I have ongoing problems with stiffness in my facial symptoms, which makes chewing difficult, sore jaw muscles, cheeks. Associated with this is stiff, semi numb nose together forehead stiffness. Hope that makes sense. Anyone else experience this? I must say that some of these symptoms have been there in some form or other for more than 12yrs, although much more severe during the past 18 months
i have recently experienced facial problems. starts with excruciating pain in my lower right jaw which feels like someone is drilling then spreadsthroughout the right side of my face. if the painkillers dont work i end up completely numb from my ear to nose. my vision blurs and i cant hear.
I suffer from pain in the face and in the jaw. couldn’t go to the dentist for a year cause i was afraid to open my mouth… i ate a lot of “easy” foods for a period of time like smoothies, soups, mash potatoes.. and tried to relax the jaw and the face, took magnesium .. it helped a bit but sometimes it comes back. 
louise hay says jaw problems come from Anger or Resentment. so try to think about that - can’t hurt.
goodluck 
these are the main symptoms of fibromyalgia they are
1 wide spread pain all over the body
2 sensitivity
3stiffness
4 poor sleep
5 fibro-fog
6 headaches
7 i b s
but also associated with it can be fatigue, concentration,anxeity,depression, morning stiffness,numbness in your hands ,arms and feet,also foods can trigger it off like tomatoes,potatoes,eggs,caffiene, and dairy products.
others can be the neck,cramps in the muscles,tingling muscles burning,going hot and cold,itis not easy to detect,because it it as the same as me and parkinson
Thank you. I do get the occasional sharp jabby pain in various parts of my face, however I would more describe my symptoms as stiffness and altered sensations. My jaw muscles get fatigued easily and I do get sore in the jaw joint area close to my ears.
Thank you. My symptoms seem like a perfect blend, if that is the correct way to put it, of fibro and CFS. I know that is not an unusual situation. I do have widespread pain but it is usually aches and pains, although cramps and numbness are common too. Luckily I have not really suffered from brain fog at all or indeed IBS. Headaches and altered sensations in my head are a feature, indeed they were my presenting symptoms 18 months ago. Sleep continues to be an issue, especially in terms of leg pain.
they are not one of the main symptoms which are
wide spread pain,sensitivity,stiffness,poor sleep,fibro-fog,headaches and I B S.
others at are associated can be,fatigue, concentration,anxeity,depression,morning .stiffness,numbness in your hands arms and feet,also certain
foods can as well like tomatoes,potatoes,eggs,dairy products and caffeine,you can also get muscle cramps lack of energy, if you do get the cramps the best thing to use is tonic water,it was my physio who told me that and it does work.there are so many different things relating to it i had 3 people yesturday with veins but it is not the main cause ,this could be a new one,judith from southport
judith we all have different symptoms. Because what is being described is not one of the main symptoms doesn’t mean it isn’t fibro.
there are about 7 main ones which is wide spread pain all
over your body which i had,sensitivity is another one which i have in the uscles ,tendond and joints the next is the stiffness normally in the morning it can take 10 to 15 minutes to get out of bed,then i have trouble then walking,
some times i lose my balance then i have the fatigue numbness in my ands and fingers cramps in the legs,but i have been drinking tonic water which the physio said to use and it works.My fibromyalgia was caused by the death of my mums 3rd cancer been lokking after her for over 23 years,and then i had anxeity and depression which i still have that is how mine started,but it seems that anything can trigger mine off, judith form southport
i don’t understand why you keep referring to the main symptoms. all sufferers are familiar with them. This discussion started with a question about facial pain. I’m not sure how helpful it is to say that such pain is not a main symptom and then list those that are . ANY pain is real and devastating whether common or unusual.
not many people ave said they have facial pain,but there are new people coming on the site mote than i thought would,not just in the UK but also the USA and there are new people coming on board every dayand they want to know the main symptoms so i tell them,so itwill go to the other people on the site. judith
hi Charlie19
i have had fibro for many years and about two years ago my face on the left side had altered sensation, sharp stabbing pain along my trigeminal nerve into my forehead , jaw and cheek the pain is excruciating it is accompanied with tingling, burning and full on numbness. i get pain in the base of my skull and down my neck. i have been diagnosed with trigeminal neuralgia and im now on carbamazapine which is helping alot. but i also get what feels like cramp in my myofofacial sheath its effing painful.
