Do I have COPD?

Thank you for sharing such personal information with me to quell my fears.  It sounds like you did not have the easiest start to life.  Children are the worlds most precious beings.  It breaks my heart to hear of such neglect.  I am sure you are an amazing and inspiring grandmother.  Bless you for raising your grandchildrem - quite an undertaking I am sure but the rewards and benefits are immense!  

You have such a positive attitude and outlook.  I really admire that.  I have been blessed in many ways in my life but for some reason I always seem to think the worst.  I ned to somehow work on that.  

I went for a second opinion yesterday and the doctor did not put me in the COPD category.  She believes, like the original doctor, that my small airways have been affected by the bad chest infection I had in August and that there is a chance they can recover.  She did a few additional test - one for vitamin D deficiancy which is common in patients with COPD and another to check for specific bugs that may be lingering.  I am hopeful but need to be realisitic.  They both want to wait until I come back from my trip down under to see if the warm, dry air might help the airways to open.  If not they will do a CT.  She also wants me to see a respiratory therapist who can help me to breathe better and clear the passageways.  I am more confused than ever.  If I had the tests done at my GP through NHS I would be done and dusted with a label of COPD.  I am thankful that they are looking into other things but it does not line up with what I have read.  The second opinion doctor informed me that my original doctor (confusing) is one of the worlds top in COPD.  He is at the Royal Brompton in London so I know I am in good hands.  

I get the results of the alpha1 back tomorrow,  Fingers crossed.  

So time for spell check - packing for a trip half way around the world with 3 kids is a full time job!  We leave Friday night. 

Thanks Bev.  I am sure you have heard this a million times but I can't help myself - please, please quit smoking.  I am not here to judge as I have never smoked (other than a few out on the town with friends in younger years)  They say it is as addictive as heroin.  My mom smoked and finally gave it up as she ended up with kidney cancer as a result of smoking.  One kidney gone and cancer gone as well.  I asked her how much she smoked around me and my sisters as kids but of course she says whe really didn't.

 When I see people on the street smoking I just want to stamp out their cigs and shake them until they see that they have a choice in their health.   Bev, you sound like a wonderful person and I am not in any way judging you.  Because I am not a smoker, it is just something I do not undersand.

It is encouraging to know the rate of decline is slow.  My fear is that I may have the alpha 1 deficiany or have something worse than COPD as I really do not fit for it.  Please see the response I gave to Dawn abave for the update on my second opinion.  I am hopeful and must stop googling thing.  I felt so much better after I left the doctors then came home and googled small airways disease and got myself completely worked up again.  

Everyone I have encountered on this site has been so positive.  I admire all of you.  I have been truly blessed in life and health is something I have taken for granted.  I am hopeful but very confused on all of this.  I will start meds once I return from my trip and will take them religiously.  hopefully they can find something that will not effect my heart this time.  Initially they gave me an iregular heartbeat so I will hold off until January when I return from our travels.  Hopefully no harm will be done during that time.   Laurenx

 

Have a wonderful trip! 

Dawn 💌

have a wonderful  trip and glad to gear some good news.smile

Hi thank you for your advice.   I know I have to give up smoking and I am working on it.  It would do no good to tell smokers they have a choice for their health.  All smokers know this.  We also all know we are killing ourselves.   It is not information smokers need (which is all the Govt thinks of) but proper help.   The sort of help and understanding other drug users get.  Would you tell hard drug users to just give up - its easy or alcoholics?  I am not saying you do that but I have had this said to me loads of times.  If smokers were not made to feel so guilty or stupid by the Govt and general public but it was recognised what a terrible addiction it can be for some we would feel better about ourselves and would have a much better chance of giving up.   

Many smokers have stopped but one size doesn't fit all does it?  It is treated as though it does all the same.   There are more treatments available now thank goodness and I am going to put my faith in the e-cigs.  The Govt. could ban all smoking completely if it wanted to but won't because of the huge source of income it provides them.   

On a seperate note you might have lung damage yourself because of second hand smoke if your mother smoked around you.   x

Hi I don't know what those figures mean either.   The ones you need to atch out for are your FEV1 (forced expiry volume) which is how much you can blow out in 1 second.  This gives your lung function ie the percentage of say 66% or whatever.

