I was thinking of setting up a group on Facebook for everyone on here, we can make it private if people would prefer or if you're more secretive about the condition. Just wanted to get an idea of if people would be interested and then I could start it, could be for sufferers and supporters if you'd like? Hope everyone is well
Fab idea! I'm in hospital after having a graft to fix the split sutures :-( painful is an understatement!
I'd be happy to help admin the page also, I'll be home in a few days.
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There's already a Facebook group called hidradenitis suppurativa support group. Hope it helps.
I have joined Hidradenitis suppurativa uk support group and have to say it's really wonderful! The people ate lovely and it's nice to have support