Does pregnancy have anything to do with the onset of LS?

Sorry this is a long post:

I was diagnosed last Monday with LS. I am so depressed - I have had pain, burning and soreness since the end of October when I first became pregnant. I had a swab taken and came back with Strep B which I had once about 4 years ago and remember I got vulva soreness for weeks after. Until now I have not had any problems. I am 29 years old and had been trying for a baby for over a year. I ended up having a miscarriage at 10 weeks and was bleeding very heavy for 2 weeks. I had to have 9 internal scans which made the vulva pain so much more worse and made me tare. I ended up also getting a bad urine infection with awful diarrhoea and was admitted to hospital for 5 days as I was so dehydrated. When I was in hospital they gave me Trimovate cream which seemed to help a little and used it for 4 weeks. I then started my period and stopped using it for 2 weeks and things seemed to settled. I went to see a vulva specialist who diagnosed me with vulva LS and told me to start using the Trimovate cream agaom and prescribed me some tablets to take for the nerve pain. She said she could tell it was LS as I had white patches, redness,tares all around my vulva and anus with skin changes.

Things have got worse within the last week and am going to see the specialist on Saturday morning at her private clinic. I have had to take more time off work as it hurts so much to even wear knickers. The nerve pain also seems to radiate up inside my vagina and sometimes when I urinate I have white like tissue/skin in my urine. The consultant said for me to stop using the Trimovate cream until I see her on Saturday.

I don't know how I can live like this. I haven't had sex with my husband since September and we are both desperate for a baby. I really feel like I will never be able to have sex again as I am in so much pain.

Did anyone else first get LS when they first became pregnant. Has it settled down? Did anything help it settle down?

I feel like I have no hope anymore and will never enjoy life again.

I just wanted to say how sorry I am for how things have been for you, I had two miscarriages and know how painful the losses are.

I dont know about how this will effect you as luckily I did'nt have these problems until my family was complete and mine almost seems o be linked to me being sterilised although nobody really knows waht and why this happens.

I am awaiting biopsy on 25th march so won't know for definate until then that this is my problem although GP and Gynae both mentioned LS!!!

I wish I had some advice to offer but I don't but I just wanted to let you know your not alone XXX

Hallo Mickey1. From what i understand you were to return to the specialist today Saturday. I hope the visit went well for you. Keep posting.

Thanks for replies - they mean a lot.

I went to see the specialist today (this is the 2nd time I have seen her). She thinks I may also have pudendal nerve damage as well as vulva LS and that is why my burning pain is so much worse on one side of my vula and is also why it is effecting my bladder as well. I have got to double the dose of my tablets to help the nerve pain. I have got to see one of her colleagues who deals with pudendal nerve damage and might have to have something injected into my spine. Not sure when I will get an appointment with him but she said she is going to ring him as I am an emergency due to being in pain since the end of October.

I am sure things were made so much more worse because of the 9 internal scans I had when I was pregnant. When they did them they were not exactly gentle.

Just want the pain, burning and soreness to go - it is so tiring to be in constant pain. The only thing that keeps me going each day is my husband, mum and brother.

It really helps looking on this discussion board to see I am not the only one going through this.

Hope everyone else is finding a way to cope xxx