The second one is your FVC (this is how much your can blow out in total-the long slow one).  x

Hello Cookie! I have been on a 5 year journey with this. I didn't know what was causing the persistent cough and congestion that started in my lungs 5 yrs ago, but a co-worker thought I had walking pneumonia and said I should see a dr. So, I did...and he prescribed prednisone for 10 days & 2 inhalers, and said that it would clear up, BUT, if the symptoms return, I would have to quit my job, sell my house and MOVE because I was lving in the worst place in the nation for molds and pollen in the air. Well, I didn't fully believe this was possible, but, the symptoms did return. Well, I thought perhaps it was food allergies and stopped eating all kinds of potentially allergic foods. That didn't help (except that I lost 25 lbs)   I tried air purfiers, that ddn't help much either. I was scared to have a chest xray for fear of cancer. But I was getting worse and worse. Could not get off prednisone and ephedrine to breathe. So, after months and months of my own research I found that my symptoms definitely indicated mold/fungus in my lungs. The building where I worked was discovered to have black mold infestation in the walls and ductwork; the barn for my horses is where our hay is stored and I learned that even the cleanest hay has alot of mold spores in it; we disovered our basement had mold..

Mold/fungi in the lungs is rarely diagnosed in patients presenting with COPD symptoms. It is only very recently that it is being recognized as a very widespread problem. Even when mold hides behind walls, it is able to penetrate through. Spores can find their way through the tiniest openings. We are often unaware it exists in our environment until we start looking for it.

It is very serious. Some molds release a deadly poison called aflatoxin.

If there is any suspicion that you may have been exposed to mold, and suspect you may have mold/fungi in your lungs, there is really only one way to kill it...and that is by starving it. Fungi thrive on sugar. So, when you eat sugars and simple carbohydrates which turn to sugar in the body, you are literally feeding the fungi and they continue to thrive and grow and wreak havoc in your lungs.

After 5 miserable years, when all other therapies failed, and I had lost all quality of life, I finally, in desperation, tried this sugar-elimination therapy diet and removed all sugars and carbs from all  my meals. It took a couple of weeks to start weaning myself off my usual foods, and finding non-sugar substitutes, and it was difficult, but I had to do something or else my life expectancy was only going to be 7-10 years. I'm only 60 and I was scared.

After the transition/weaning 2 week period, I became more vigilant. (when I would have a temptaion to cheat, I would remember that I would be feeding those nasty fungi in my lungs). After the next 2 weeks I noticed a SIGNIFICANT improvement. I was able to reduce the ephedrine from 5 tablets a day to only 1 in am and ½ in pm. My prednisone is now down to 5mg a day. Over the next several weeks I am planning on completely weaning myself off the prednisone, and then the ephedrine.

My 2-hour coughing fits occurring 3x a day, are gone. Once in awhile I will cough up a little bit, but nothing like the horrible coughing sessions like before. I have more energy. Definitely breathing better. I wear a mask (3m #1820 procedure mask filters >99% of bacteria and particulates) whenever I suspect I may be in an environment of impure air. We treated our house with Mold Bomb aerosols to kill the mold. Also treated the workplace. But I have to stay out of the barn and away from hay and straw.

Also try to avoid going out in cold weather unless you wear a protective mask.. Cold air irritates my lungs. I also know I don't get enough sleep, and I must change my sleeping habits. Try to get 7-8 hrs of sleep a night. Best time to sleep is between 10pm and 5am...for some reason the body seems to rest better during these times.

 There are vitamins and herbs that are also helpful and a good naturopathic practitioner can help with that. There's a lot of online info too.

I recently learned about the buteyko method of breathing which is also very helpful and lung flutes which use sound waves to help clear out the lungs.

All of these things are new things I have learned about and all are very helpful. I finally have new hope of getting my life back and livng many more long years of life!

I hope this is helpful to you also!.

Thankyou xxx

Hi,  That is a very innteresting bit of info.  I have always wondered about mold as my daughter has asthma and I know we did have an issue with mold in our home and had to have one of the walls replaced because of rising damp.  I have always wondered if this has contributed to her asthma and I imagine it has.  

I come from a family who believe strongly in natural medicine (my sister is an accupuncturist and my mom just seems to have a matural remedy in her books to everything!) Mold was the first thing my sister mentioned.  In addition to this, I live in London the deisel capital of Europe.  My sister has already sent through natural remedies that are good for the lungs If you are into the natural end of things here are a few things she sent through.

Tai Qi is good for COPD:

Breathing excercises:

http://www.copdfoundation.org/What-is-COPD/Living-with-COPD/Breathing-Techniques.aspx

A few questions,  have you had a spirometry test to know if your FEV1 has been affected?  And were you officially diagnosed with COPD?  Is there a test to determine levels of mold in your body or is it something you have to figure out with trial and error in regards to eating?  This is certainly something I will look into further.  Thank you so much for the information.  For now, I am off on holiday to warm sun down under and will try my hardest not think too much about this.  Easier said than done as I am really worried about it all.  A different environment may just make a difference in things.  

Many Thanks!!  Lauren

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