DVD - PMR/GCA

Hello everyone

Has anyone else watched this wonderful DVD \"You are not alone\"?

I've just received and watched my copy and feel so grateful to all those people who have given their valuable time to help highlight the existence of PMR and GCA, including rheumatologists, a pharmacist, a physio, a dietician, an MP and, not least, that little band of tireless fighters in the North East Support Group.

For all the newly diagnosed people seeking help on this forum, this DVD answers all the questions and best of all will take away that feeling of being alone and isolated when PMR or GCA strikes.

For all the not so newly diagnosed sufferers, the DVD consolidates a lot of what we have read on this forum, plus more, and mainly I found it left me

with a warm glow that people out there are now actually listening and caring and acting to try and find a cause and a cure for these potentially devastating conditions.

(Sorry but Patient Admin have removed an email address from this posting, as it is the policy of Patient UK not to publish these on this forum.

If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.)

Hats off to the wonderful Mrs K and Co!

MrsO

25447 Posted by : BettyE

Joined: 20 Feb 2010 Posts: 65

Post date: Sat May 22, 2010 3:56 pm

Post subject:

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My DVD arrived yesterday.

What a splendid example of what co-operation, generosity and hard work can achieve. Grateful thanks to everyone. BettyE

Hallo again Mrs.O. Yes, I second everything you say.Betty

Hello all

Yes I have been meaning to send my thanks also I had a bit of trouble watching it at first (New batteries needed in remote control !!! ) My brain has definately been in PMR space this week !!

It is very informative and it was nice to see Pam on there as I spoke to her on the phone when I joined PMR Fighters

So many people have put so much work and persistance into all this as doors dont always open the first time you knock I know !!

Thanks to all concerned

Mrs G

Mornin' all!

As you've noticed, the modertor intercepted my post last evening - it wasn't an e-mail address that I quoted as they have stated but merely the website often referred to by our MrsK with which most of you are familiar I know but I just thought it would help any 'newbies' looking in.

Betty You are now just just tooo good at those quotes!

MrsG Think my brain joined yours in PMR space - I tried to play the DVD as a CD :ufo: !!

Have a lovely Bank Holiday weekend everyone - do hope the sun gets its hat on again!

MrsO