Do any one suffer from burning feet at night and also the tips of their fingers. I get very hot at night ant I toss and turn because of my feet burning up. Sounds silly but was windering if anyone gets similar symptoms??
Yes! When I had a relapse, I started having all sorts of nerve symptoms, like burning, tingling, and heaviness in my legs and arms. I've read that one possible cause for this is that the small nerve cells in the brain are affected.
Yes! Every night I have to stick my feet out from under the duvet or else I'd never get to sleep. Still toss and turn all night though. Fingers not too bad but I do have heaviness in my legs. Didn't realise that this could be one of the sumptoms of CFS though .
very common sympton... its a nerve issue.. mine when i go to replase goes from burning to full on pain. Feet so sore i can hardly walk.. also problems with hands and burning to the face and most of skin on the body 
i can only add in, me too... often leave feet and legs exposed...
Yes, I have had burning feet but not the top parts of my feet, just the underneath, like really, really bad sunburn heat.
With me it's my hands, they go red and feel hot and throb, most annoying when I'm trying to sleep...especially as the rest of the time the always feel cold..
hi
Yes, I do.
One of my worst experiences is around bedtime. I can anything up to two hours to get to sleep !
I am very aware that my husband has to put up with me tossing and turning every 5 minutes. We have talked about it because I feel so guilty! particularly as he works full time in a very stressful job. I started by going into one of the spare bedrooms but quickly realised it was affecting him emotionally so try now to stay in our bed and work through it.
Funnily enough, last night I decided to start my relaxation/meditation/breathing techniques which I have been reading up on and It took much less time to get to sleep and this morning, I woke at 7am feeling so refreshed; I was even afraid to get out of bed in case it was a dream !!!
Well, that's my story and I hope it will continue to improve day by day.
If you haven't already, give it a go.
The meditation techniques are called Chi Kung.
Good luck Rose
jinny
hi again
By the way Rose, since taking the smallest dose of Lustral, 25mg for 4 weeks then up to 50mg, I have noticed a huge change in my hands and feet.
They are no longer freezing cold.
I discussed it with my doctor first and he agreed I should give it a go.
His words were, "You are one determined lady!"
Not sure whether that is any help for you.
My cousin and sister both have ME (16 and 10 years respectively) and that tablet has worked for them. My cousin is recovered and my sister is well on the way.Best wishes
Jinny
Me too, I also need to keep my feet out from under the duvet. I know it sounds strange but I also shed my toe nails once a year for the last couple of years... I know "Strange"
Hello everyone,
Yes! I have explained this to my neurologist many times and he gave up on me and offered no real explanation except it's post viral symptons.
I had this so called post viral fstigue since September 2014. I am not as fatogue anymore but I find numbness / tingling in my arms and legs. Not constantly. It comes and goes. Similarly I have burning sensations particular in my left leg. It bothered me a lot before. I know it's hard try not to let it bother you as stress makes it worse ... I take cod liver oil and magnesium tablets since September but I do not see a real change ...
Does anyone here get aching feet. Soles and heals. Although it is not excruciating it is uncomfortable sometimes like tender. This is my main concern.
Much love and healing everyone
Elle
Thanks Jinny, I will look it up. Elle I also get the aching in my heals and soles, especially when walking
Mine don't burn, they itch. Just between the toes. It's distracting, but I put some lotion between my toes, and I can usually sleep.
Some time feeling burning feet night and day also kindly suggest me what to do
not much you can do... it does settle on its own , then comes and goes from time to time. As long as you have had your overall health checked i wouldn't worry its just another symptom .
I have the burning pain and shooting pain in my feet and Lower legs.
it is especially bad at night.
ive been prescribed 25mg of Lyrica. It has reduced the pain but unfortunately not enough to have a good night of sleep.
neurologist would of prescribed me a higher dose but I’ve got stage 4 Chronic Kidney Disease. My other problems are osteoporosis through my entire spine.
i also have Urinary tract difficulties, Anemia, hypertension, enlarged prostate, problems with both knees and type 2 diabetes.
I’m 51, no longer working. It’s a difficult ride.
What folks are describing here sounds like peripheral neuropathy, or "small fiber neuropathy/SFN." That is what it is called in my case. I had a skin biopsy (punch test) which found nerve damage. If you are experiencing symptoms like this, you really should see a neurologist. Mine ran many (many!) blood tests to rule out the many known causes of SFN. So far he hasn't found anything, which of course is typical for ME/CFS. My SFN symptoms are painful enough to qualify me for medical marijuana (it is legal where I live), which has an excellent track record for nerve pain.
What exactly are you diagnosed with? How long have you been having the symptoms?
IM diagnosed with ME/CFS and hyper pots. My doctor did wonder if it was more serious like MS... but now i now its not.. This was written 3 years ago when the symptoms where really bad but they have settled somewhat over time. It turned out to be hormonal and in fact Peri Manopause. Its a common symptom when going through menopause I think it was mad worse by the ME and the pots which is why it was so severe . Both myself and my doctor did not make the connection even though at the time my female hormones where clearly on the fall.
Asked my Naturopath about the burning sensation on the bottom of my feet (mostly in the arch area for me - and seemingly just under the skin) and his off-the-top-of-his-head response was that the body often moves perceived toxins to the feet and hands to distance them from the heart. I get some relief when I do a foot soak before bed - more so when I do it for a few days in a row. I just use a little sea salt and epsom salts in warm water. I don't know how much this supports detox , but it does incrementally decrease the intensity of the burning sensation that's otherwise so distracting at bedtime, and feels like good self-care.