OMG, what an experience, im still in a state of anxiety. I developed Fibro in 2013 after i was diagnoised with dvt in my arm, multipile clots in my lungs and empazema. i have since been diagnosed crps in my left arm where i had the dvt. i was up for my appeal yesterday and i never experienced anything like it. It was question after question for one and a half hours. After they had finished i was asked to leave the room and they would make their decision.The clerk came out and reached me my files, said they had come to a decision and they would post it out to me. I dont understand why they just couldnt tell me there and then. Has anyone else ever experienced this and what was the outcome. plz help, i feel totally defeated.
Hi Claire
Poor you.....unfortunately, I don't have the same symptoms but can only give you my support in saying....Please DON'T give up ! You will get through this a day at a time. We are all here for you on this forum.
Gentle hugs and have a positive day !
I'm in Australia..so don't really know what it is..but Bee obviously does...don't give up
whatever you do...you are really suffering shockingly at the moment and very stressed naturaly...all I can add is that we are here for you anytime and all the time..just keep on chatting..please try looking back at something very positive in your life., where you were happy, it might make you feel a little better, you are an awesome woman Claire, who is in deep distress,you really need caring loving support around you right now..if it is only all of us on this forum, well then it's up to us all.... We MUST support each other, we never know when it's our turn to need to be supported...you have soooo much to bring to this forum..every pain or issue you have to experience could help someone else no end..so you are also very very important Claire..so you are vitally needed, as Bee said..one day at a time...tomorrow is another day...hopefully a bit better for you..sending you gentle hugs across the miles Claire, ..be blessed, I will be praying for you...have a much better day tomorrow..please keep in touch with us all. We genuinely do care...:-) xxx
Hi Claire,
In my experience they (the panel) usually ask you to wait because they're ready to give a decision but if they've told you they will write to you then its probably because they need to go over the evidence and your answers.
I have been fighting my DLA decision for 2 years this May and yes there have been times I have cried in anger and frustration but I persist. On my 'statement of reasons' there have been lies written in regard to my responses to their questions at tribunal and they have typed out partial answers which makes evidence misleading. I have now requested a copy of the audio cd from the hearing day to prove that what has been written is wrong.
It would be easy for me to say to you, try not to stress and worry however I know this is impossible to acheive for most, if not all of us..... so I will say to you just keep going until you get a satisfactory outcome for you and if you can get some help or support from anyone, then please please do.
My very best wishes to you, I hope you get a positive response.....and if you don't....try your best to keep going with the appeals. And remember you may be setting a precedent (when you win) for those who follow in your footsteps.
Kind regards
Angie
what a rough time you had ,if they were not going to tell you there why did they ask you to wait , if you get turned down get in touch with fightback 4justice on line
they win most of there appeals .
iv still got mine to come and i am dreading it .
Thanks Bee, I think i will have that as my mantra. One day at a time !
Thanks Christine, im not really one for talking about how i feel, but i feel like my head is going to burst. Its difficult to talk to family because they dont understand. I am 43 and have worked all my life, untill i was diagnosed with fibro and complex regional pain syndrome. There are days when i just want the world to stop spinning and let me off. I am now living on minimum benifit and i had a hearing yest to have my benefit raised. They made me feel like a begger, a lying begger at that. My emotions are running high at the moment, but i am encouraged by your kind words and support. thank you
thanks for your encouragment Angie. I was told before i left that a desicion had been made and they would send it to me. im assuming that because they came to their desicion in such a quick time, that their answer will be no. Not sure that i could go through it all again. I hope and pray that you have a great outcome.
Good luck and best wishes
Claire
Poor Claire I really feel for you and you deserve all the support you can get,
I'm still struggling to work full time and finding it harder and harder, Iv been told Im entitled to claim pip but listening to how people struggle to get it I'm afraid to even get a form,
My sons experience was horrendus, he has severe anxiety disorder and depression, he has worked all his life but they turned him down, he appealed then had to go to court,
They made him feel humiliated and simpled him, The judge stopped it at one point as his legs buckled under him, he was as white as a ghost and couldn't remember all he had wrote down, like you question after question,
He gathered the strength to carry on, he was asked to wait then told they will let him know,
He walked out of that court, he ended up in bed for three weeks with a paranoia episode,and deep depression,
But he got it in the end,
Nobody should have to go through any of this No one wants to be disabled in any way,
So Claire keep faith, keep strong were all here for you
Gentle hugs sent your way x
Oh Claire I didn't realise that the decision had already been made before you left.....that is a disgusting thing to do.....feel like its done purposely to make one feel despondent and give up. I used to be a Welfare Benefits Advisor and I'm afraid I have seen my fair share of underhanded behaviour from judges and panel members. They bombarded me with questions at mine and never once let me answer fully before asking the next question. I think my anger and knowledge of my own suffering is what keeps me going.... and I say to myself "I will fight you all the way." I unfortunately have plenty of time on my side to keep going. The waiting causes stress and anxiety which worsens symptoms, making the fight all the more justified.
