Aged 71 and my biopsy result was 'chronic inflammation'. I've noticed that things become worse - itchiness increases etc. - if I've been sitting for any length of time, usually in the evening, watching TV or reading. I always use a spray of water and sometimes coconut oil after I've been to the loo.
I'm using Dermovate intermittently, when things worsen. My GP said to use it when I was itchy, but I have no regime, and the obvious inflammation, principally at the back and inside the labia, has never cleared completely since I first saw my GP. My appointment with a dermatologist is on Thursday - I've had to wait three months - so, perhaps I'll know more after this.
Have others found that sitting for any length of time makes things worse? Apart from jumping up every ten minutes, anyone got any advice?
Hi Ann I too watch the video and it helped me to understand LS a lot better and I am doing as he says and it is really helping ,and using Emu oil after going to the loo
Hi, I think sitting or standing for a long while irritate it, my gynecologist said whether I have a flare up or not to put sparingly hydromel ointment every night and morning it really helps, its a barrier ointment so when you wee it shouldn't affect you. Also she told me not to bath so often as water annoys it. Any tight trousers annoys too. I have stopped wearing knickers and that's been a big improvement. You can get hydromel ointment on Perscription or at boots. Make sure you get the ointment and not the cream. Hope you feel better soon.
Hi Ann, thanks for your reply. So sorry to hear that you have major fusing and now concern over the sore. Thank you for telling me about the Dr Goldstein video and I'm going to watch it this afternoon. I, too, have been using the Clob about once a week, as advised by my GP, now that the overall inflammation has cleared, but there are still two inflamed areas remaining that have never cleared. The dermatologist I am seeing is a specialist in vulvar problems, so I hope she will advise me further, but I think it will be a case of increasing the steroid, as you said. It will be good to speak to somebody who really knows about it, as, although my GP was lovely and very concerned - he did the biopsy - he's obviously not going to know as much as a specialist.
I do hope that your biopsy goes well and they are able to sort things out for you. Thanks again and take care.
Hi Ann. This is a repeat of the post I put below, as I didn't post it as a reply to you. Thanks for replying. So sorry to hear that you have major fusing and now concern over the sore. Thank you for telling me about the Dr Goldstein video and I'm going to watch it this afternoon. I, too, have been using the Clob about once a week, as advised by my GP, now that the overall inflammation has cleared, but there are still two inflamed areas remaining that have never cleared. The dermatologist I am seeing is a specialist in vulvar problems, so I hope she will advise me further, but I think it will be a case of increasing the steroid, as you said. It will be good to speak to somebody who really knows about it, as, although my GP was lovely and very concerned - he did the biopsy - he's obviously not going to know as much as a specialist.
I do hope that your biopsy goes well and they are able to sort things out for you. Thanks again and take care.
Thanks for your reply, Chinney and also for telling me about the Hydromel. I do have regular baths and also wear trousers! So, I can see there are going to have to be some changes!
Hi, I'm 60, I'm gutted I can't wear my skinny jeans anymore, I wear palanca trouser in the summer don't know what I will wear in the winter. Some people on here say to use borax and bicarbonate, but the specialist at the vulva clinic was horrified, she said its use is a caustic detergent, I use to bath lots as well, now I have one every other day, on the day I don't have a bath, she told me to pour just a cup of water over it, it does the job. Good luck for Thursday when you see the specialist 🍀.
Had my results for biopsy, they want to do further investigation, rang the hospital and asked for someone who could ring me with more details, which a nurse did, she said I had cin3 and they would remove the affected spot, she said it wasn't cancer , they are pre cancerous cells which they will take out, she said she would send me leaflets explaining, I received them this morning, but on the leaflet it said VIN, So I think I have LS and I've had it for sometime, I have patch on my vulva which never goes properly away.
Hi Chinney it soundseems as if you and I have something similar. I have my biopsy in about 10 days, I was told that it was likely to be VIN which is a precancerous condition usually in older ladies which can be removed then followed up regularly. Not a nice prospect but I am trying not to worry, will try to take things as they come at least at 72 it is not the tragedy it would be for the much younger ladies. Goodles luck keep in touch.
I hope it all goes well for you, Chinney. The good thing is that they've caught everything early. Went for my dermatology appointment this morning and the clinic had been cancelled! To be fair, they had been trying to get hold of me, but we had left the house before they had phoned the landline. I hope I don't have to wait for another three months!
I hope the biopsy goes OK, Ann. As you said, not a nice prospect, but it sounds as though things can be dealt with in a fairly straightforward way. Best of luck. Do let us know how you get on.
Hi Ann, I get open sores, I've been told I have vin3, I'm waiting to get appointment to see a different consultant who will remove the pre cancerous cells, I'm just using hydromel ointment as I have been prescribed anything else yet. Take care.