Hi, i really need some help last june i came over all dizzy and it was like i needed a sugar fix since that day my head feels fuzzy, i feel off balance like im falling i jerk when falling to sleep i get pressure movement in my ears and slight tinnitus if i go over a hill etc. Its ruining my life ive seen 5 GPs and only 4 have reported fluid behind the ear drum and nasal sprays. Still hasnt gone was refered to an ENT doc and he said there nothing there sent me for an MRI cane back clear but said i have a curve in lect nostril nothing he can do so discharged me i then see another ENT doc who said im to have a hearing test which will no doubt come bk ok as im not deaf in any way. So out of 7 proffesionals only 4 have seen said fluid "/ im only 27 and i have 2 children i cant live like this!!!! Anyone been in the same boat? Thank u xx
Sounds similar to what I've been going through the last 10 weeks. Is it dizziness (spinning) or more lightheaded (feeling faint and woozy) have symptoms gotten better? I'm surprised if they have found fluid that they haven't suggested surgery (grommets/tubes) cause that's supposed to help drain fluid and it's a pretty simple procedure. Have you asked about it? Any other symptoms? Facial or sinus pain? I have been feeling constantly lightheaded with blocked ears for the last 10 weeks have only been to 1 ent who said it was nasal congestion and inflammation and just takes time.. Also can't live like this I'm only 24.. Had to quit my job.. Hoping to book in with a different ent for a second opinion.
It more of a faint and woozy then room spinning.. I get numb lips on the odd occasion. Its only GPs that have reported fluid .. When i went to ENT they both said there is nothing there "/ .. So no offer of tubes or anything. Mines been going on for 7months and is really getting me down. Whichother symptoms do you get? Defo get a 2nd opinion! I heard ENT doc are not good for middle ear disorders and to try be seen by neuro otologist? Might ask my doc for a referal as ENT cant see anything x
My symptoms are constant lightheadedness, feeling woozy get headaches on right side of head and right ear has been blocked for 9 weeks left ear blocks up an Un blocks. Also get right side facial/sinus pain. They seem to be thinking its allergies but I've had an allergy blood test and it's come up negative. Am looking at going to an allergy specialist after I next see an ent (got a referral to a different one today) and a new nasal spray to try (about my 5th different one) haven't thought about neurologist yet. Have had an mri come back normal as well as full bloods normal. I also got told I have no fluid in the ear but I thought tubes could help the pressure. I bought this device called the ear popper to help unpop my ear but it can take a while to work. Definitely don't want to keep living like this so fighting for some help! Have lost my trust in doctors a bit!
Tell me about it! Ive had several nose sprays that havent worked... I brought the otovent balloon it relieves pressure in the head for abit you can buy of amazon for £7 .. I just dont understand how some ppl can see fluid whilst the ENT cant 😪. Where abouts in the country are you? Keep me updated on ur appoinments etc. They cant leave ppl like tthis xx
Also are you getting any anxiety? Or panic attacks because of the sensations? Xx
Definitely anxiety and a lot of worry. Every now and then I'll get really upset about it and have a mini breakdown which is bad because crying makes my headaches worse. A lot of rescue remedy! I've also been to the naturopath and am taking a herbal mixture I think it's helped with headaches but hard to tell. It's the lightheadedness that's the worst and some days it's worse and I can't leave the house. I'm in Kiama (Australia). I'm about to ring a list of 4 ear nose and throat doctors to get an appointment asap. I'm not sure if I trust the gps when I went back to my normal doctor he said he could see fluid and told me it was an infection and gave me antibiotics but next time I went to him he saw nothing so either antibiotics cleared it or it wasn't there.. But still lightheaded.
No luck with getting an appointment for months with a different ent so will have to keep my feb 8th appointment with my current ent and just make sure he looks at something different.
Its an absolute joke they should do more investigations i went to GP this morning and have been given antibiotics as my ear drums are retracted due to lots of mucus/fluid so how comes the ENT cant see it 🙄 Im so fed up and hoping antibiotics will work!!! X
Has your gp been in contact with your ent to tell them there is fluid? Cause if there's fluid surely you'd be a candidate for tubes/grommets and that should really help you out. Sigh it's very exhausting isn't it no one seems to help!
