EUS scheduled, what to expect?

Just looking to hear from folks who had an EUS procedure and hopefully you'll tell me how awesome it was and that there were no complications! Feeling a wee bit nervous....

Also, were your results what you expected? Is this a good test to diagnose very early CP?

I'm going to be arranging to have an EUS shortly as well to check my pancreas.

From what I have read it is the main test to have for detecting early CP.

Just wanted to wish you the best of luck with it!

Thanks! You as well...when is yours scheduled? What are your symptoms?

Hi, thanks very much.

I've had a worsening of my symptoms and doctor said to call him if it does. So calling tomorrow to schedule it in.

I have strong right mid back pain, which radiates down to lower back and also shoulders. Had it for a year now after a bad alcohol poisoning/dehydration incident and I didn't seek treatment the doctors think I may have had an acute pancreatitis attack at the time and may be chronic. But no ones knows for sure as stupidly I didn't go to a hospital so wasn't tested/treated.

Hello Kristine,

Just to let you know I had  EUS procedure done last year. Like you I was a bit nervous of course, but it all went very well..No complications, pain or discomfort at all.

C.P. was diagnosed. I have  probably had it for a very long time already I was told, considering all the things wrong with pancreas.. i.e. calcification, cysts...inflammation, tissue changes etc.

But I gather I am a lot older than you and have lived with it for all these years and never noticed that something was wrong until last year.

Hope your EUS procedure will be as good as mine and wish you all the best.

You are going to do just fine.  I had mine done a little over three years ago and it did confirm my CP.  The medicine they gave for the procedure really relaxed me and before I knew it the procedure was over.  There were no lasting side effects at all.

Thanks for the reassurance! I needed to hear that! How long did you have symptoms before you were diagnosed? What are your symptoms and how are you doing now?

Thank you Nettie! It was a relief to hear that everything went smoothly for you! How long have you had CP and what are your symptoms?

It's really terrifying thinking I might be diagnosed with CP...I've had heartburn digestive issues after each pregnancy and never thought much about it but since August, I've been sick with heartburn, burning and squeezing pain in the center of my rib cage and green stool...my lipase levels have been slightly elevated since August but are going down to almost normal...

I have 3 kids and somedays I am hopeful and feel like I'll be here for them in the future but then I have bad days and I feel I might not....unpredictability is hard to cope with...

I hope you are doing and feeling well and thanks for your reply...!

Oh wow...so you've been suffering for a year with those painful symptoms...that stinks! Did your symptoms vary from day to day or have you been in more or less constant discomfort?

I hope you were able to schedule an EUS...and soon will get some answers...not knowing what's happening to you can drive you crazy!

I know it's been an absolute nightmare.  Didn't realise the damage I was doing by not getting treatment.  Symptoms vary but mainly in constant discomfort which has been challenge to deal with.

Thanks very much, I hope I will be able to schedule it in reasonably soon.  Would be nice to get answers as it definitely has been driving me a bit crazy! wink  

But it's one of those things where while it would be good in a way to get a diagnosis from the EUS to explain the symptoms it is also good if nothing is found I suppose.

Just booked the EUS for 2 weeks time.  Looking forward to getting some answers of what may be going on.

Mine on November 13...when is yours? What if it's the same day??!?! wink

My EUS is on November 12...almost the same day wink

Oh wow...we'll get life changing news about the same time...best of luck!

Thanks very much.  Best of luck to you too and wishing you all the best.

I had symptoms for about 2 months before they did the EUS.  I had a feeling it was chronic due to the multiple trips to the ER and it was just not getting any better and the pain lingered.  I am doing better, I had a spinal cord stimulator implanted about 2 years ago and it has helped with the pain a great deal.  It tells my brain to feel a tinggling sensation and not pain.  It can be adjusted to focus on certain parts of my abdomen.  Please let me know how your procedure goes.  God Bless!

Hi, How did the eus go? Hope it all went really well for you.

I did my eus and it all went fine. Doctor said everything looked normal and could not see any scaring on pancreas which was reassuring to hear. 😊 Though still have pain which is unexplained which is annoying but very glad that it gives me reassurance that I shouldnt have to worry about anything too major in the short term.

Oh wow! That is awesome! I bet you felt so relieved! What are your symptoms again? Yes, you have to believe that you don't have CP...the EUS is very sensitive and the best at detecting early CP...!

Mine was normal too...doc said my pancreas looked really healthy and I bugged and bugged him for extra reassurance about early CP detection and he said if I had it, he would have seen it! So like you, for now nothing life threatening has damaged my pancreas, liver or gallbladder! I felt a weight lifted off of me! But they said I might have pancreatic divisum which is a narrow duct but an MRI will be needed to investigate further as he wasn't sure if I had that...!

Hooray for a normal EUS! smile

Excellent news. Really glad to hear your scan went really well! Awesome! 😀 I've still got ongoing radiating back pain/spasms and some abdominal pain. But I've been so well tested now will be able to put my mind at rest for the moment. And really glad that your mind is now at rest in relation to your health for the moment as well.

Take care

Hi,

I just came across your post and was wondering if you could tell me what your symptoms were/are.

I feel like I'm in the same boat looking for answers as to what's causing my pain/discomfort.

I initially had some lower back pain and left upper abdomen pain that is mild -- about a 3.  It's not there all the time but is intermitten and comes and goes since mid November.  Since then, the pain and discomfort has seem to settled on right side under my ribs and now i feel it in my mid and sometimes bupper back. 

I have had normal blood work in november including pancreas enzymes.  My amylase was very slightly higher at 150 which dr. said is not even considered abnormal.

I have had a CT scan which showed "everything within normal limits".  The most worrisome thing for me is how this discomfort and mild pain would keep returning.  It never seems to hit above a 4/5 (i know, i feel really wimpy for even complaining).  But it is so hard to keep positive and moving on day to day when I can be doing anything normal and I would feel it.

I'm starting to feel anxious like can something be missed.  I was really worried about my pancreas because of the location of the epigastiric and back and have hounded my GI dr.  He was convinced int's not Gastro but did a Endo and Colonoscopy to finish the GI work up.  

I am getting ready to ask my GP for a EUS and I'm nervous as well.  From what I read, the EUS is more sensitive and can pick up clearer picture.  I want that to rule out major stuff but I'm also really scared of no answer.