Fabriomyalgia and rheumatologist

Bones, joints and muscles
1

I have only seen a rheumatologist once and that was for my arthritic knee, should I be speaking to one about my Fabriomyalgia, I've had it for years now, however never been referred to one. 😏

2

I have only seen a rheumatologist and she also delt with my fabriomyalgia which was excercise. Which I do when I am not in pain which is not very often.

3

Going through quite a lot of friends on here, they seem to get so much more from their rheumatologist, that's why I'm curious, thanks for reply rose👌

4

I saw a Rheumatologist just to confirm it wasn't anything else.

I had high inflammation markers..and a slow sedimintation rate..

So, everything else was ruled out..Lupus, Lyme, SLE..so they say I have Fibro....but not given any medication from her...just from GP...given Gabapentin.

Exercise DOES help the pain...I never thought it would as exercise...strains muscles..but it DOES help...the days I exercise..per the gym..i have LESS pain.

5

Hi trisha87499 It was a rheumatologist who diagnosed fibromyalgia for in 2014, all he did was give me a leaflet on it and refered me back to gp for pain relief. I havnt seen him since he explained nothing to me about fibro at all Ive just been left to get on with it by him and my gp.

6

I agree about excercise to a certain point, it helps for the period after it, then it catches up with you and I can be in bed for a couple of days for overdoing it, I put that down to having athritist though, as I said though a lot of people on here seem to be having ongoing contact with a rheumatologist and wondered why and for what reason? Thanks missssy

7

Maybe they got a really good Rhumey Dr....I haven't had that experience.

I find that ALL Drs. prescribe...Actually my Dr. told me that is her job...to prescribe meds.

I find...exercise to work the best...and i was really against it....until I tried it regulary and regulary felt better and less pain.

8

Thats because (probably) most Drs don't believe we are in so much pain.  I am lucky to have a GP that admits to having Fibro.

But, even SHE is like...she's working...and what is my big issue with the pain?  At least that is how I feel.

Yea, she is working..she is a freaking Dr...if I had a PHD...and could just walk in a room and help people...I could work too...I can't work for my current qualifications and it p*sses me off that no one respects FIBRO.

9

Same here, I feel your constantly defending yourself!

10

exactly..its so tiring...there is a blood test that says if we definetly have Fibro...but it is costly...747 dollars she told me......out of pocket cause medical insurance doesn't even cover it....WHY? Cause it isn't a recognized illness or conditon yet....a-holes.

11

it amazes me how drs and specialists dismiss fibro their is only 1 dr in my medical practice that believes fibro exists the other drs dismiss it totally. because you cant see pain people dont seem to believe we are constantly in pain. They want to try being in our shoes if only for a day? they want to try living with it. No one understands fibro or like you say respects it. its about time it was put on the same level as ms. we may get more help and understanding then. 

12

I think they think we want PAIN meds..no I don't....I just want understanding...and validation that I AM in pain..and it does affect my life...

a-holes

 

13

A Rheumatologist can refer you to the pain clinic for pain control ( a lot of pain clinics only accept referrals from another consultant) and some Physiotherapy departments run programmes for fibromyalgia patients. This includes explanation of the disease, how to cope during a flare up and what exercises can be done to conrol symptoms. It all depends on what your Health Authority offers.

14

Ask if your Physio department at the hospital has a fibromyalgia clinic. It may help with understanding the disease, and coping mechanisms.

15

my GP is pretty good at care recommendation since she says she has Fibro...it is exercise..the key....

16

Thank you callalloo, I've pretty much accepted the illness and its symptoms, however I will do what you say, because I have nothing to lose, and it could be a benefit xxxxx

17

Hi too have fibromyalgia. I have been primarily diagnosis with degenerate joint disease (djd). I have 2 replacement , one knee and a hip replacement . 

I have been schedule for my third one in the fall. Because of the wide spread of pain my body experience on a daily basis. The fibromyalgia is trigger by my over active nerve pain. I have pain on the top of both feet, my elbows, ankles, neck and extreme fatigue. My best friend of my fibromyalgia has been my Lyrica twice a day. Because of it I use much less pain meds and I can sleep at night. However my energy level is very low even tho I feel that I can do more. It has help so much with the stiffness I deal with on a daily basis. The stiffness is trigger if I sit for a long period of time, and when I wake up in the mornings.one last thing we must push ourselves and fight not to give in to this horrible disease which unless you experience it you don't understand it. My motto is for us the worse we feel make" Sure we don't look the way we Feel" inside. I hope that this have been an encouragement for all of us who suffers on a daily basis with this disease.