Does anyone else feel like this

Brain and nerves
1

I am still under investigation at the moment, but I have been doing well over the last 6 weeks I haven't crashed, since I significantly cut down on my activity. I am waiting now to see a immunologist as my bloods are not right, however I just wanted to see if anyone feels like this:

every morning when I get up I feel tired with no go in me at all, I am so slow, and need get up earlier to plod round n get ready for work, I do have a rest too in the mornings, I feel like I can't be bothered as I don't have the energy. Don't get me wrong I don't feel ill like I do when I have a flare up, but since my last crash I just haven't felt like I have any go in me, whereas previously I would get a few weeks where I felt like I had energy before I went I'll again.

i do find that towards lunch time am not as bad and my tiredness and lack of energy picks up, I feel like am about 80 in a 37 year old body.  I can manage light stuff only but can't face anything strenuous 

does any one else have similar experiences?

thanks very muchly x

2

Hi, you describe it very well. I have CFS and when I was working I felt exactly as you describe. I find that you can either have boom & bust or a more steady but generally more flat feeling. I think from this position you should try graded excercise therapy.... Don't know if it works, people seem to have mixed results.

My understanding is that boom and bust will lead to a worse condition in the long run.

3

Hi,

Firstly, well done for sustaining work and agree, definately a good description.

A crash for me means absolutely unable,my  non crash is a constant restriction and iniability to sustain very little.

The ongoing restriction in life on a day to day is incredibly frustrating. I have self taught myself to pace and try and keep within the boundaries so not to crash but tbh my cfs/me has a mind of its own .

Thank God for my support stystem of close friends and family.

x

 

4

thanks so much for your reply, i do feel very flat at the moment, as if my mojo is missing. I just cant be bothered with most things, but am not depressed, i manage at work as i am sat down all day in front of a computer, but no motivation to do anything if that makes sense.

5

thanks for your reply, i still havnt had definate diagnosis yet, so its really interesting to see that i do match the symptoms of what others describe .

maybe my last few crashes (which were happening every 3 weeks) have left me this way now, am lucky to have gone 6 weeks now with what i have been doing, which is fab

xx