Does any one know any specialists in Retroperitoneal fibrosis in the UK
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My husband (referred to in Comment 1) was treated and is now monitored by Consultant Urologist Mr Kevin Thomas in Gwynedd County Hospital, Bangor, North Wales. I'm sure Mr Thomas himself would hesitate to describe himself as a 'specialist' but he has probably treated more RF patients than most, is interested in this relatively rare disease and is most approachable and understanding.
Angela Parry
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You may find a UK specialist and get other worthy opinions by joining a RF Support group of over 340 members : Contact -
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I'm a member in the group.
Gary
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i would like someone to email me to let me know how to join a support group for rf.
my email is
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Hi,yes there is a fantastic specialist in the royal liverpool teaching hospital,called mr Calvert.he is currently treating my partner,and with fantastic results.good luck.