Its a 2nd ENT and i actually have my GP on wed b4 ENT fri so good idea i shall ask him to email ENT! Didnt think of that lol. Turnt so painful now 😢 Cud of been there a while as ive heard you can have an infection in the middle ear with no pain! Jus dizzy etc. How are you getting on. ? X
Yea it's this wooziness that's getting me. Had a few worse days lately so not great. Does your symptoms get better over time? And do you also have worse days? Some days seems to be worse and some days I have a better but the wooziness never goes and I always have headaches and pressure feeling in head. My gp said it could be diet related but I've been mainly eating Veges..nothing that should do anything.
Yes! I get better days then others.... It seems like ur GP is doing alot of guess work?! .. When u have ENT on the 8th is that for any results? .. No my symptoms havent really got any better but ive managed to deal with them better . They need to stop all the guessing and do further investigation... They need to understand it ruins out lifes! X
Yes a lot of guessing. Definitely don't trust them anymore.. On my first consultation with the ent he told me it was nasal congestion and inflammation and told me it would take time to go so he gave me a sinus rinse to do and steroids and I booked in my second appointment for a follow up which is on the 8th. Obviously what he's done hasn't worked so I'm just going to really fight it. I don't mind if I need surgery I'm just hoping he makes sure to do something to help me and I won't leave till I get some help and if not I'll go to other ents. I think it's all we can do not to take no for an answer and just keep going back and keep trying till the find something. Maybe in our cases it's only surgery that will help since its been so long with these symptoms.
Hi, sorry havent replied sooner it was my birthday the weekend so have been busy. How are you feeling? X
Happy birthday!! Hope you managed to enjoy it! I've been feeling a bit worse the last few days seems I've had a bit of a flare up of symptoms. I did manage to rebook my ent appointment a week earlier so will see him next Tuesday! Fingers crossed! Have been very tired lately too hard to know if it's from something I've been taking or just part of my symptoms changing. Have been loading up on vitamins! I'm thinking it definAtely seems sinus related as I had bad sinus pain the other day and since its been 10 weeks maybe it's chronic sinusitis just a theory at the moment. How have you been? Where abouts are you located?
Thank you! I was laid up most the day as the dizziness was intense. Thats good news! Hopefully they do something for you! I have ENT friday for a hearing test which i no i will pass as im not deaf i have sensitive hearing!!! Did tell him but he didnt listen lol. Yes i get soooo tired maybe that is a symptom. I hate being on my own with this dizzy feeling how about u? Im in essex in the uk 😁 Xx
I have to have a hearing test to. I know I've lost a bit of my hearing but that's cause my ear is blocked so it's temporary don't know how a hearing test will help. Yea I feel really alone in this my husband has been great in being supportive of me but no one knows what this feels like nor can anyone help! Have forgotten what it feels like to be normal it's horrible because it came on so suddenly and just hasn't gone away never thought I'd be living it 10 weeks later and who knows when it will go. Just going to fight for someone to help me and do all I can! Are you working? I had to quit my job because I couldn't work like this
Hopefully in your hearing test they shall pick something up im praying for you its absolutely disgusting they leave us like this they must not understand the effect it has on us. I have another GP app wed eve i want him to check the fluid again to see if the antibiotics have done anything. Im just so baffled as to why the GPs can see it but not the ENT 😫. No i dont work i have two small children but since i have had this problem i havent been able to walk them to school as walking really messes with my head! X
Yeah they really don't seem to care or even know what's going on. What does it have to take for them to realise what we are going through and that we need help!! They seem to just diagnose you with the first thing they can think of then send you away. I've been waiting about 8 weeks for a follow up ent appointment and he told me when I saw him I probably wouldn't be dizzy when I next saw him well he was wrong would have been helpful to have an earlier appointment with him but it's so hard to get appointments as he is so busy! I feel for you with 2 kids don't know how you do it! I find it hard to walk to but on days I feel better I try to get out of the house. Very boring as dizziness means you can't do much!