I've coped with MS for 17 years no problem. Recently fell and broke my hip. Operation has left me with serious groin pain. Now been told my bone density is very low. I'm on overload and fighting panic. Getting rather morbid and scared. Trying to pull myself together but live on my own so too much time to think. Don't want to burden friends so thought I'd try and talk to strangers who've been through similar bad times.
I send you a huge hug! Ten hugs. You are not alone. I too have ailments and add ons now and issues and I think these drs are too cold because we arent robots. It the ailments that get me anxious. Weird weird issues i have develooed with my ears in the dx of optic nerve pallor and sicca. I dont know who would be calm. i dont know how i am suppose to be so robotic with all this i feel it and live with it. Not the same dx as you but I understand this way too well. My heart goes out to you. Of no help i rotate praying for a cure or Godspeed because my own experience is more can be done for me but the ents suck and are dumb. The worst is going online and seeing all the tests that should be run and such and two i have seen havent done them. They cant do anything for the optic pallor issue as science hasnt cured that. They have sured auto immune and the lease the stuoid ent could have dine is scan my inner ears but they havent. Based on my body as is infound that negligent. I left out other issues but the bottom line is i understand how you feel. I do. I dont know how to help you thiugh. I cant help myself. I have become spiritual, not religous but spiritual and hope in energy healing as they left me with no ither source of hope.sounds weird but desperate is desperate. I can not even use the AD meds anyway risk benifit which id probably the same for you. I did try therpay by the waybthe therapist was so lovely but she felt awful but it isnt like you do much but find inner stregnth to keeo going till God calls us home. The ither therpaist basically yelled at me to be more aggressive in my care which gave me a oanic attack and i managed to walk out while he was ranting. That was weird. And evil because tv is fake and i cant find these miracle drs walking around.
That sounded morbid and i dont mean it too. I take one day at a time. And am into energy healing and emotions behind illnesses and acuounture and prayer. Lots of prayer. I have stopped looking to medical break throughs as only ten percent pan out. Geez im even thinking of paying someine to do distant healing. So i get what you are going through. The anxiety is what ifs and hiw the heck to get from now to the end in one piece. And what if I lost it do they even care for sick people the same way as just mental illness. I dont know, i dont want to know.
There must be an answer out there. Somehow i believe it will have to mind over matter. Just hard hard hard to do that all the time.
**lastly one of my closest friends has MS , she now and has the low bone density as well. She took pills for it. That was 11 years ago shes still ok. As ok can be with MS. Its interesting she doesnt have an anxiety disorder. I dont know how she doesnt to be honest. She says theres nothing she can do and it is what it is but isnt enjoying her life as she used too. She lives one day at a time. Makes me feel ashamed as im screaming inside. But youll get some pills to take and walk a lot and i bet you will be ok. Fingers crossed as these research and development places keeo working hard.
Again i wish you well and send hugs. There are a few of us on this forum woth ailments but it seems most are body healthy woth anxiety disorders. I believe when it comes to the anxiety oart it ends in the same boat. We just cant mindset ourselves healthy but maybe enough to survive in a decent way.
you might want to look into assisted living if you qualify. They do have volenterr services as well. You would need to research that. At least till you heal up.
Sorry if i was no help.
Hi Carol, I am so sorry for what you are going through. I am dealing with anxiety and eye problems. I was a stay at home mom,then looked after my mom with alzheimers for 7 years,sooo now I am an empty nester,my husband is gone alot for work,so I too have to try and get myself back to living as normal a life as possible. I have tryed to convey my anxiety and fears to friends and family,usually they let it go in one ear and out the other or cant relate to it,so they dont understand, i dont do half of what i used to as the anxiety over the health issue at times depresses me and i just stay home. So I totally understand how you feel. Living alone,if I were you,I would try and find some of my friends that might listen and understand,you really need their support. Times like this a person finds who their true friends are. Hugs. Xx
Thanks Lee. Things always worse at night. Going out today with friends but it's hard for them to understand. Best wishes and hope your eye problems resolve.
I know nights are long and hard,especially in the winter when it gets dark early. Ifind the more distractions i have the better I am. Hope you feel better very soon.
Replied but wouldnt send. Thanks for your response. Will try again.