I hope you've now seen a haematologist Eric and are now having regular venesections.
Very best wishes.
I haven't but after nearly a year of venesections I will soon be in maintenance.It was just the unnecessary wait at the beginning that worried me at the time.
Good to hear!
I have only just started, had my first one a week ago. My ferritin was 720, so I'm hoping it will take less than a year to reach maintenance, but I know everyone is different.
Yes,it should.It tends to go down quite a lot at first.Mine went down 500 after one or two venesections.Good luck.The weeks will fly by!
Wow, That has cheered me up no end! Thanks Eric!
Hi Michelle, hope all is well and you are well on the road to having treatment. I had my 5th venesection on Tuesday and they tested my ferritin levels this time, and they have gone from 716 to 543 so it's going in the right direction.
I'm finding I am fit for nothing for the rest of the day after the venue, so I am giving into it and taking it easy to give my body a chance to recover.
Let me know how you are getting on, hugs, Jen xx
Hi Jen
that’s great news I’m really pleased to hear your doing so well and that the treatment is obviously working well for you as your ferritin levels have gone down quickly! just can’t believe your on your 5th venesection already as I can remember you going for your first! And I’m still waiting!,! Not long to go now though as my appt is on the 21st will be glad to start my treatment plan as still getting the chest and joint pains and still feeling breathless after not doing that much ...so annoying! I’ll be back in touch to let you know how it all went but for now you take care for now and do make sure you take it easy and let your body decide when it’s feeling like it needs a rest, as you are doing so well Jen xx
big hugs back to you, Michelle xx