Doctors said I have paresthesia but symptoms won’t go away what other tests are out there ?

Ive been feeling a tingling sensation all over my body and its really discomforting. At times my body is very sensitive to cold . Ive been like this for a year it comes and it goes. I dont think ive gotten the right answers to my condition. Im 31 years old and have an anxiety disorder. Ive seen a neurologist already had a Brain MRI done recently and an EMG test to rule out multiple SCLEROSIS , a mass or nerve damage Does anyone know of a good doctor that can help me ? Has anyone in this forum gone thru this .? This is truly my last resort to get answers Im desperate TIA

Hiya I have the same issues it’s 2 years on the 11th Dec that I woke up with tingling in all my limbs I have symptoms none stop without a second break I’ve had all tests mri emg twice nerve studies 4 times bloods all are negative in the two years I’ve looked for answers none stop I find ppl like this are mostly women and sum say it’s a severe reaction to hormones have you heard of small fibre neuropathy that can cause tingling but it’s normally constant not coming and going it has totally driven me insane I’m hoping the new Neuro I have just seen can get me sum answers

Ask for a nerve conduction test. I have tingling and numbness in both arms and hands from old injuries. It was diagnosed as neuropathic pain which worsens with cold, damp weather and clears up completely when it is hot.

thank you for your response I’ve never heard of that small fiber neuropathy but I’ll look into it I’ve been like this since I had a car accident and I never seem to get better I just gets worse I’m out of solutions I appreciate your advice and I will certainly take it I’m looking into seeing a neurologist out of town maybe there’s a second opinion for me out there and I hope that you can find your answers too.

I had an EMg test Is that the same test? I started getting numbness n tingling my right side of my face and it went down to my arm and my leg now it seems to be spreading to the other side and it comes and it goes but it’s really irritating test done Came out normal I feel the same way hot makes it better I try to take hot showers and they help a little. i hope i can get a second opinion SOON Thank you for your response i appreciate the advice

Nerve conduction and emg are the same thing. I recently had one which determined i had an ulnar nerve issue.

There are two components to an EMG test: the nerve conduction study and needle EMG. The nerve conduction study is the first part of the procedure. It involves placing small sensors called surface electrodes on the skin to assess the ability of the motor neurons to send electrical signals. The second part of the EMG procedure, known as needle EMG, also uses sensors to evaluate electrical signals. The sensors are called needle electrodes, and they’re directly inserted into muscle tissue to evaluate muscle activity when at rest and when contracted.

It sounds like the car accident may have triggered the neuropathy. One of my injuries was due to a bad blood test which left me with permanent neuropathy. I have been advised by a doctor not to have any more blood tests on that arm, so I was glad my doctor diagnosed neuropathy by my symptoms alone and not by an EMG which involves needles and which could cause me further damage if not done properly. I also injured my other arm by falling on my elbow 40 years ago and I now have neuropathy there too. I have since fallen on the same place recently on two more occasions. My nerve conduction is not good on both these areas.

I have an ulnar nerve problem after falling on my elbow forty years ago. My pain, numbness, tingling and
electric shock sensations start from the elbow and run underneath my arm to my fingertips.

I might have only gotten 1 study done this information is very helpfull thank you so much IM Looking into seeing another neurologist that can give me a second opinion Are there any over the counter meds I can take in the mean time ? IM taking TRIMETHOPRIM but it doesnt help much.

OH OK thank you

Sometimes doctors only do one study if they have got all the information they need to diagnose you. I’m afraid there aren’t any over the counter meds that really help. I haven’t found anything myself. I was only offered low dose anti depressants which take too long to work if they work all and can cause nasty side effects so I refused them. There is nothing that gives quick and long periods of relief without side effects. I rely on warm weather in the summer while on holiday and have learned to put up with it.

OH ok no problem same here Thanks i really appreciate your help and I Hope u feel better .

Hi funny you should say you were in a car accident as I was as well but Neuro say this hasn’t caused my symptoms ,this started 6 months after it, I also have great relief from a shower I have like a 10 min window where the tingling is milder then it builds up again ,this isn’t normally what happens when ppl have nerve damage as normally nerves go crazy with heat or cold and react worse ,so Neuros are at a loss what to do with me we sound alot alike

You too!

It sounds like your car accident did cause your neuropathy. It is too much of a coincidence that symptoms began 6 months after your accident. Doctors don’t always give the right answers. My elbow pain went away four days after I had banged it and it returned permanently 6 months later. 40 years on, it has turned into neuropathy. You know your own body.

you might have Mononeuritis it’s where your nerves are attacking your body I was recently diagnosed with it .its a autoamunine disease and I also a form of neuropathy that is so severe in both feet that it caused drop foot in my right foot I just started these treatments called IVIG it’s where they use blood plasma from various plasma donor s with medicine called Octogram it is suppose help with these conditions Mononeuritis is not fun at all I tingle and burn all over and in serve nerve pain I take Gapentin for it it helps some but not really so I would ask your doctor to see if that’s what you may have also .

YES WE DO ! Oh man i felt alone in this but as i see im not I FEEL ya Im out of options

Thankyou so much for your post sherri in 2 years I have not heard this before and I’ve heard allsorts I’m going to look into it it may be lifeline you’ve given me ,I have none stop tingling in a stocking glove pattern without a second break it has utterly ruined my life my nervous system has become so over sensitive now that my finger tips are connecting to my right foot permanent so everything I touch I feel the sensation but also a nerve signal in my right foot at the same time ,it intensifies the tingling ,it is so severe right now like I’m strapped to a tens machine through my legs and hands I was perfectly fine till I woke up this way on 11th of Dec 16 ,it spread within 12 hours into my hands I’m going to read up on this now and see if it could be what I have Thank You xx

How old are you how’s your walking strength etc I’m better when I’m up and about when laid in bed it’s horrendous sitting down is also bad

IM 31 when im in bed im the most comfortable But when i start my day The tingling starts I can walk well n my strength is still ok Im just afraid it might get worse with time. .My body aches at times like im catching a cold but i get no fever or weakness . I have gone to the ER Several times blood work shows nothing is wrong .