There have been a few trials in this country so far but nothing much. However physicians in the US are prescribing Ritalin for CFS patients with some success provided you don't overdo it on the days you feel OK. Anybody have any experience of this?
Christine
My son had CFS at 14 but as time went by it got better and better. I would say that it took a year for him to be back to his normal self. I would only take the drugs if my son was still tired. Is this for you Christine?
Thanks for taking the time to reply, but I've had it for 20 years. It's gone into remission a few times and I got to have a normal life for a while. Anyway, chances of an UK doc prescribing them are about zero. C
Hello, obviously I had no idea that you had suffered for so long. I know the feeling that you just want to forget about it, sometimes constantly trying to think about how to make yourself better can add stress to your life which is not going to help. As it cant be diagnosed there is no path to follow. All the best
I am using Ritalian to deal with chronic fatigue for about two weeks now. I have tried Dexedrine and Modafinil in the past. Ritalin is quite different and the effect has to date been amazing. I had begun to lose hope. I am a professor and must be able to work for long hours writing. The CF made concentration near impossible. The Ritalin has been a revelation.
It may not work for everyone but perhaps you should consider trying the smallest dose possible.
I have just started taking Adderall..Seems to be helping some but today is my 1st day taking the full dose. I hope to have enough energy to clean up my house some!
I was taking 30 mgs. of Vyvanse for about three months, I felt like my old self for the first time in a very long time. Suddenly it just stopped helping. Perhaps I shouldn't have taken it everyday. I read about another medication called Nuvigil, however, my insurance is denying me authorization. I'm in the process of fighting with the insurance to try to get it approved. If I didn't have to work it wouldn't be as much of an issue but when I feel like I'm goingto nod off while driving it's not safe. I feel like I'm stuck in an awful place, I have bills that must be paid whether my health is bad or not. So frustrating!!!
Update:
It is my 4rth week using Ritalin for a longterm CF. The drug continues to work wonders. Slow release is my preferred variety.
I had spent years despairing whether I would ever get my life back from CF. I have tried countless therapies. This is the only one that has worked.
FYI, my CF is likely an effect of pulmonary sarcoidosis.
I would not take the time to write except I understand the hopeless feelings that often accompany CF.
Sam
Hi sam69617, can I ask what country are you in please? I am in the U.K. And have had me/cfs for 18 years and I really am at my wits end.