Excruciating pain

Bones, joints and muscles
1

Today is a BAD day! With the weather changes and being under the weather I am in a major flare today. Every part of me hurts so bad I am reduced to tears. I have done all the usual treatments that usually get me through rough days but it's not even touching the pain. I can't sit, lay down or stand. Just can't get comfortable.

Had a recent epstein barr reactivation,then a viral infection which led to a sinus infection. My body has been fighting so much that today it decided to rebel. Took anap Epsom salt bath, am covered with salonpas pads (10 on my back) not even touching the pain. This along with other supplements usually do the trick but not this time. I can't take prescription meds that I have because I get anxious,throw up or pass out and not in a good way.

Don't know what else to do. Usually when it rains I'm fine. It's usually the build up before hand that gets me. But it has poured here all day and it's just getting worse. Haven't slept theough the night in weeks and when I finally do sleep I can't seem to get up. Any suggestions?

2

Kiki,

you don't need to suffer any more. I'm sorry to hear what you go thru on a bad day! I pray you will never go thru another day like that again.

You can find good quality treatment & learn from a good rheumatologist how to manage this disease. Lack of sleep can cause more pain according to clinical trials. Something to sleep will do wonders it it's calming music or a story one books. Maybe it's just the soothing sent of lavender oil. Some foods can keep us awake and pain keeps us awake to. I take magnesium or mag spray befor bed really relaxes muscles. It just something that help me.

FM today is a manageable disease as the fibers over ther nerves are effecting our whole bodies and our mind. There are many meds and treatments that will help you once the right combo is found. Everyone is different. When is the last time you went in for a full physical. If it been longer than year it may be a good time to get this sorted out with a rhumy.

I have aver had this FM long before there was a name for it . Like arthritis doctors would say I can't help you for arthritis or FM. THATS HOW EARLY I stared looking for answers for treatment for FM & arthritis. 

Today FM is better accepted and understood as is many forms of arthritis.with amazing treatments and medications.

Exercise and diet along with meds and Physio therapy can open new doors.

just because one door is closed ,open another one. That's what doors are for!  Be your own advocate and learn as much as you can about this disease.

it can get a whole lot better it's amazing once you find that special medication that can set you free and on to a better quality of life.there is something that will work for you and I prey you find it soon.

Hopexxxx

3

I feel your pain Kiki! The weather here in Australia is very unstable since we are in our storm season. We feel the changes in biometric pressure. I too am experiencing pain and weakness these days. There are always plenty of viruses going around that we can easily pick up as well. Be careful with citrus on those days. Vinegar affects me as well. We tend to have built up Uric Acid in our systems so we really need to watch what we ingest. The best we can do on days like these my dear, is rest. I still have the Epstein Bahrr in my system as well so I really can't overdo. It really is a balancing act for us FM sufferers. Take something to help you sleep. Be kind to yourself Kiki, so you can feel better soon. This too shall pass. Maggie xx

4

Hi Kiki;  this will / could upset you more, if you have already "been there, done that" ?? however, just wondering what meds you have trialled, which ones upset etc, and we may know of something that you havn't heard of or trialled???  (I know how you must be feeling as when I am going through a "bad" time, if not for my meds, I think I would go mad).   As another said, when is the last time that you visisted your Rheumy?" and at least hope that you do have a regular speciaiist that you trust?

​If this is the case, and you have trialled everything that is on the "usual list", I wonder if you have thought about trialling some of "pure maurihuana Oil "that is being seriously considered in some countries (& states here in Australia"?

​I was only reading up on this today, and one comment from a Fibro sufferer, said "it has made all the difference to her"....."been able to get off all other meds", and "only needs it once or twice a day".  In some countries they are providing it in a Measured Dose via a "pen-like" administrator, similar to insulin for diabetics.

​I am in favour of this form of medication, as if it is indeed, and only, from the stem, and in it's pure form, does not have any Hallucinogenic side  effects; and also, if pain is unbearable, it is being highly recommended for those of us that need it.   I guess this way of relief comes down to the patient and their GPs and Specialists; and how they feel re same?

​As for your sleep, have you trialled Melatonin supplements?   I have been taking this for over 18+ months, and have found it Very effective.  I note that there is only one form that works for me, and do have to buy it on line, though; as the brand/s bought through pharmacy had no effect at tall. If you would like to find this brand, Private Message me and I will send through details.  (I have given it to many others,, and am feeling that there maybe some success for them, as I havn't heard any negative replies.....maybe I should ask before recommending to others???)

​I am also assuming that you have regular visits to a Remedial massuer/physio who is familiar with Fibro?" I rely on my physio, as it really releases the "knots in my muscles that build up from pain"

​I will be waiting to hear back what your thoughts are on the above, and if of any help?                                 Bron

5

Sending you BIG gentle hugs Kiki. x

6

Thank you for replying to my rant. I have appointments to go see my GP and rhumy in Dec. My GP has been more help than the rhumy doc. But unfortunately I can't switch due to my insurance coverage. She was the only one of can get in my area.

I haven't tried medical Marijuana. In many states it is allowed but it is still very strict rules and regulations in my state.

I was doing accupuncture and physical therapy with a chiropractor but without assistance from insurance I had ro stop recently cause I couldn't afford it. My savings have taken a huge hit and I'm struggling financially especially now with Christmas just a few weeks away. But when I was doing it, it did help.

I think the stress of my Financials has set off this new flare along with my poor health. I am in the process of applying for insurance and seeing if I can qualify for help in 2017. I am single so trying to do everything on my own is taking a toll. Thank you for your suggestions. Hopefully my doctors will have some new suggestions as well.