I will let you know how mine turns out and please let us know how your decision goes. Keeping my fingers crossed for you.
All the best Angie
I feel sorry for you Claire, I have had it for20yrs now & recently lots more symptoms are arising. My optician found prisms in my eyes this time due to the muscles now affecting my eyes, I've never heard of this before so was astonished. The soles of my feet have been feeling like they're burning & I've found out that that is also connected, I couldn't believe it. I am at the moment not too good with a flair up were my head feels as though I'm 'floating' & headaches. I wondered whether anyone else has accuired thes symptons. However some days are positive so keep going.
Every morning i waken, the pain in my feet is horrendous. I can barely walk. I have horrible headaches, mouth ulcers, and the most God awful stabbings pains in my thighs. Every day im finding more and more symptoms. I will however, try to be positive for another day.
I hope you find some ease soon
Thanks Leona, im sure your sons ordeal was a major stress factor for you. i dont know where u find the strength, you are an inspiration.
Thanks for the info, hope yours goes well x
Hi Cindy, Iv had fibro and lupus for 20 years and over the past few months Iv develpoed very painful feel especially my heels, Iv been to shoropidy 3 times to make sure there is no underlying problem but 3 different people can't fine anything wrong with my feet, so Iv put it down to another symptom of fibro ?
My ankles are extremely still on waking and takes a while to get them going after being in bed,
Your right things change constantly but instead of one thing going and another one comes they all flare up together.
Thank you Claire for your kind words,
We have to fight for everything, even the strength to get through day to day,
We can all do it however hard, be positive Claire even the warmer weather is coming ( although not this weekend it's freezing 😄 )
Flare ups come and go and we learn to cope with what this ugly desese throws at us,
You have all of our support
And our fingers are crossed that you have releif from your pain, and results from your claim very soon x
Hi Leona, lupus is also a terrible thing to combine with your fibromyalgia, I also have rheumatoid arthritis & was in hospital at new year with sceptic arthritis. Fortunately for my arthritis & fibromyalgia I have a wonderful consultant & GP who both understand the illness, unfortunately some sufferers are not as lucky which makes each painful day more unbearable. I hope you are one of the lucky ones Leono because it does make a difference. Keep you're chin up .
the form has come today i cant even bare to pick it up from the front door
because i no i will get stressed
Hi Cindy, sorry to hear you were not well over the new year,
Yes you are lucky if both understand your illness and are supportive,
My original consultant is not in my area anymore she was brilliant I must say, although she admitted me to hospital several times when I was happy to go home to my bed n occations :-) she was always right though,
My consultant now I don't really know Iv only met her once, I get Id like to see you in 3 months or 6 months but I never get an appointment Iv always got to ring and make one, I should of had one in December, Iv managed to make my own for next month,
I was very very I'll from October right through until the end of January as my husband lost his son in a car accident in October we were all very close, this triggered a huge flare up everywhere, I'm still suffering but it's a lot less painful at present, probably the shock grief being strong when everyone was falling apart,
I look back sometimes and wonder how did we cope, I'm not a religious person although I beleive in Angels but the footsteps poem came to mind, someone has deffinatly carried me on more than one occation I'm sure 😀
Anyway back to what we were talking about, my head is really foggy :-) I go off like this in work it can be really embarrassing,
My GP has no or very little understanding so much so I don't even go anymore as it's quite a walk from me which can make my condition worse, I don't drive anymore as my vertigo comes on with no warning :-(
Thank you for listening
Big gentle hugs Leona
Claire pick it up and put it on a shelf out of your sight,
It's the weekend and it won't make any difference if you look at it today or Monday,
But if you feel a little better tomorrow it might be good news,
Do you have a family member or supportive friend who could open it for you ?
Keeping everything crossed for you to have some good news x