i think fibro is a progressive illness. yes it has main symptoms but not everyone suffers these each person suffers in a very individual way. thats what makes fibro so hard to correctly pin point and cope with.
i believe this discussion group is helpful if we can support each other no matter what symptoms we are suffering. my advice is any new symptoms should be checked out by GP, don’t automatically assume FM and share to inform and educate others in the hope it will lessen worry and prompt others to take appropriate action. fibro seems to umbrella a lot of other conditions too. there is some very interesting studies and research going on that i follow on a site called health rising well worth a look.
i hope this has been informative, and i wish you all the best x
I think you will find Judith that the vast majority of people who are diagnosed with Fibro will look up what that means so will know the main symptoms. The point of forums such as this is to seek and offer support and reassurance from and to fellow sufferers, particularly when they are experiencing non-mainstream symptoms. My facial attacks are excruciating. They may not be common amongst sufferers but are completely debilitating and should not be dismissed, which is what it feels like you are doing.
what do you mean by what it feels like you are doing so far i have about 30 on line,and out of 30 there are only 4 people,that is one thing that i have not got,mine started like the proper flu joints,tendons,and muscles all very sore,going hot and cold the legs are weak in the calfs and feet the quads and h/string are very tight numbness and tingling in my hands and fingers and the cramps ,but the physio told me to get tonic water and it works,now i am getting the burning sensations in my muscles then i get the fog-in dropping all sorts of things falling over,plus i also have clonus which oes,nt hep it can also make you make spelling mistakes as well. and bruising. judith
this fibromyalgia is so diverse some people have facial problems so far that is 4 alot get cramp my physio told me to get just tonic water,and it does help with mine i have weakness in the legs but i am using a leg machine all the muscles and tendons are very tight and sore you can get bruising on your face and hands your body can go from being vry warm to very cold,you can also get that you are dropping things on the floor,or on yourself,yyou can also fall over which i have done outside 3 times,twice at a rugby match and the plyaers picked me up,and the last one was on gravel and grit,and that triggerred off my fibromyalgia,i had it for 12 days i have another illness called clons it can come from your brian or in my case it is coming from the spinal cord. judith from southport
I don’t think I am going to be able to explain to you what I see as the problem.Might I suggest that you look at the Heading and the original question, and then your response.
I wish you well.
so far has i said out of 30 people there are only 4 people with facial problems so i would suggest you talk to them the only facial problem i had was bruising on the face,some have pains in there jaw and headaches but with so many on the group i would put it out to the 4 people that have the facial problems,thank goodness i have,nt got that i have got enough probelems with all my body and my clonus,so if you look on the site it should give you the 4 people who have the problems which i now done have anymore
You have entirely missed the point. It is not for you to determine the significance of a sufferer’s pain based on the number of responses. WE ARE ALL IN PAIN. Incidentally, 16 replies does not equate to 30 people. I joined this particular discussion because I identified with the SPECIFIC problem that the author raised. You have given answers to questions that were not raised in this discussion. This probably isn’t the discussion for you if you’re not interested in Charlie’s problem. This discussion is about facial pain and again you are trivialising it.
NO I AM NOT all i am saying is why you don,t talk to the other 3 people who have problems with there facial problems ,you may have the same problems ,mine was just bruising and scratches,but mine has gone,all over my body
i can take you off the site if you are getting nasty.all i am saying just to talk to the other 3 people who have facial problems this is for people who have fibromyalgia,and there symptoms and what they do how they feel what helps them
what othe symptoms they are getting like mine i have got now 23 the burning has started in my neck and upper arms so i use and ice bag
In terms of the face and the head I came across a poster on one of the fibro facebook pages which lists symptoms. The list is huge…the only thing for sure with this is that everyone’s condition seems a little different and certainly diffuse. Thanks to everyone who has contributed to the thread so far.