the fatigue is so bad this morning I want to scream!!!
Hi Judy, I understand because I have been resting all week. I don't even have the energy to scream. Did you do too much this week? I hope you rest and pace yourself as it does help. Good luck on your journey. Regards Pat
Thanks Pat, it's so difficult to try and stay positive... I hate giving in or believe this is happening. I know, " what makes me think I'm so special". I just want to trust that this will go away and that the doctors know what to do... But I guess medicine is not perfect or knows everything.
My friends are going to a meeting this morning and I can't push myself to go....
Poor old you... Keep your end up....my shoulder was bad this am, didn't know where to put it... Ok now though... Hope you feel some relief soon. X
For the first time since being diagnosed with GCA 18months ago, I am feeling totally physically exhausted. Had to shop this morning and have done absolutely nothing since except lie in the conservatory, dozing off every few minutes. My body feels unable to do any thing that requires movement of any sort. I feel so stupid and almost guilty as I know there are lots suffering more than I am.
Hello judy. fatigue as been with me from 15mg pred now down to IMG. I put it down to ped & adrenles, but after pushing for a full B/test it turns out that i am low on iron, so now going through scans etc to find the cause..i have had the time team proding & probing top&Bottom.still waitng for results.its is a not so funny journy but i try to stay positive.i think somtimes we have to push ourselfs to join in with with the normal activets with family etc if not it just becomes a life of meds & not much else,i have just been out with family+ young ones had super time, now time to rest,hence on laptop.i wish you all the best for your journey just to add dont let it drive you into the ground.Dave
David, what is IMG , B/ test ? I push every day. But this morning I just could just about walk the dogs... Sorry if I sound argumentative/ defensive or whatever...
Sorry judy;pred brain.i have reduced down to 1mg of pred/ i asked for a full blood test to see if somthing apart from pred or adrenals was causing fatigue, as for your sounding off it is what these forums are for i think,hope you& the tail waggers enjoyed your walk.i have just settled down with sarny & watching cycling on tv {yorkshire}.try to stay possitive hard i know but? dont be afraid to post.Dave
Thanks for your kindness... I apologize ...
Must be the moon! I am also absolutely fagged out. Woke up feeling brain fogged and shakey after quite a good day yesterday. I hate it when all my plans go haywire because I feel too stuffed to do anything.
It does seem to get worse at full moon when I also get water retention badly.
I am just going to rest today and hope it passes. Unfortunately I have to wait for some visitors who seem to have got lost before I can put my feet up.
Only just found my way out of the 'fog'! I did wake up last night and think 'it's very bright' - there was a full moon and cloudless sky.
Hi Christine!!
I've picked up on what you said about water retention,, I feel the same sometimes and have been thinking to take water tablets to hopefully relieve this, but am wondering if they would effect the pred in any way?? Have you ever tried taking water tablets yourself?? Thank you Andrea xx
hope you was not out & about Howling john. All the best. Dave
Yes last November but only because my legs had swelled to tree trunk size after doc gave me wrong heart medicine. It worked quickly and I keep some for emergencies... Full moons always make me retain water and supermoons really screw me up!
Hope not Dave. Can't remember!!
I think Dave makes a good point about not allowing this illness "to drive you into the ground."
Here is a bit of advice I find helpful from a book. He writes: "We don't have full control over the conditions of our lives. But the one thing we do have control over is how we relate to ourselves
and the world around us; specifically, whether we accept what is, or struggle against it.... If we accept something is true in the moment, that doesn't mean we can't work toward changing it in the future--in the very next moment. Acceptance...
is simply seeing reality as it is.
"When we accept what is, we are free. Free to act in accordance with reality. Free to be at peace with the circumstances of our lives, no matter how undesirable or difficult they are. And free to continue to do everything in our power to improve the conditions of our lives (or of life in general) in the next moment."
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The Germans talk about "Fruehjahrsmudigkeit" (I'm sure I've spelt that wrong) or "spring tiredness" - your body has to catch up with the time of year, the change in temperatures, the longer days and the clock change. And wanting to be out and doing after being in the house all winter.
It isn't nonsense - and then there is the full moon - also decidedly effective on body-clocks.
It is less "the doctors knowing what to do" than YOU knowing what to do. There is only a very limited amount the doctors CAN do - give you pred to allow the inflammation to be controlled. But the real illness is still there and they neither know how it works or how to do anything about it as yet. It's tough - but honestly, it WILL get better and that is something you need to hold on to.
I know how you feel.Today I feel so tired and light headed,you just never know from one day to the next how you will feel,makes it hard to plan ahead.Hang in there they say this does'nt last forever
One of the things that helps with fluid retention is cutting carbs - they tend to hold on to water in your muscles along withthe glycogen they become for storage in muscles.
I had some trouble with water retention in my feet and ankles and went for one session of manual lymph drainage - one because he started with the worse leg and within a few days both legs were back to normal and I've not had any trouble since. Definitely worth a try - no side effects!
Tired is really not the word... I've felt tired ... this is like having weights dragging on your arms and legs or like having glue in your joints... Plus it comes and goes with really some times with no rhyme or reason... Sometimes I think I need to eat somthing for energy BUT that's a big mistake cause it does NOT help.