I'm still supposed to be resting but I miss being on the computer and talking to everyone. .
Couldn't wait to get back online today. How is everyone?
Morning Rose,
The balance between activity and rest is often hard with "this" isn't it? I find I can't often sit at my computer and am on a tiny android phone typing here. Its much easier for me but even then it can be hard to have the energy!
Its a lovely misty morning here and I'm back in bed resting until I have to go to cfs/me clinic later.
it feels a bit like were all out in the ocean with only our radio's for contact today if that makes sense?
Rest well
B
Morning Bev,
I love misty mornings. Is it Autumn where you are? I love Autumn.
Yes, I know what you mean about it feeling like radio contact.
It's really hard trying to explain to the Outsiders why it's so tiring being on the computer. Driving is the same. They just don't get it.
Mental activity is just as exhausting as physical.
The whole computer thing becomes a Catch 22...don't you think?
Wouldn't it be great if we just spoke and the computer typed it?? One day, that might happen
Rose
Hi Rose. Glad you made it to the computer today. I'm on the way up today having spent the last couple of weeks not able to concentrate on anything at all. I usually love being around people but recently felt I was not just physically tired but even more so mentally and emotionally. So I've given myself permission to retreat into a protective bubble to look after myself for a while. Spent some time with a colouring book and some pencils yesterday and actually managed to stagger down to the bottom of the street to look at the trees in the sunshine. Take care and have as good as possibe day
Hi Rose, I am not too bad today thank you, and I am glad to see that you are feeling a little better and well enough to get back online. I share your loneliness and sometimes the Internet helps you to interact with people doesn't it.
I am like you and can sometimes go a few days having to lie down or stay in bed, and when you're on your own, it can get very lonely indeed can't it. This is a great site to 'chat' to others, especially as we all share a similar if not same illness. I hope that you are able to feel a bit better for the next few days. Take it easy - easy to say I know - especially when you have piles of household chores waiting to be done eh!!!!
Take care, Val x
I am so pleased I got a laptop last october, It is so much easier lying on the bed than sitting at a desk typing. I will never ever set foot in an M.E. clinic again after my experience there. The problem with them has been going on since June. Only got it sorted. Just too much stress.
Hi,rose I hope your OK? I stayed offline today up till now as thought it might make my balance worse but dont think it makes a difference,I'm a little better today and now taking serc,take care Lisa x
Hi Lisa, really sorry that you have this continual problem with balance.
I'm feeling realy tired and depressed today. Should look at some fuuny pics, I guess, something to make me laugh .Will post some more soon when I'm up to it. Take care x
Hi Val,
When you get lonely, do you ever get depressed? How do you deal with it?
I read that low thyroid can also make you depressed and I've been told my thyroid is underactive but treating it is another thing altogether...you know what I mean??
Take care, Rosex
Hi Mo,
I love colouring books It's so relaxing, a great stress reliever. I only like working with crayons, though, as it easier for me. Problem is, I can't find any that are suitable for adults. They are all too kiddified.
So you are creative too. I read that people with CFS/ME tend to be creative and senstivie.. How factual that is, I don't know, but that's very interesting.
I know what you mean about retreating into a protective bubble...that's a good word and so true.
Hope you having a relaxing, healing time in your bubble today
Take care
Rosex
Hi rose,I'm sorry to hear you've been feeling depressed ,I think a lot of us online feel depressed and fed up with our illnesses, I think why me what have I done to deserve this,I just want to be working and have a normal life,I hope you are not to bad now?take care Lisa xx
Hi Lisa, yes the hardest part is feeling like a reject in society, not fitting in anymore. Outcasts of society and all that we've lost because of it.
I'll feel better in a day or two. It comes in waves.
I've found that vitamin D can lift the mood but you have to keep upping dose as the body gets used to it. I would love to get hold of some laughing gas...must ask my doctor
Yes, I want to be working too and have anormal life...mabe one day.
I hope you have a good day today. Take care Rose xx
Morning rose,I know what you mean about feeling like a reject in society that's how I'm feeling as when I'm out I can pass out with dizziness and look drunk when I don't even drink,I feel embarrassed but trying to struggle on,take care Lisa xx
Oh, that's so awful for you. Are you like that all the time or just some days?
I'm like that a lot,I've had 4 good days so far in a row where I've not fallen or fainted but not to great today,can't be left alone as I've got a 3 yr old so always with a family member xx
Hi Rose. Sorry it's taken me a few days to reply but I've been enjoying my bubble! Last Christmas I found quite a few colooouring books for grown ups in a very well-known online store - not sure if we're supposed to mention names here but I bet you inow who I mean! I even saw a colouring book for grown ups at the supermarket the last time I got there. I do find it relaxing but again only when I have sufficient energy. I totally agree about the creative/sensitive link with CFS. Hope you're good today. Take care. Mo
Hello again Rose. Just wanted to say as well that I totally agree that depression and feeling rejected by society is a very big part and problem of this illness. I sometimes wonder if it's best to keep hoping that thing, ie I, will be normal again or just accept that it never will. At the moment I'm trying to immagine a new normal. There must be so many people like us. I know I wouldn't wish this on my worst enemy but we are really strong people you know. We cope with so much every day. And we keepd going, we endure. You deserve a medal Rose just for getting to your computer
Hi Mo,
Thanks for that, the medal thing Yes, a new normal. We will never the same again, that's for sure. If any thing good comes from us being sick it will be a great understanding and compassion for others with chronic illness.
I would love to know the name of the site where you got your colouring book. I'm pretty sure that would be O.K. to mention but if you're not sure, you can private message me.
I want to hold the crayons in my hot little hand again and colour away my stress.
Hi Rose, I found the colouring books on Amazon. It seems to be quite a thing at the moment. Like I said I saw one on sale in Tesco just the other week. The pictures tend to be quite intricate which can make them challenging for me when I'm really tired. But it's so satisfying playing around with colours again. Something I've not done for so long and really gives me a boost. Hope you find something you like and get colouring
Hi Rose,
I've ended up off line all week ! My phone had an issue and then the charger broke. my desk top is too much to sit at when i feel as i have but, have some energy now. I agree, mental is just as exhausting,if not more so sometimes, as physical.
yes, beautiful autumn here. I've collected some leaves for halloween as the children like to decorate the house.
They do have voice recognition programmes, or did, for computers but they wweren't very good, I believe?
How are you feeling now?
B