You can use an app on your phone to remind you to take your drugs Sophie.
Methotrexate can cause 'brain fog'. I took it for 20 months [different disease] & my brain became so slow & I couldn't think!
I have been taking 'heavy duty' drugs for a few years now & have kept a drug diary since 2012. I then have a hard copy I can take to my appt if necessary.
Hi Sophie
Any improvement ?
Alcohol...Larger/beer has yeast in it so will inflame joints, that's about as much as I know on alcohol and not even sure it's right it's only what Iv been told 😊
Hi Rob, no change here!! I'm on differently meds so will see how I get on with them, I am low in iron and b12 because apparently the arthritis stops iron going through my stomach or something! She only phoned this morning but I was busy trying to get kids ready to school so I will speak to her later. I know I have to have a iron transfusion and have regular b12 injections. One thing after another but I'm sailing on through! Hope you are well. X
Hi Sophie
Sorry to hear your no better, I know what you mean one thing after another. Sometimes it seems as there is no end to it. Stick with it .... It will get better its just a long process.
I am just recovering from Pneumonia, which has set me back back a little as i have not been able to have my Arthritis meds for a few weeks as Ihad an infection I can not take them, I can start them again tomorrow luckily the pain has been bearable.
Did you have any luck with PIP, I did sent you a private message not sure if you have seen or read it.
What about vit d and magnesium? Iv been taking them about 2 months now and they have made a difference, muscles arnt as sore and I'm not so tired as I was before, just a thought 😊
Hi Sophie
Visit your GP and ask for help from IAPT they provide a great service for people who have long term medical conditions. You will learn great coping mechanisms.
Good luck
Joy
Hi Sophie how you getting on?
I am sorry your bf is not being supportive. I will say, at your age, it is very important that you remain active. Sulfazalazine made me extremely ill, so I recently started methotrexate, and not doing bad...according to my rheumatologist, it is a step up. I am 3 1/2 weeks in, and the first week, I was very sick to my stomach the day after, 2nd week diarrhea day after, 3rd week. diarrhea 2 days after...I do pill form, but there is the option of bypassing the stomach and doing shots. I am a believer in less is more if it helps, but I have lived for years with pain and generally have done okay until it started interfering with quality of life. Everyone reacts differently, has different side effects, and while a med may work for one person, not so much for another. You are very young, and I am so sorry you are experiencing this at your age. Don't give up hope, even if one med doesn't work for you. Quality of life is very important, and you are lucky to have a diagnosis early on so you can do research and find what works for you before too much damage to your joints. Unfortunately, there is a lot of misinformation out there, and everyone believes they have the cure with a simple diet. That does not mean you shouldn't experiment with different theories in conjunction with the your rheumatologist, but remember that when you are inflamed, there can be damage. If you are seeing an MD rather than a rheumatologist, just think of it this way: I wouldn't go to a barber to have my hair highlights done, nor will I see my MD to take care of my autoimmune disease. You also need to realize that your children may very well have this disease. You didn't mention whether you suffer with psoriasis, as well? I was told both sulfazalazine and methotrexate can take months to take effect.
Hi Sophie,
I know exactly how you feel. I'm 25 as well and was diagnosed a year ago - it holds me back from doing a lot especially socially because I use every ounce of energy at work. The people around have to be really understanding considering the condition you have and I find that most people who care are very understanding in the end (though I only tell those really close to me).
Anyways, know that there are other people going through what you're going through!
not alone! 29 and diagnosed last year. take care