This afternoon is my tribunal for ESA and I'm terrified .
My whole body is in total agony today and every muscle is ridged ,the shooting pains are like needles . Im so exhausted and anxious I carnt function ,so scared of want the outcome will be ,
everybody says I look so well that I think the panel will think I'm lying . im a positive person too and do everything I'm supposed to do to help me get better ,in the Atos interview this went completely against me .
Not feeling hopeful today 😒
Oh Mags!! Firstly don't wear makeup, not even lipstick ! You probably don't feel like putting it on anyway, secondly you must tell them how you are on your very worst day! I know it goes against the grain but use walking aids, walking stick etc if you have them. I know when my pain is bad I rock backwards and forwards , I can't stop it, perhaps you could do that today? It is a horrible experience but you are as good as them, the only difference is your health. I wince a lot when nerves get stuck on the spurs in my neck, I didn't know I did that my husband told me, if you can do that!
best of luck for today
Shelagh xxx
Our thought are with you today and hope all goes well, I applied for pip I had a lady come out to see she was psyciatric nurse and did pip assesments. it was another company the government use it wasnt asos with me. but this other company sorry cant remember name of it.. I havnt applied for esa applying for pip was traumatic enough for me.and on the day she came I was total wreck nerves were so bad. I even broke down crying she talked me through the form asked questions she kept asking if I was ok, she was with me for an hour.she was lovely but professional believe me these people know who are genuine and those that are fakeing it. I didnt want to claim anything but had no choice as too ill to work, my gp would not sign me fit for work. my gp wrote a letter to pip surporting me and gave them any information they wanted. take a huge breath and keep saying to your self an hour it will be all over. thats what I did to get me through it. I had my husband with me on the day it was a sat morning she came out to see me. good look thinking of you hun let us know how it goes we are with you every step of the way. gentle hug coming your way
Dear Mags, I totally feel for you and think the whole procedure is completely wrong. The fact that we can look well makes things even worse, and we can be left feeling like frauds and having to feign a bad day simply because of people's lack of understanding. I still have all this to come all I can say is the advice I have been given by a local charity who help in such cases and which is much the same as Shelagh's, you unfortunately have to pretend you are having one of your worst days. It's a shame to be reduced to this because of people's ignorance, especially since no one wants to be ill, but you do get those very bad days I'm sure so think of it as letting them know how you are at your worst rather than feigning anything. I hope this helps, and that things go well for you
Be kind to yourself
Boqer
Atos are known for being against people and different people that have delt with them havnt a good thing to say about them. your not alone where atos are concerned. try take your mind off the meeting by watching tele listening to music read a book or magazine. thats the trouble with fibro we do look well with it but no one knows whats going on inside. we get judged and not believed because because we look so well. something needs to be done to get fibromyalgia more recognised like with ms.I hope prey the meeting goes well for you thinking of you take good care of yourself here for you big hug coming to you
Good luck today Mags. I went to see my OH doc from work yesterday who advised me that I will not be entitled to ill health retirement and will have to return to work. I've been out of work since last September. Most days I'm in agony but its the tinnitus that's the worst of my problems presently. I hope it all goes well. Fingers crossed for you x
Hi julie sorry to hear what went on with your Oh doc yesterday, have you thought about aplying for pip or esa, Im having prolems with tinnitus at the moment so know what your going through take care
Hi mags just to let you know your in my thoughts ive got my fingers crossed for you. hope it all goes well for you, I know what your going through hun take care xx
Thank you , I rock back and forth anyhow and am always fidgeting and I get sharp shooting pains and they make we wince , so here's goes x
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Hi Mags. I will be thinking of you today and wishing you all the best. I have all this ahead of me! It's such a shame people can't feel our pain, not that I would wish it on anyone, but to not feel or be judged a fraud, when we are clearly not, would be good. Fingers crossed all goes well for you. Gentle hugs (())
I have but unfortunately I was turned down Kaz because they said i need to go down all the avenues that treat FM such as CBT, Amitriptylline and Gapapentin first and should they then fail i can put in another application. I have no money with a mortgage to pay etc so I'm facing a return to work in the coming weeks. The tinnitus is horrible and keeps me awake at night xx
Thank you for your kind thoughts
hi pillpala Hope all goes well for you when you have your meetings. it would be great if we were not judged by people and looked upon as frauds. those that judge us want to place themselves in our shoes for a day and see how they like it. I wish fibromyalgia was more recognised like ms and me it needs to be out their more and be seen like ms and me etc. it annoys when we are judged by others whether its drs specialists family friends. take care gentle hugs
You are so right - it would be wonderful if people understood Fibro! Fortunately I have a really good GP who recognises it. I have a physio appointment this afternoon, the first, it will be interesting to see what happens.
Let us know how you get on. Hugs
Hi pillipala hope all goes well when you the physio, the physio I saw gave exercises to do he provided me with a walking fram and walking stick. I had physio for a week last year as I was bed ridden with the fibro unable to walk felt quite poorly had to have carers in. the physio got me up and walking again. he said my mobility wouldnt get any better and it hasnt its got worse since last year Im now having to use a wheel chair.Hope it goes well for you today hun let me know how it goes take care x