IIt seems it's only me doing my own enamas and not taking anything else,,
Hi Barbara,in my opinion it's best to attack from both ends as it were!!!
Hi Jill, well last time Iwas on mezaline granuals. and that put me in hospital ffor 11 days with pancreitus.It was awful. so im scared of going on anything new again. If the enama fixes one side of the colon, why would you need something for the other side.as I have got left sided uc. xxxx
My whole (or hole!) colon is diseased so I use 2 * 2 Pentasa tablets for the top and a nightly Salafalk enema for the bottom. I've tried reducing this to a couple a week but I lose too much blood without them daily.
Not a big fan of @rse rockets but needs must.
Hahahahaha!!!!!!Rockets..Do you do your own enamas? I had nurses coming at first but you never know when they are coming or even if they will come, So i have learrnt to do my own. Thought i would never do it at first. But now I am a dab hand!!!!!! Babs.
I have started to reduce enamas. Ican get away with reducing 2 a week. at weekends. All ok up to now!!!!!
Do it myself! I have to collect 4 boxes a month (7 each month).
Its second nature now, lie on left side with knee raised and in they go, have to remain in that position for 30 mins so I just do it in bed now and when about to go a sleep, I just make sure im careful (hygene wise)
Don'tyou get fed up with doing enamas every night? I do It's not just 2 minutes of a job is it .you lie on your left for 1/2 an hour then you have to get up again to go to the toilet.then go to bin with the empty tub.Ithink it's a right fag. sometimes you are too tired to bother.What have i done to deserve this??
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Hi Barbara,do you not do enema in bed last thing at night? Take a carrier bag with you for empty enema and dispose of in morning. The longer you can retain the meds the better so if you can stay in bed and hold it in until morning all the better. Do you take oral meds as well? Xx
Hi JILL nO I DON'T TAKE ORAL MEDS AS WELL AS LAST TIME HE PUT ME ON THEM I ENDED UP IN HOSPITA L THE DAY AFTER FOR 11 DAYS .I HAD TO RING AN AMBULANCE AT 2 IN THE MORNING WITH BLOOD POURING FROM BACK PASSAGE AND TERRIBLE PAIN IN TUMMY. THEY SAID THE PILL HAD GIVEN ME PANCREATITUS. AND I AM ALSO ON WHARFARIN .IWAS SO WORRIED ABOUT GOING ON ANOTHER MED THEY JUST SAID WELL JUST DO THE ENAMA. AAND ITS MAKING MY HAIR FALL OUT SO I DONT WANT TO TAKE TOO MUCH.
Going on holiday and having to do enemas. in hotel room .What a fag !!!!
Just have bin liner handy and try not to get up after using,ie use just before sleeping,fag I know but if it controls UC well worth it I say! Good luck x
Thankyou for replying Jill. Does it never get you down thinking this is for life now? xx Also when i was taking mesazaline in the morning my ankles feet and legs swelled terribly so I am definately alergic to mesazaline .do you know if there is any other foam enamas beside mesalazine?
I know there is a steroid enema Barbara xx
Jill, mine is the steroid. It's called salofalk enama Mesazaline. What is yours called and I will try and swop.
Mine is 'Pentasa ' still mesalamine tho
Have you noticed your hair going thinner?
Going to see Doctor on Monday and he is going to put me on a different enama. called Predfoam.Hope it stops my hair falling out.Don't want to be bald for Christmas.xx
Are you losing any hair James?
I'm a 43 year old man with a 4 year old boy, stressful job and UC - yes my hair is receding rapidly! I don't think it's Pentasa or Salofalk enema related though!
If you're worried about hair loss then I'd inform your IBD nurse or consultant and maybe they can prescribe you something different.
Neither are controlling my symptoms at the moment.