DREAM

Bones, joints and muscles
1

I DREAM OF HAVING A LONG LONG SLEEP.

I DREAM OF NO MORE PAIN.

I DREAM OF PEOPLE UNDERSTANDING.

I DREAM OF COMPASSION

I DREAM OF THE PERSON I USE TO BE.

I DREAM OF WAKING UP TO MY OLD LIFE, AND HOW THINGS USE TO BE.

THEN I WAKE UP TO FIND IT WAS ALL A BAD DREAM.

I AM ME AGAIN WITH MY CHRONIC CONDITION.

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2

Hi Kaz

I can't even remember when I last felt absolutely fine

As I read that, I thought, if i could have just one of those dreams which one would I choose? What is the most important?

I could not pick one over another as each one is as demeaning as the next....

x

3

Just keep on dreaming. One day, there will be a cure for us. I hope!

4

its really really hard the daily battles we have to face so draining. wish we could all wake up 1 day to find it was only a bad dream. but we are what we are now we have to move forward how ever hard it is. at least on here we have each other, we all understand what we are all going through and how it affects us. having this forum is ablessing for  us all x

5

I hope so Anne sonner rather than later would be good? 

6

Yes Kaz, this site is great x

7

I'm definitely dreaming of SLEEP and to be PAINFREE.

Once again well put together Kaz.

You are so inspirational. Thank you  xx

8

 Thank you Bee x gentle hugs x

9

its a shame we have to wake up to fibro cause its such a lovely dream to have about the person we once was and its a shame that its not a reality instead of a dream but i would love to dream that dream and hope my medication has been sent to the pharmacy as im not sleeping to good was meant to have had it yesterday but my doctors did not send it over and there not very understanding they dont understand that im in constant pain and when i cant sleep it makes it so much worse it even makes me cry and im not ashamed to admit that but i just wish people could be more understanding and could be educated better where fibro is concearned

10

Hi kaz I feel your pain sweetie back at doctors tomorrow I suffer from my head to my toes I'm lay in bed at min feeling really low in so much pain, my arms hands fingers list goes on ... It's getting me down I never complain and try solider on but enough is enough tonight gone upstairs to suffer in silence xxx

11

Great Kaz....it doesn't sound like a bad dream though..that's our hope..

"one day" .......that's what keeps us sane..one day there will be a cure..believe that...I do...it keeps me going..have a blessed day..:-) xx

12

we can but hope for a cure 1 day until then onwards upwards hope you have a good weekend and not too much pain take care gentle hugs xx

13

Ahh bless you Jackie please dont suffer in silence you have us on here. we understand what your going through and how it makes you feel. weve all got the same t  shirt and in the same boat. Its a very hard condition to deal with. with our daily battles and constant pain. its living hell. hope all goes well at the drs we are here for you and each other take care gentle hugs xxx

14

hi derek it would be nice to wake up and not have fibro may be 1 day that will happen. hope your medication comes today and you manage to get some sleep. it would help if gps were better educated in fibro they need to be. 

15

What medication has helped with fibromyalgia.? I'm on Pregablin and suffering with the side effects. Tried amitryptiline which did help sleep but not really the chronic pain. I had to give up work feeling pretty useless now. I'm due to travel with my daughter and don't want to let her down by being in pain. The Pregablin is helping the pain but I'm feeling low and having mood swings. Also feel very sick all the time and can't sleep. Any advice would be appreciated. I only have 5weeks before trave. I have put on 5lb and can't get into holiday clothes oh dear

16

morning Magrid I am unfortunatly unable to take tablets for the pain, as Ive had severe alergic reaction to everything Ive taken. the last thing I tried was a pain patch I was so ill my husband had to call a dr out. I just use hot water bottles and whaeat bags. I would go back to your g.p if you have any side affects with tablets or their not working your gp needs to know. I would see your gp as soon as your able to.sleeping is a big problem with fibro some people have sleeping tablets. you will find pain wise its trial error as some tablets work others dont. sorry Im n ot much help. but a part from hot water bottles wheat bags thats all  I use.I would get into see your gp this week if you can just explain everything to them. hope you have alovely holiday. take care gentle hugs 

17

Thanks Kaz. I want to tear my head off at the moment. My Gps are too busy to care really so I don't think they'll help. I'm coming off the pre gablin this is unbearable even if the pain is better. I'm like a monster

18

Hi Magrid

I were on Pregsbalin for 8 months with dreadful side effects, including feeling as though I were drunk (I wish) I also put on nearly a stone with them. Asked doc to take me off them, he said no your body will get used to them..So I thought, its my body, and i will wean myself off. I took me about three months, I felt better off them and lost the weight. I had nothing only Paracetamol for a while, then decided to go back and see another doc. He understood, and put me on Oramorph. Been on that now for 3 years. Its ok, takes the edge off I can cope with it except when I have funny turns like I did on Saturday. I am ok now, off to th doc's in a while. have a good day if you can. And enjoy your holidays.

19

I did try pre gablin in the beginning but just did not agree with me at all. My gp has tried me on everything thats going. the problem we have as fibro suffereers is no 1 understands it. drs need to be better educated in it. could your gp refer you to apain clinic, they may be more supportive and helpful. also my local health authority provides 12 weeks free acupunctre, it didnt work for me but we are all different. and free hydrotherapy for so many weeks at our local hospital also they can be refer you for CBT. trouble is its now that you need help because of going on your holiday. I just took my wheat bags and hot bottles when I went a way just hoped for the best. I was ill for 3 days car journey knocked me about I was in alot of pain. Its a nightmare trying to do anything when you have fibro. I wish I could help you more, I just tend to get on with it and grin bear it. theirs not much help support out their for us. you could see if your area has a support group. and see if your gp could offer you anything.sorry Im not much help too you. but with meds you will find that many of us have had to try different ones to find what suit and many of us dont take tablets because of the side affects. 1 lady on the forum did mention solphadine you could ask the pharmacist about that. hope you manage to get something and some help. take care gentle hug