,who had happy verbals, which made me feel a lot  better i have just sent Juliet Bravo a private

to see if she is O.K

By the way our mentor deleted your EMail address, so I popped mine

into your private messages  DO TELL ME that you have got it and

it's not gone WWW.

I had a hospital visit  on Saturday morning , blighted my car boot !!!

Of course there were dozens of coughing morons who never covered their mouths. needless to say I have sore throat ,snotty nose. and had to cancel a vampire session at the doc's this  morning .

It's never ending ,tomorrow I see  the surgeon who will hopefully sort

my torn shoulder tendon and shave the cuff !!??!!??

Should be good fun using this machine with one hand, and ,as Iam a

lefty, and the left arm will be in a sling for min. of 4 weeks. so. no 

driving, I will become mental, and you will be one of my ""something 

to do""

Two doctors were having a pint ,one asked the other, "Why is your

waiting room empty all the time"?   The reason is he said ,""the whole

village is on Prozac ""

Do not disappear you have no excuse now that you hope fully have 

my mailrolleyes  Jac with sneezes

 

Hi Jacqueline,

i have scattered pockets of diverticula and was told by doctors my ct scan was "normal" only 2 b contacted about 3 days later by another doctor from same gp surgery telling me I have  diverticula!! When I was first told nothing was found on the ct scan I could have cried cause the stomach aches where constant but then 2 b told it's not normal is not right in my eyes I mean how come doctors are always contradicting each other I mean where are they finding these people!!the advice I was given was 2 look at the latest tool GI specialists are using which is FODMAP diet dunno if ur aware of this but i had never heard of anything like this have a look at it see what u think and good luck in your quest for "inner peace".

tom.

Hello Tom , welcome to the club of not knowing what is going on.

I had 5 days in hospital, as we all seem to do ,on drips and no food etc 

the ward doctor told me that there was no perforation (sigh of relief) 

I then saw an out patients doctor ,who said there had been a perforation 

Who do you believe ? Aunty or Uncle ? so it's pretty obvious. no one 

knows, so that makes three of us in the dark. 

I started aforum for such people as you and I called DIVI DINERS 

which was hugely popular because there are so many of us wandering

through the food maze  Try it you will find lots of help, and lots of laughs 

jacquelinnecheesygrin

OOPS, spelt my name wrong 

Jacqueline -------------------It's this machine !!!!!!!

It's happened again, only this Time by 111

I've suffered with a steadily worsening painful flair  No sleep. at 6am phoned 111

went through the usual barrage of  questions none referring to how bad the pain was I said that I had phoned 111, because the chance of getting a G.P appt

this morning was highly unlikely

The response was  "to see your doctor within the next 2 hours "" The surgery 

does not open it's doors until 8=30

Any suggestions guys, as what my next painful move ought to be ?

 

Sorry to hear that you have another painful flair up. Don't know your personal circumstances but have you thought about seeing a private consultant who would take you seriously for obvious reasons? Worth a try if you could afford it. Thinking about you x

Morning Jac.... What is happening now with you since your last message. Did you manage to get a Dr appt this morning? 

Poor you, you just get over one hurdle when another problem arises.

i have my colonoscopy appt on the 14/10, so hopefully I will get some more news! Emphasise 'hopefully'... 

Take care my friend, thinking of you 😃

Managed an appt this morning   Instructions======

Arrive at 11 am, and sit and wait, someone will see you

Next hurdle shoulder op 15th . probably not if this thing doesn't clear up.

I think I have a mega case of Body Rot  

 

will enquire linda.  At least I wil be taken in hand very quickly.

whilst we still have some doctors xx