I'm 31, single mother to three children aged 18 months to 7years. I have been having some problems for a while now and it's starting to really get me down. Last year I had a couple of months of numbness in my hand and face. (I'm really foggy with dates and timelines so you'll have to bear with me) before I gave in and went to the doctor about it it stopped and I thought nothing of it. This year I've had to have my gal bladder removed because it was inflamed and just before I was due that surgery I've had to have an emergency surgery to remove my appendix which was also inflamed. I don't know if they have anything to do with my problem but I thought I should add that.
About end of July beginning of August the numbness in my hands and face returned. Numbness is the best way I can think to describe it though it isn't complete lack of sensation. I can still feel things in my hands but it's like the skin is numb? And I don't notice when I cut myself, I cut my finger moving some car pieces and it just felt like I had broken a nail until upon closer inspection I noticed it was bleeding.
Anyway I went to the doctor this time and he put me on B1 tablets for two weeks to see if it improved at all. In those two weeks things just seemed to get worse. I began getting tingling up my arms, it was like little pins stabbing me all over. Then I began to get a tingling sensation up my spine which wasn't uncomfortable buy felt strange. So I went back to the doctors. They did some physical tests, checked my reflexes and balance stuff like that and a blood test checking for lupus. I had already had a blood test for diabetes and thyroid function before both operations. Everything was negative.
My tingling back turned into agonising back pain, I was taking pain killer left over from my ops to get through the day. I was exhausted all the time no matter how much sleep I got. My feet started getting numb. I was having uncontrollable muscle spasms in my legs and arms. Dizziness. Excessive sweating. I started getting weaker in my hands, things I used to have no problem with like opening a jar or doing up a button were difficult. I've blacked out for a few seconds a few times, not passed out just lost all vision and fell over. I've had a foggy head most days and more than a few moments of confusion. I often get the feeling like I'm trying to swallow around a lump in my throat or somethings stuck in it. Recently I've started getting bouts of vertigo and migraines these last all day and the only way I can cope with it is to stay in a darkened room.
So now my doctors are at a loss, we were getting into October now and none of my symptoms seemed to match anything. So I'm currently on a waiting list to see a Neuromuscular specialist.
But it's so frustrating not having answers and i have three children depending on me and I'm terrified of the day I can't force myself out of bed and do what they need me to do for them through out the day. It's been three months and I haven't heard from the specialist I've been refered to still and I'm starting to feel lost with no answers and so tired of feeling like this.