Hi everyone. I am new to this site just trying to find some answers to what I have been going through. About 7 months ago my right ear started making a bubbling sound which was annoying but went away the next day a few days later my ear becme pluuged with pressure, tinnitus, and dizziness the next day. Doctor gave me medrol and the symptoms went away within a few days. While the ear problems were going on doctor thought I may have meinera since I lost hearing in that ear. Went back after medrol was finished and hearing back to normal. No hearing loss. I have been having dizziness since then and sometimes bubbling sound in right ear. Lately sometimes when I try to fall asleep my ear move back and forth and I feel tired but I can't sleep no matter what I do. The first time this happened my right leg twitched too causing my foot to be pulled outward. Not sure if this is connected or not. Last few days dizziness intentisifed and having a hard time with sleeping every night. Eye movements almost every night. Can't work. Anyone have any ideas. No fullness, tinnitus, or ear pain.. No loss of hearing. MD thought maybe I had inner ear infection but not sure why I still have dizziness. MRI clear. Ct done a year ago before this was clear. He tested me for bvvp but no eye twitching with movement. Any help would be appreciated.
Sorry not ear moving back and forth my eyes move back and forth
Hi Kellie, Sorry to hear.
This info is from my otolarygologist, Menieres is episodic. Maybe this will clarify.
Meniere's Disease, Endolymphatic Hydrops:
Menieres Disease is a disorder of the inner ear caused by excess pressure in the endolymphatic fluid compartment, usually related to excess inner ear sodium. In addition to episodic vertigo, which usually lasts hours, the patient may have fluctuating hearing, tinnitus, and a feeling of fulness in the affected ear. It can occasionally affect both ears.
For most patients, the cause of the disorder is not known. Spells can sometimes be induced by excess salt intake, stress, weather changes, or allergies.
Treatment usually includes restriction of salt, sodium intake, and the use of a diuretic water pill.
Sometimes anti-dizziness medications like Antivert or Valium can decrease the severity of a spell but they cannot cure the disease. Steroids can occasionally help, but because of side effects, their use must be limited. If your doctor recommends water pills or steroids for you, please ask our nurses for all instruction sheets to better inform you of their side effects and check with your
family doctor. In severe cases, the Menieres disease surgery may be needed. fortunately, there are many surgical options but of all of these options, only sac decompression surgery attempts to improve function of the inner ear. The remaining options attempt to selectively ablate, remove, or destroy
the malfunctioning balance nerve and sometimes the hearing nerve as well.
Hi Kellie,I'm suffering with severe dizziness ATM and been of work 5 weeks now ,I've had weird problems with my eyes especially the right it feels slow and when I'm trying to sleep my eyes feel heavy and feel like they are rolling,I'm having trouble sleeping too and can't switch off,I've got a MRI scan next Sunday but after chatting to lots of people on this site all MRI scans have come back clear,I don't want anything nasty but hoping they will find something and I can get the right treatment, my dizzyness is so bad I've been housebound and bed bound for a week,if you find any answers please let me know I'm so down with this ATM,I hope you get well soon,take care lisa
ATM ? at the moment,
atmospheric ??
I really don't have any of those symptoms. I don't have vertigo only dizziness and haven't had any fullness, tinnitus or loss of hearing in that ear. I've been reading alot and they all say you will have these symptoms or at least one or two which I don't. So I'm not sure. Just looking for options or someone that has the same symptoms. I will post any updates maybe it will also help someone else. I also have had pt on my neck in the past for headaches r/t being on bedrest when I was pregnant and damage to my neck from that and weaken muscles. Also I have been having headaches almost everyday for a couple weeks. Going to see neurologist in few weeks
Where u able to get temporary disability I have been off work a week now and have no more vacation left. Don't know what I'll do. Can't go to work if I can barely stand up at times. My dizziness is constant. Is yours. My eye movements are in a back and forth motion or it feels as if they are moving. I am beginning to lose hope. Been trying to get answers for 7 months. Sorry to hear you are suffering too. Wouldn't wish this on anyone
I'm in the UK,my doctor gave me a sick note to give to my manager at work, due back Friday but can't see myself going back,I get statuary sick pay but its nothing really,not sure how long my job will be there as almost 6 weeks off.my dizziness is constant and really starting to scare me now as its been there so long.my eyes move back and forth but a few times side to side,I went to a eye doctor and said my eyes are healthy so it must be linked to my dizziness, I understand how you feel,how old are you,I'm 32 ,lisa
Hi Lisa I just turned 39. I know how u feel its seems like we have some of the same symptoms. I have a previous neck injury which may be an option but I really believe it's my ear. Don't understand why the doctors can't figure this out. I did get a prescription for Valium which I take at night and seems to help me. Maybe you can try it and see if it helps you. Do u have headaches too? I live in California.
kEllie,,when you say you do not have 'Vertigo', what do you mean exactly? As vertigo in itself is just a generalisation for all the different kinds of dizziness etc ,like BPPV, or Menieres, or Vestibular neuritis etc etc. yOu could have,,for example, Migraine Associated vertigo (You don,t have to,have a migraine pains to have this)? Most Neurologists don,t seem, in my experience, to have much knowledge about the Vestibular system as they deal more with the Brain area. yOu really could do with seeing a Neuro-Otologist, as they do both. sO,don,t despair i of the Neurologist finds you 'normal' as I found, and others on here have too. oFten the 'eye moving back and forth' thing can be Nystagmus. look that up,on line and see if if resonates with you. a Neuro,Otologist would test for Nystagmus and there are different kinds of it,too.
lIsa,,have you been tested for Nystagmus?
How do u get tested to that?
Hi Kellie,I do get headaches and have tried pills for that but they havnt worked and as I pointed out to my doctor I'm dizzy all the time and its almost 6 weeks non stop,a head ache wouldn't last that long.I'm convinced its my right ear as I get pressure sometimes in it also it feels wet inside but doctor can't find fluid,I have 2 girls and its so hard trying to look after them as I'm having to rest most the time as so dizzy,I was normal 6 weeks ago,working,taking my kids out and enjoying family life now I can't even go out,lisa
Hi Gillian,no I havnt what is nysragmus?lisa
It is one of th tests a good Neuro,Otologist would do. tHey do some,physical movement of you wen you are lying on a bed, and look at your eyes as they do,them to see if they jump etc. To be honest, even a decent ENT could do, it. iF you go,on line a great Google Nystagmus, and testing etc you will get a proper,explanation.
Thank you I will look into that,hope your not too bad,lisa
iT,s,all,to,do with eye movements. iF you google VEDA, and the word Nystagmus you will get a comprehensive description of it all.
Thank you I will look it up,its weird I've had severe dizziness for almost 6 weeks now and eyes are both weird when I'm really dizzy they feel slow almost like they get stuck,the right eye also is blurred on and off vision not so great when I'm tired or dizziness is at its worst ,lisa
From what I,ve read it sounds similar to the symptoms of Nystagmus, and there are different kinds too. So you need to read it all pretty thoroughly. also you can ask you Drs for the test.
Is there a cure?I'm so scared I'm stuck like this now,lisa