I just wondered if other people were the same. Some days I feel like I have nothing wrong with me but this week I can hardly move and in agony.I'm
Still struggling to go to work because haven't been able to claim anything.
Really struggling to know what to do
I am exactly the same.My condition can change within a day.I can wake up feeling ''normal'' as if someone up there is giving me a glimpse of normality but by the end of the day I can be exhausted and in pain.
Hi ingrid I'm the same im 48 and I feel 70 pain from my fingers to my toes the medication doesn't do anything for me 💖
Yep. That is the roller coaster. Usually there is no rhyme or reason. But keeping a little notepad is helpful. Keep track of food, activity & stress or emotions. I found out a lot that way. See, when we feel good, we LIVE and put all the bad out of our minds. So well do things to make it worse. Don't go all obsessive, just pay attention & you may find some of your triggers.
Even so, its totally normal.
we all have those days you just have to learn to live with it i am in a stage of chronic fatigue now yet two weeks ago i couldnt sleep
I feel exactly the same. I can change in a day. I feel groggy and stiff in the morning, fine by lunchtime and in a lot of back pain by the afternoon. By the time I finish work I feel exhausted. I have only just been diagnosed though and only taking over the counter painkillers at the moment
hello ingrid 19972
I certainly experience times when the pain level changes to some extent but am convinced that there is an element of allergic reaction, e.g. I am usually much worse in cold weather, like now; in england anyway, but apart from cold and damp making arthritic pain worse in general there seems to be a link to something connected with the weather change like, possibly, some additive in the gas supply. I have had 25 yrs to weighit all up and something causing extra sensitivity seems definitely to be a part of it.
Just try to think if there is anything different going on when you have the pain at it's worst. I am trying to collect info on this. How about food and/or water?
I can only hope that things improve for you. More is gradually being learned about fibromyalgia so hope is never gone.
Brenda
Re: foods. Oh how I know what you mean. WTF is that about anyway? One day its fine and the next hour body has an allergic type reaction...to the same exact food. Makes an elimination diet difficult. Lol
Sounds like Adrenal Fatigue. Medical diagnostic methods don't detect this type of disorder until it becomes a full blown disease. They just give you pills anyway, that happen to only make it worse.
Check out info on the HPA Axis, Chronic Fatigue, Fibromyalgia, etc. They all have a common theme. Biochemical imbalances that affect the nervous system. Hormones. They control every process in our body. One jacked up producer or receptor and everything else on down through the processes is doomed. Sounds catastrophic but its just biology, the endocrine system.
Taking care of yourself is the best thing you can do. And don't stress the blank out when you don't meet your own expectations of how you should be!
Hi ingrid I'm in pain most days, when I wake in morning my arms and hands are numb I'm so stiff, I can't get to puty socks on or shoes and when my back is bad I can't walk far ive had this for about 4 years since my daughter went live with her dad it broke my heart I didn't want to live I was in limbo for nearly 18 months I got diagnosed about 5 months ago they not got my meds rigjht yet and I get no pain relieve Doctor gave me no morphine patches but they gave me bad heads and horrible taste in my
Mouth I get so low and depressed my legs feel so irritable just want chop them off xxx
So is this all from fibro or do you have a spinal injury or nerve injuries? I KNOW fibro can be so bad it doesn't seem possible to be that sick. But I need more info.
Yes hun all fibromyalgia one day I was crippled walking by late afternoon I was like a different person I can't work coz of it as I can't stand or sit for long anxiety, and feel panic attacks all fibromyalgia related now I'm starting with irritable bowels, but I won't give in to it but I'm in lots of pain waiting to go pain clinic and occupational therapist to come out see me as I struggle opening screw tops lifting heavy pans kettle ect it's horrendous xxx
Hi Ingrid,
Yes I am the same, absolutely! I think its when I have rested for a few days and the pains have subsided slightly that I start to think either A its gone or B I never really had it in the first place, lol. Its just so unpredictable, dont you think? And then when you have a bad day it can bring me crashing back to reality, leaving me upset and angry. I take my hat off to you for working, I really dont know how you do it, well done. I gave up work gradually as I was getting more and more fatigued and never had a clue what was wrong....got my diagnosis this September. I am sad at needing to leave though. Also you should try claiming again, send as much evidence as you can and dont give up trying. All the best Ingrid and let us know how you get on. Regards Angie x
Hi Ingrid,
I know how you feel, today I am in lots of pain can hardly move. I have tried twice to claim, but got knocked back as usual. I know someone who lives in Nottingham and was diagnosed with Fibro just 2 months ago, and her partner claimed a blue badge for her, and got it..Its just not fair All us people with Fibro no matter where we live should be able to claim..Good Luck..Anne..
Hi Anne,
Just wanted to let you know that FM is recognised by DWP. You can find and read submissions where cases have been fought and won, online through http://www.disabilityrightsuk.org/, under Benefits: Case law Summaries. Try and get someone to help you with your claim, if you can. It doesn't have to be a CAB or Welfare Benefits adviser it could be a friend, family or colleague. Hope this renews your vigour. Good Luck. Kind Regards Angie x
its not fare but life isent ,i had a badge but to be quite honest trying to find a space were you could use it was just to stressful at times and if you did find a place there were usely full . so i never bothered to renew it.
thats not to say that i dont think there should be more places for people with dissabiltys to park for free life is hard enough with out hinderence .
if you look on line at the gupa programme it tells you why you feel the way you do ,it explains things and it all makes sense . there is a free sample . you dont have to commit to the programme .
although i am going to within the next few weeks .iv always inteneded to beat this and get well and this is the only chance that i can see at present of doing it. take alook it cant do any harm listening and looking at the info.
Thanks for your reply.I'm afraid I have to work because I have a mortgage and can't claim anything so would loose my house.I will try again I don't want to give up work just wanted to do less hours.because I think I would get too depressed at home x
I have no choice Hunny im bad ive put a claim in for disability p.i.p to help me with my every day living my neighbour comes in and helps me I can't walk more than 50 yards with out being in so much pain I just want my normal life back its took over my life but I'm still fighting it xxx
Stay away from sugar and anytying that turns to sugar in your body. Except kefir or yogurt. I'm not all better & life sucks with no meds but just that decreases inflammation enough to make you never want to go back.