so for the past 3 years I'm suffering this kind of illness! whenever I walk outside,malls etc I always feel like my balance is not right and I always feel lightheaded or dizzy. I went to alot of doctors before i think almost 10+ I done all test, Blood test,ecg,VGN,balance test manuever test almost all test except CT scan and MRI most doctors diagnosed me with migraine vertigo,anxiety and panic attack so for the past few months I recovered and I was fine until 2 days ago it happened! the worst dizziness of my life where I didnt feel my legs and body and I felt like im spinning all over and my visions was zooming in and out and I was so scared and my mom grabbed me cuz Im falling down so we rush to ER and the Doctor gave me serc 24mg after 30 mins my dizziness lessen and the Doctor told me it was just a vertigo and I'm fine, I wanna know if there are people who experience this too? im really scared... please share your experience
I used have dizzy spells when I was younger (19-21) and took meds for it, but after time they just went away. It was until I was 34 that I had my first massive vertigo attach. Parents rushed me to the ER etc..... it's been a couple of weeks ince that happened and I"m feeling much better. I started doing Crossfit again (albeit modified), but it fells like I"m the right track to full recovery.
Everyone is in the dark when it comes to vertigo & diziness and every situation is different =( Have you done PT for vertigo? The epley manauver helped me a lot! I was on meclizine for like a week and a half, but I took myself off of it. I personally didn't like the "foggy" feeling it was leaving me with.
Thanks for sharing your experience 
I went to doctor and yes I did some manauver and they gave me serc 24mg but I think the medicine is giving me some head pressure and making me freak out I was already fine until 2 days ago that severe dizziness ruined my life again 
When you're dizzy it's hard to move around but I highly suggest moving around as much as you can. Even if it's walking around your house / apt. Once I started walking around more and getting more active, I started to feel better.
Hi there i know ot is scary stuff I we'd and still going thru these balance issues it will get better try doing vestibular balance excercises they do work twice a day vertigo is much better also got the epsey manuer worked for me I is all gross I know I do half somersault manuer on my own when feeling real bad it is on u tube how to do its great just hang in there it will get better
Hi, sorry to hear about all that. Ive been dizzy for three years too. If you were actually spinning, then its vertigo and the fact that the betahistine helped sounds like vertigo too. Ive had a couple of episodes of vertigo but Im dizzy which is slightly different. Its a feeling of not being right, unsteady, light headed, weird eyes, head pains, feeling sick. Ive had blood tests, balance tests, MRI scan, seen endless ENT, neuro surgeon, neurologists and Ive been diagnosed with silent migraine. However, recently I was told about SCM which is the muscle in your neck/head which can cause the same symptoms. Ive studied the dizziness and realised its connected to when and how I move my head. So I think Ive got SCM. Ive stopped the epilepsy tablets they gave me and have requested to see a new consultant. Still waiting for the appointment. All this is really nothing serious, but is very debilitating and scarey. The more scared you get the worse the symptoms get. This then causes anxiety and panic attacks. Ive had all that too. Its true that the more you move around the better it gets. If you give in to it and go to bed, it takes longer to get right. I think these doctors dont know whats wrong, its a process of elimination, but none of the things it can be is serious. Its just almost impossible to live with. The body naturally heals itself over time even if the docs dont get it right. Try and chill and relax. It will get better than it is.
I've improved since taking Betahistine (3 months) then bang it all came back yesterday.. Unable to sit around as I had to get children to school for 8:45.
Playground spinning around me, legs felt like jelly, fighting like mad to be normal in front of the children. On getting home, spent day sitting and falling asleep, until I had to pick them up at 5:00 pm.
On returning I felt better, it felt like I had the flu. But with loud ringing in ears and the usual symptoms I knew it was back again.
I took an extra betahistine as I had recently reduced to 2 daily.
This morning symtoms better, however Tinnitus is just as bad.
Hey Ho back to square one, fighting it.
It does work, eventually.
Good luck everyone with your struggle.
Regards Pauline
Paula, it could be me your are describing in your post. from feeling of not feeling right to everything you said after that including feeling sick. Over the yrs from time to time I would come down with benign potional vertigo.
But this is different. For more than 9 mos I have been dealing with thiscurse. Today I had to leave a festival I was looking forward to attending. The heat index was 100 after 2 hrs I had to leave. I was hot but my head felt weird too. I also have allergys right now & try not to take the medication. You mentioned the head & neck. I am blessed with severe arthritis in my neck. What is scm mean? I am sorry we are all cursed with this stuff but your post left me know I am not crazy. I even read it to my hubby. He doesn't know how to help me. Thanks again.
PS What is betahistine? Are you in the UK?
Hi Marie - you need to take your allergy stuff because its all connected. You need to help yourself in every way you can. When the pollen count is high, my head is worse. SCM is the big muscle that sort of holds your head on. You have one each side. When you turn your head its the big thick one that sticks out. You need to google it. Theres a chiropractir dr mary somethng she studies it. She lists all the symptoms and what damage to this muscle can cause and its identical. I had a bad car crash in 1973 and tore all the muscles and ligaments on the left side, plus fracturing bones. I was in a surgical collar for two years. But they didnt have scanners then and I think mine has healed incorrectly. My shoulders are very noticably out of sync. and left side much shorter than right side. So everything in there all scrunched up. It causes dizziness, sinus problems, watery eye, head pain, neck pain, hot flushes, eye problems. Exactly the same symptoms. The thing that did it for me, I developed a red bloodshot left eye, it didnt respond to either antibiotics or allergy stuff it was only after a holiday of resting that it went. When I re googled SCM the red eye was mentioned. I was over the moon. So I went straight back to see different GP with all the notes and said I had been doing RESEARCH not googling stuff, and that I thought I had the wrong diagnosis. He got back to me having requested an appmt with an orthopaedic consultant. So waiting again now. It will be three years soon. Got an appmt with my neurologist on 13 aug so going to take all the notes with me to show him, that will be interesting. None of the medication Ive had in all this time has ever made the slightest bit of difference except the nortriptylene which makes you relax. Doesnt do anything with regard to the dizziness though. Google SCM its amazing and its only physio and stuff to get rid of it. This is a total nightmare and the people out there without it, dont know how lucky they are. I would sooner have two broken legs any day.Went shopping my friend yesterday and the lights were horrendous. I had to sit down with my dark glasses on, it was impossible in that shop. And I nearly panicked but I just hung on and thought you know what this is, so chill. But the giddiness feeling is so scary because you think you are going to fall over or pass out or be sick. I was abs fine once the trip was over and I was back home lying on my side on the bed. All funny feelings totally gone. So I think its clearly positional, how can migraine change once you are sat in a different place.
