Hi Gill,
You certainly have to be 'on-your-guard' with anyone and the DWP. Anyone that works for them, (they have a very high turn-around staff figure, which goes to show people do not hold their jobs with them for very long!) are informed to 'lie', in some cases the more times they can process claimants - the higher their wages becomes, because it is a guaranteed way of putting severely sick or disabled people back to work.
There are known cases of ex-DWP staff, that are now on ESA and PIP, their job environment and then knowingly, as with intent to deceive claimants over the phone is just too much for many staff, imagine you have a job like this! In the news a couple of weeks ago, a guy was waiting for a letter from the DWP regarding working for them. Instead, because they were too slow sending the letter to him, his benefit was sanctioned!
I have heard from many ex-staff of the DWP, and some of the stories are really bad, we all blame the DWP for what they do to us with Assessments, Appeals, etc - but it is the 'higher-ups' that are to blame. Trying to take on the DWP as with legalities is another area you cannot win unless you can find a 'loophole'. There are many Acts that the DWP is EXEMPT from, the government covers nearly all ways, so the chances of you winning against them is virtually impossible.
Gill, your best place for information is on websites like this one, but like most people - you do not really look in to resource websites, to find what other people have done in either, the same or similar predicament.
It is like me, if someone asked me should they go to the CAB to complete their PIP Application Form I would say 'no', here is 3 reasons why.
1. There are many reasons why, on numerous cases the DWP will state they cannot read your form because it is either unreadable.
2. The person completing your form knows nothing about your condition, this differs in all of us, we may have the same disorder, but that does not mean it affects us in the same ways, therefore they would probably enter a general or generic version, which is not correct either.
3. Let's say the CAB Advisor took just one hour to complete your application, the chances of that with many people - would be impossible.
A known fact about ESA and PIP Application Forms is never rush them, you are normally given four weeks, but this can be extended to 6 weeks, if required - but you must give them a reasonable explanation.
Last year I asked for my DLA to be reconsidered, regarding the Care Component changed from Middle to High. I was sent a 4 page application form, but we missed a part on the letter that came with it, stating NOT to fill in Pages 1 & 2, but we missed that part - so we ended up filling in the form in full, with about 6 additional pages of A4 of other information. We spent 4 days completing the whole form, everything was detailed, more than what you would normally enter. I take over 30 tablets a day, but every 10 weeks I have 6 Botox Injections, injected in to 3 different muscles, and the names of my Neurologists, etc.
We sent it to the DWP, whom sent a letter back about 6 weeks later, that stated they needed more time to make the decision based on all the evidence submitted on the form. About 2 months past and I got the letter stating that due to the progressing disorder becoming worse they had increased the DLA Care Middle to the High Rate, Mobility is already on High Rate. We were asked why we did not apply for it sooner, but it was, we didn't think we were entitled to the High Rate of Care on DLA.
During that change my whole entitlement to DLA was checked, this was because all my medications had changed over the years, so they needed to look at all my problems, again anyway - so they did comment on supplying all medications, so they could update their records.
Filling in application forms for DLA, I initially done myself - but as my condition become worse - my wife had to take over.
When dealing with the DWP, you need to be careful - regardless of being 'face-to-face' or on the phone. I expect after your current situation with ESA, you will take a better view before agreeing to anything, that involves the DWP.
All the best,
Les.