Hello Marie,
Betahistine is a histamine nalogue. It works by improving blood flow in the inner ear, which reduces the build up of pressure. It is this pressure to the inner ear which is thought to cause nausea, dizziness tinnutis and hearing loss.
Yes I am in the UK.Hope this helps.
Best wishes
Pauline
Hi Marie..I think Paula has cogent info re: neck connection to your problem..I spent years being lightheaded when straightening up, or having a lengthy conversation...not severly dizzy as with vertigo..that's just recent- Finally went to a chiropractor and x-ray showed a badly damaged neck..Adjustments helped immensely...but you have to go with a reputable doctor...Hope this helps.
Hi, I have vertigo at all the time.
I lost my low frequencies in right ear but the hearing comes back sometimes when I crack my tmj.
I've been to chiropractor and had helped some but I can't get better. At first was ok but after some hip treatments I had develop extreme vertigo dizziness hearing symptoms when just walking!
My left leg turns inward and right outward..,is probably atlas misaligned but to get it adjusted is not as easy if you have balance issues...
Hi Paula,
I think I could have SCM also. I have neck/head pain, dizziness, nausea and a strange tingling sensation on the left side of my face and head.
This has all occurred since I went to a physio and he cracked my neck, could he have damaged my SCM????
Hi just want to tell your not alone I been like that or worse for four years in a half non stop dizziness 24/7day by day. Pressure in my head and eyes one pupil larger than the other witch I think that's my anxiety pill.heart palpitations. Internal tremors I feel like I'm going to die everyday so Mutch symptoms twitching legs hands Plus falling asleep lims,it only get worst did a cat scan on my head OK just sinusitis and diagnosed with vertigo but I get this pressure almost everyday on top of my head get a shiver a sudden pressure with dizzyness its so intense I have to hold on to something.Check with doctors all these years now came up with bronquitis,gastritis, kidney stones,migraine headache,scoliosis,have severe back pain symptoms u name it twitching muscles im sldo scared can't stop thinking about it also diagnosed with generalize anxiety and depression but pretty sure that has to do a lot with it.advice I could give u cat scan during a lot of water and Dont think to Mitch about it.ohh and also I have and inflammation on my liver I know is crazy but sometimes is better to relax look up in YouTube there's a lot of home remedies for dizzyness and headaches witch are great.I'm still going through but knowing were not alone makes us feel better live is complicated but as we make it the brain is so intense if u think ur chest is going to hurt it will send the signals and your chest will really hurt so try reading,something to keep you occupied walk an 1hour a day that will ease your mind I Dont if I was any help but I need help myself owwww and make sure you are in a good diet.....best of luck
hi, i suffer from dizziness permanent since one year and a half, i have to do rehab but anxiety and depression very deep, cant hold going to the rehab as i suffer from agoraphobia, i am dizzy at my flat too.....how did it improved for you? where you dizzy all the time and no possibility to walk ? sorry for my question, loosing hope and strenght
That's the thing it never went away it came down a little with walking everyday for an hour.but still the same in June it will be 5years was in the er yesterday blood pressure was a little high 140/100 I'm also scared my mind won't stop thinking that I'm going to die.I was tired I have heart palpitations.its hard to breath my neumologist. Send me to do another cat scan on my lungs.my gastro said were going to wait three months to do a cabdomen on my abdomen I'm also scared every part of my body hurts.I wake up with one of my hands and leg asleep its scary I just want to live a normal life I have two kids I'm just trying to have faith.but for the dizziness I use a pill call merislon it helps a little bit and drinking plenty of water and exercise.but otherwise may god be with us all and let us get out this living nightmare.
yes it is awful i agree
I have been experiencing this for about the last month now. Started with my balance and now my head. They did all the same tests. Ruled out vertigo. I am now scheduled for an MRI. It's very scary!
Hi PJ8888
I've experienced vertigo and other symptoms for several years and have found no doctors who take it all seriously although I have only been to see a handful in the last couple of years as symptoms grew worse.
I am on this site because I experienced a very painful leg & calf muscle cramping in my left leg with some thick yet light headedness (almost a faint but not?) today while walking and upon researching, found your question and some answers in this forum.
Just to add to this... my grand daughter as was her Mother when she was young, is diagnosed Absent Seizure (Petit Mal or Silent Seizure or Focal) Epilepsy and again, upon research, I now recognise that I hd this when I was young too. Research states that children grow out of it but we are certain my daughter didnt really grow out of it (but somehow is lesser as she's aged) and I've found forums with people of All ages discussing their situations and symptoms related to Absent Seizure.
I am just wondering if you or anyone in this forum was diagnosed or may have Absent Seizure/Petit Mal Epilepsy as I feel all of this may be related?
Thank you for your time.